My son has just recently been diagnosed. We found both because of slight scholiosis. We are going for further MRIs at the end of the month with surgery in the near future. This is all new to us.. we are dealing with Childrens Hospital in Birmingham AL. Has anyone had any experience with him? Any comments for us as a family dealing with this?
So sorry ur DS is having to deal with this, and I know this will be a frustrating journey for u all....know u r not alone, all the members here are available for support and info.
I am not sure about the Hospital u r going to, but we do have a list of Drs here that the members have been to and liked..the list is not a referral, it is only meant to help u start ur research of drs.
I'm so sorry your found out this about your son. All of us on this forum know what you are going through right now. Just wanted to let you know your not alone. You have reached the most difficutlt issue is finding out what is wrong with your DS. Letting you know you are in my chiarian prayer's and hope you find the answer's you are seeking.
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