Just Very Depressed Lately

[tattie197635]

I haven't been on here in awhile, because of going through alot of depression. This Chiari thing is really overwhelming at times, I watch my friends and family living a life that I wish I could live. Laughing, dancing, going on trips, going to concerts. The last time I went to a concert I felt as if I was going to pass out literally so I decided that I wouldn't go to none anymore..SAD. I had to start my SSD over because the ALJ denied me and my lawyers dropped my case because they said once it goes to the Appeals Counsel then my changes of winning are slim to none.

So I hired a new lawyer got new Family Doc and started the process all over, a real Bummer. I found a specialist that has experience with (CM) in Merriville it's about an hour and a half from where I live so I made an appointment for the 25th of Jan. and I got a call yesterday from the office saying that my insurance wants me to stay within my home town....I called my insurance and they told me if there are (NS) in my area I have to see them first and if they can't help me then I can go out of my hometown....WHAT! I thought my insurance covers the entire state as long as the docs accepts it. It all just ***** and I'm tired of all this. I want to work so bad but I know I can't. I'm just out of options NOW and don't know what else to do.

[linnielou232]

I know the feeling of being depressed because of what we can no longer do  It has taken me over a year to start excepting this.   I'm getting pretty nervouse because I go talk to my lawyer tomorrow and have my hearing on Tues at 8:30.  The lawyer told me Fri.  I have a weak case because my NS kind of contridicted himself saying one time nothing was wrong, but in my lastest statement states I can't work.  So I'll see what the lawyer has to say tomorrow, but I'm getting pretty nervous.  I've put this in God's hands because I know what will be will be, but I have excepted what I can't do.  I have no documentation of the lighting, noise issue and I have withdrawal so much because of this issue.  Please keep me in your prayers, and hoping the best for you also.
Linda :)

[selmaS]

  Well then u have an argument for going out of state...tell them u know others that went to a reg NS and had to have more then one surgery, do they want to pay for several surgeries or one? U need to be able to get to a dr that is well informed and experienced with Chiari...ask them to find one in state for u....

U have to be the squeaky wheel to get what u want <3

[tattie197635]

Thank you for your comments, it really helps to know that your not alone when you think you are it's just the everyday struggles of your body then doing everything else like being a parent, it just can get the best of you at times.

Selma I'm going to see Monday what my insurance say regarding going out of State. I have not ran into No (NS) that are specialist in Indiana for (CM)....Hugs!

[selmaS]

  Bowling is not something I would consider doing...too much bending and lifting and the action of tossing the ball down the alley would knock me on my keeister....lol.....

Plus as u mentioned the noise....

I was 2 1/2 yrs post op b4 I went to the concert so mayb it was too soon?

[Sexybare]

I'm goin thru same life altering depression. Tried a concert in june and had to leave because I practically passed out. Puts a damper on life, but try little things to keep your spirits up. One of my family mentioned bowling. Last week. Wish I could but can't, not to mention the noise and lights, hang in there, u r not alone,Hugs Dana

[selmaS]

  Wow, I never heard of that b4....y would it matter?....Does ur ins have an appeal process? If so, start one....u should be able to go out of state for care if need be....I am not aware of Chiari Drs in  IN.....so if u can find one u would think the ins would want u to go there instead of paying for u to go where they can not help...then they have to pay twice....if u word ur appeal the right way, they may agree with u : )

Good luck

Tattie, mayb u need the support of ur friends here to help with how u feel....u know I did not think I would ever go to a concert again, but I did, I took ear plugs along, but we were not that close to speakers and I was fine....and had a great time...I saw Jason Mraz and Colby Coliat....so there is life with Chiari <3 ((hugs))

[Kris808]

I certainly relate to chiari being overwhelming (as I'm sure most of us can!) and the whole 'watching everyone else enjoy life' thing.  Puts you in an even BIGGER depression!
  The issue with ur insurance... see a local NS if that's what they request.  Then get a second opinion, or 3rd or whatever.  Make sure to check with ins though on their "procedure" for 2nd opinions.

take care
Kris