is my case be treated differently beacuse of my insurance?

[imjsgirl]

I have Type 2 chiari with a 7mm herniation, and a syrinx.  I diagnosed myself.  That is, I was having many, many symptoms, but my doc. never took me seriously - so I DEMANDED an MRI.  I knew something was wrong with me, but for 2 years, my doc said, it's anxiety, it's migranes, it's this, it's that.  Blah, blah blah!  Finally, I told my doc - look either you give me an MRI to find out what is growning in my head or I will wreck my car into a tree and get an MRI of my head in the ER - she finally ordered it.

They found the chiari - then sent me to a neurologist.  My neurologist thought that it was serious enough to send me to a neurosurgeon.  However, when I saw him, he told me that my chiari was small, nothing to worry about, and A-symptomatic.

Ok, maybe it is small, but it is not a-symptomatic, for crying out loud I knew it was there!  I knew something was "growing" inside my head - I thought (because of the headaches) that I had a tumor.  Thank god I was wrong, but the point is, this was not an accidental finding which would indicate A-symptomatic.

So I saw a specialist.  Dr. Bejjani, he also told me that I do not have symptoms from Chiari.  I don't understand.  I had a list of symptoms from headaches, to numbness, even nystagmus (you can't fake bouncing eyes).  But yet again, not Chiairi!  What?

So here is my question, do you think I am being pushed aside because I have medical assistance (welfare insurance)?  Do you think that if I have more than 10 symptoms that disrupt my daily living, that I should seek surgery?  What do I do?  Who do I see?

Please help.

[rozia]

No Insurance shoul d   have nothing to do with it. seek out another opinion and maybe a third. That surprises me about Dr. Bej

[selmaS]

well, I am at a loss as to what to say...Dr Bejjani is very good...I thought of going to him, but he's over 5 hrs away....
were u dx as chiari 2?.....besides ur eyes and ur headaches what other symptoms do u have?

Many here have gotten the runaround from drs...see the post MONDAY RANT....add ur dr experience there.

Good luck
Godspeed
"selma"