Chiari Malformation Community
What happened???
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What happened???

I thought physical thearphy was going to go well. Yesterday was day two, not much to do. After that I came home ate n rested. I took my daughter to an app 30 min top. I have two girls so shopping is a lot easier with them. Before I could even get checked out I had 2 seizure, a friend got me out the store. Then this morning two more. I had to miss my app. How can thearphy help when all this is going on???? Ugh!!!
10 Comments Post a Comment
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620923_tn?1393294254

  Hi....well it all depends on what they have u doing not all PT is good for us...may I ask what they r doing with and for u in PT?
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1903798_tn?1333908888
:( I was not able to do therapy either.  I hope they are not touching your head/neck!
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Avatar_f_tn
Sorry so early! This insomnia is driving me crazy!!!  First they put me on heating pads n a massager then she came in and massaged my neck. I thought I was gonna hit her it hurt so bad. Day two no massager just heating pads n massage  by hands not as bad, then paddling with my arms backwards for 4 min, then pulling a string that pulls the opposite arm over ur head. After that I took a pain pill n muscle relaxer n went to sleep!!
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Avatar_f_tn
How did u know???
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1823499_tn?1370093889
I am also at day 2 of pt. U r doin things u shouldn't do. Not yet anyways.
I lay down and do tiny head, neck, arm and leg exercises. Then I get up and do arm hand ones. I get a lil back massage but they do not touch my neck at all. U need a new pt sweetie
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620923_tn?1393294254

  I have to agree this is y I asked what they had u doing or doing to u...they should not be touching ur neck....find a diff PT.
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Avatar_f_tn
I thought so. so what do I do now??
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1823499_tn?1370093889
Call around to pt places and ask if they know chiari? If they say yes, ask them to explain it to u before u explain it to them. That will let u know if they truely understand it. If u need a referral get one after u fund a good pt.
Tell the pt u have now that they r doin the wrong things and its hurting u. Don't go back.
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Avatar_f_tn
Ok thanks, I thought I had to keep going cause dr ordered it!
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1823499_tn?1370093889
No way, call your dr and fill him/her in on what's going on tho. Let them know it makes u feel worse and what's goin on. I had bad experience with pt last year after my first surgery. I just told them it was makin me worse and quit going. Let me know if u find another pt, good luck and glad to help ;)
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