list names of tests...conditions.....medical terms ect.....and those who can offer the definition.This will be a reference for chiari and related conditions.
ie: EDS= EHLERS DANLOS SYNDROME
EDS is a genetic connective tissue disorder characterized by joint pain and hypermobility, strechy delicate skin, or fragile vessels and organs prone to rupture.People with EDS have these unstable joints, fragile skin, or vascular problems, because of a genetic defect in their connective tissue.
someone else can add to this by adding symptoms....ect...
If someone does not understand the verbage , we change it until we all understand! If u have a term u do not know....post it...we will try and figure it out.I can't say we can...only we will try.
This this thread for me LOL..... I have written down most of the abbrev. I just had to tell you this put a smile on my face, but this will be nice for the one's who have just started using this site. At first I felt lost. Now I understand abbrev. so much better all because of all of you ... Thanks.:)
is a neurological disorder that occurs when many peripheral nerves throughout the body malfunction simultaneously. It may be acute and appear without warning, or chronic and develop gradually over a longer period of time. Many polyneuropathies have both motor and sensory involvement; some also involve dysfunction of the autonomic nervous system. These disorders are often symmetric and frequently affect the feet and hands, causing weakness, loss of sensation, pins-and-needle sensations or burning pain
I am curious about Pseudotumor vs. IH? Any idea what is different. I noticed we have someone posting about the pseudotumor and I know I have read that you should lose weight to help that... (which sounds a bit weird). I know it is different from Chiari but don't understand How the high pressure from too much fluid is different from the pressure from pseudotumor?? My question is probably confusing but it seems the two terms are used interchangeably. Obviously the one thing I can come up with is that a head producing too much fluid isn't going to be helped by weight loss :)
It isn't the term, but what is the cause of the ICP or IIH...they are the same thing, but can develop from different sources.
Many Drs that Dx IIH or ICP( old term) believe that it develops as a result of being overweight....but some develop IIH and are thin...so, it is not always the case...but those with some extra lbs will be told to lose weight instead of the Dr finding the root cause.....
Chiari can cause a blockage and it can appear to be IIH, but once the flow is restored this may resolve....
But some that never had IIH may develop it post op...there is no known cause...this is y there is an extra I...IIH and not just IH...the extra I stands for idopathic which means unknown reason.
IH... it stands for intercranial Hypertension also known as PTC pseudotumor cerebri. this is when there is either too much CSF fluid and ur body can not absorb it or, ur body just is not absorbing the CSF properly....meds are used first to see if this can rectify the situation, if not, surgery to place a shut- tubing to divert the excess fluids to another area of the body where the fluids can more easily be absorbed.
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