Sign up here to work on our CHIARI BOOK

[selmaS]

Hi...we have been discussing creating a book for chiari awareness.
Please use the comment area to post ur name if u want to be included in the compilation of the book.
We will make it a vote to how it will be offered.

so cast ur vote and add ur name if u want to help.

Can u help?

[Hursty48]

Yes Selma. Please let me know if you would like my input. More than happy to help
x Sue

[hh505]

Iaam thanking everyday that I wake up.We can all  be grateful we are alive even with our problems. maybe someday the neuroligist [sic]? will be able to diagnost? our problems more rapidly and help will even sooner for the ones that need surgery.  I am not trying to preach I am just thankful for the many new developments in NS with each one that is just that much more knowledge that the drs have to treat other people.  I hope I am not sounding like an idiot but as in one of my other msgs my story is very long and complicated. good luck to all who are going into surgery and all who are trying to deal with this problem of chiari . lol hh505 in fla.

[merlot3106]

Will do....what a great idea you have :)

[selmaS]

Hi Meg...thanks for offering to help...right now we need stories....so use the journal feature here on MH and start with b4 dx and thru getting dx and finding drs ect...all the fun....don't worry if u r not a writer...us bullet points if u need to.

I will let u know what else is going on as it happens : )

Thanks again

"selma"

[merlot3106]

I would love to help in anyway I can, just let me know if and how you would like me to help.

Meg :)

[anitalounurse]

dear selma

i sent an offer to help and i plan to spend X amount of time each day on my journal as this is what you suggest.  i will wait to c if u send me an invite :)
i sure hope so....

thank u
anita