mega cistern magna?

[Brendaz20]

Hi all. It's been awhile since I posted here. Still no diagnosis. I'm planning to see a NS soon who lives nearby me and is familiar with CCI..Chiari and related disorders. I believe that I'm dealing with CCI..as I have joined some other support groups and was given feedback of my cervical MRI. A lot of people are confident I have it..or some type of instability..based on my symptoms and my MRI. I was also told that there is a quite a bit of extra fluid behind my brain and that it could be a condition called Mega Cistern Magna. I looked it up but unfortunately there's not much info about it. Does anyone know about this disorder and how it is caused? Or is there anyone who has this? thanks in response.

[selmaS]

  I do not have the stretchy skin either...you do not have to have ALL the symptoms to fall into that DX...plus there are many types of EDS and not all have to do with the skin.....

I also did not think I was flexible...I can not do many of the "tricks" so many that are flexible can....but when a PT or Dr moves me, my joints do hyper extend with out pain...that is bcuz the connective tissues are not holding me the way they should....and that is another reason I did not think I was flexible....since my connective tissues are lax my muscles had to take over their job and they are tight making me less flexible then most...but the reason I was so tight was bcuz I am flexible...I know it sounds like double talk but that is how my Drs explained it....lol...maybe not exactly like that but I hope I made some sense....

My dislocations did not start until I was older....now my one pain in the you know what joint dislocation is my ribs....they hurt and I never had that when I was younger, so it is possible when younger that  some of the tissues are still taught...and will help hold you together better then after you age a bit more....

Push for those answers....let me know what you find out

[Brendaz20]

Oh alright..thanks for your response Selma.(: And no I have not been checked for EDS yet. The thing is is that I don't show many signs of EDS..like being flexible..or dislocations..or stretchy skin. But I do have a lot of joint popping and clicking. I'm hoping when I see the NS that maybe he can give me some answers as to these issues.

[selmaS]

  Hi....I believe there has been other threads on this topic...but they could be from a few yrs ago...nothing recent....but we have had a few that were told possible Dandy Walker, or  some other condition....

Since you feel you may have CCI have  you been DX'd with EDS?