Hi Ellie and welcome to the Chiari forum.
As you can see, you are not alone...this is and will continue to be a very confusing and frustrating and yes scary ride....
Let us help you educate yourself, so you can select the right Dr for you....once you have the right Dr things will fall into place and you will feel more at ease...let us know how we can help.]
I know how you feel. I still remember the day I heard the word Chair, and to come home and read about it was kind of scary, but having surgery it was worth it. I'm so happy you found this site because when I was going through my tough times 5 yrs ago already, I would get on here any time and there were always the right person on here to help me through. My little Angels. You have a Chairi family now and just remember you never alone. Wishing you a better day.
Linda
Hey Ellie! This is probably a scary and confusing time for you right now. We've all been there and understand the feeling. You've come to the right place for support.
The best advise I can give you is to find a chiari specialist to evaluate you and do all the testings to rule in/out related conditions.
I'm 8 months post chiari decompression and struggle with some things still.
If you need to talk, vent, or complain, we are here. This is the best group of people!
Hey there friend. I've been dealing with chiari since I was 13 I'm now 24. I can try to help with some questions or anything you'd like to talk about. :) I'm scheduled for the decompression surgery in less than a month. Yay but scary.
What size is your herniation?
Mine is 8mm.