ptc

[irislita]

Hi there,
Has anyone been tested for ptc after the surgery?i really want this to be tested as i do not feel any better after surgery.how do they test it?and in case how could they relieve it?

[irislita]

Thanks for your answers.i will talk to my doctors to check it

[lu7997]

Psudotumor cerebri.    And I have it.     They treated mine before my decompresion.   By inserting a shunt.   And the only testing I had done was lumbar punctures and they did both of mine under flurpscope (xray guided). And did not remove fluid just tested pressures to be sure not mess with my chiari.     I mean they had to take like 2mm of fluid for testing of course to assure there was no infections and so forth.  But that is minor amount.    


I will say.   I feel better with my shunt my chiari dropped since shunt placed but in dropping it is no linger wedged and therfore made room and is no longe pressing on the spinal cord and I actually am regaining feeling in my feet again for the first time since all this started....... Decompresion may not even be needed for me now. (maybe someday. But not today.  And when my shunt was placed in may decomp was going to be scheduled for aug).   They had to remove the pressure first mine was in the 50s.  

Anyways.    PTC.  Is a pain in the butt in combo with Chiari.   And I got lucky with a great NS.    So if the do the LP. Insist that they DO NOT remove fluid if it is high those idiots just instinctivly what to pull the excess.  I had to scream at mine the last time to get them to stop


Good luck.   : ).  Hope my over worded post helps some.  Lol

[Sexybare]

What is PTC?

[selmaS]

  Hi...to test for PTC also known as IIH  they do a LP (lumbar puncture), I know we are to avoid those, but in this case it is medically necessary...as long as the tech performing the LP knows about ur Chiari and draws slowly u should be ok, plus be sure to rest for a good 48 hrs after this test to prevent a leak.

They may try meds like Diamox to reduce the excess fluids, and if that does not work, surgery to implant a shunt to divert the fluid is done.

   "selma"