at what point does someone with chiari become a "candidate for surgery"? and if all else fails is it possible to request surgery?(<-----i know, crazy but im just wondering really.) i have my appt with the NS on feb 4, and i want to make sure i have everything i need. so far i have my disk with the mri scans, my long list of symptoms and am working on a list of questions. anything i am forgetting?
Hi...first, surgery is not a fix or a cure....u can continue to feel as u do, or possible feel worse.
A surgical candidate is based on the Dr if he would do surgery on u and many use different criteria to classify u a surgical candidate,and u do not want one that say u have Chiari and I will do surgery and it will fix u....RUN if u hear that....make sure the Dr is looking at CSF flow and how it is affecting ur overall health and ur symptoms....make sure they rule out ALL related conditions especially Ehlers-Danlos by doing the Beighton scoring test on u.....
If they say u r hypermobile but that doesn't mean nething RUN...bcuz it can and will affect how u feel and heal.
Beighton is for Ehlers-Danlos a connective tissue disorder.
Syringomyelia, EDS, ICP, POTS, tethered cord, sleep apnea (if u r having sleep disturbances or snore in excess), disk issues, vitamin and mieral levels as well as thyroid.
If ne Dr says after surgery u will be cured...do not believe them....u also will still have Chiari, u just may no longer have the herniation to the extent u had prior....the main reason for surgery is to restore CSF flow, and slow progression...this means formation of a syrinx...if someone has a syrinx, they will most likely be considered a candidate as u do not want the syrinx to grow larger and possibly cause perm nerve damage.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.