Brain Fog, omg!! I was walking home one day and then stopped for a minute cuz I didn't know if I was going the right way??? And then the other day I was helping my son with his math homework and was so freaked out bcuz I wasn't sure that's how it was done, I felt ridiculous!!! But thank God, I see I'm not the only one....
I'm so sorry you feel alone, I actually felt the same way, although my husband is very supportive, it's good to know there's people out there with Chiari that share their stories, makes me feel understood.
I'm 29 and have always been so independent and strong, it feels horrible to all if the sudden feel sick, dizzy, fatigue, pressure in your head,etc. But being part of this group has really helped me and I'm sure it will help you as well! Now I know that Chiari is actually serious and there are many people going through the same pain I go through.
Those vibrations can be unsettling for sure....I had that at one time and did suffer drop attacks over the yrs....no idea why or what they were from....once I got the DX it was a aha moment that was more a relief then nething else.
May I ask where or what area u live?.....that may help as some areas do have support groups where u can go and meet others with this condition, helps sometimes to meet face to face....but we are always here too!
Once u find a Dr that is well informed and experienced with Chiari and related conditions u will not feel so alone.
This may sound weird but does anybody else feel noise vibrations . its like little electric shocks run thru my bidy every time there is a noise at a certain pitch like a loud clang or certain music its so frustrating and the dizzyness . evEVERY TIME. I STAND UP AND SONETIMES WHEN IM JUST STANDING . I COME FRIGHTENINGLY CLOSE TO BLACKING OUT AND LANDING ON THE FLOOR . ITS ESPECIALY HARD TO PLAY THAT ONE OFF .
I am happy to have found this forum ...still i feel very alone and overwhelmed with questions and fear of things going from bad to worse in 2.2 seconds. I have no family and nobody seems to quite understand how the seriuseness of it all. mostly cause i dont talk about it at all. .when i ddo its only to give a rough outline to explain why all of the sudden i need to lie down or why even though i was fine one minute and the next everything hurts * and no please dont hug me that hurts too. ttry explaining that one . any way yah it ***** and im scared but i smile grit my teeeth and hold my breath try not to cry and hope im as convincing as i think i am cause i refuse to be that "sick girl" . while i continue to live with the reality that its getting worse and i havent seen a doctor in 2years .
You are not alone! I have short term memory loss. I try to make lots of notes and put them where I will see them. My family understands especially my husband. At work however I feel like an idiot as not many people know about my condition or that I had surgery 10 years ago. Make notes and if there is something important that needs be done do it right away while you are thinking about it. Best of luck!
It's super common. I have bad brain fog too. I'll be sitting in tests and forget everything I've ever studied! So taking a lot of notes is key to everything. :)
Hi....yes brain fog is a major issue so many of us with this condition complain about.
I have put things in the freezer that do not belong there....and I have said a few things even I had no idea what I said after I said it....so it is pretty typical for a Chiarian to have this issue.
Have ur BF read some of the posts here...u can use the search this community feature and read older threads on this topic.
U r deff not alone on this one..