Aa
A
A
Close
Avatar universal
Teenager with Chiari and Syrinx
My son has just recently been diagnosed.  We found both because of slight scholiosis.  We are going for further MRIs at the end of the month with surgery in the near future.   This is all new to us..  we are dealing with Childrens Hospital in Birmingham AL.  Has anyone had any experience with him?  Any comments for us as a family dealing with this?  
Cancel
3 Answers
Page 1 of 1
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

So sorry ur DS is having to deal with this, and I know this will be a frustrating journey for u all....know u r not alone, all the members here are available for support and info.

I am not sure about the Hospital u r going to, but we do have a list of Drs here that the members have been to and liked..the list is not a referral, it is only meant to help u start ur research of drs.

http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

Since ur DS has slight scoliosis also have them check him for tethered cord.....and Ehlers-Danlos...and a few other Chiari related conditions...sleep apnea, disk issues, ICP.....

  U want to be sure the Dr u see is a true Chiari specialist.

  "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
1306714 tn?1327260680
I'm so sorry your found out this about your son.  All of us on this forum know what you are going through right now.  Just wanted to let you know your not alone.  You have reached the most difficutlt issue is finding out what is wrong with your DS.  Letting you know you are in my chiarian prayer's and hope you find the answer's you are seeking.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
620923 tn?1452919248

  Hi Just wondering how ur DS is doing?....and if u found a Dr yet that is well inform with  Chiari.....

I know this is a lot to deal with and this time of year there is so much going on, know we are here if u need to talk.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Recent Activity
Avatar universal
Blank
Reggaeprinces commented on The Turbinates: What ...
1 hr ago
Avatar universal
Blank
GirlyBear15 commented on When Your Cold Is Not...
Dec 03
Avatar universal
Blank
Tibberz commented on photo
Dec 02
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources