So sorry to hear your feeling this way. I know I felt the same way before surgery. It's no way to live, but I never thought after surgery I would have to accept the things I can no longer do because of Chairi. Wishing you a better day tomorrow.
Linda :)
Hi and welcome to the Chiari forum.
Do u think u may also have Chiari? From reading ur post I can not tell if u have a DX....that is really leading to relief.
Have u tried PT?
i have suffered the same pains for years and i wanted the same a operation as u just to stop the pain in my head i have the worse migrains ever for 30 years iam now 45 and i still suffer i go to the chronic pain unit get injections in my head , neck and throat everything months iam all , all sorts of things and nothing works i got a c,t scan an m.r.i scan it showed i had a trap nerve in my neck and a retention mucus cycst in my head but they r not doing anything ab out it x
I wish that I could say something encouraging besides you are not alone.
This condition is a very heavy burden, and continues to be even after surgery (although usually lessened).
Try to find some gratitude, enjoyment, and/or support wherever you can. Easier said than done, I know.
I hate to say u r not alone in this, but u r not...we all get frustrated and feel just the same....it is frustrating as there r not enuff Drs well informed or experienced to offer us help.
But they r out there...Have u read the Poem by Dr Oro? Look at the top of the page and look the Important Announcement drop down, and Click on the poem....it helps when we r frustrated to read about a Dr that understands as it helps to offer hope : )