It has been a while and I have a few questions

[lilmiss1999]

I havent been on the forum for a while due to new things going on and drs looking at some other options.

First I hope everyone is well and welcome to those I have not met yet.

i have a question or two so if you can bear with me......Greatly appreciatied

A little bit about me since it has been so long and to recap quickly....

Around 2 years ago I started to experience increased headache, tremors, brain fog and fatigue. I had an Mri and Chiari was found but considered unremarkable. I was blown off by 2 NL and a Chiari Specialist in Washingtin state.

I lost my job soon after and have been only taking pain meds when needed and just dealing the best I can with no insurance.

Fast forward several months and things got weird. I do have pain behind mostly my R eye and forhead with the headaches. I started noticing that everything was a few shades dimmer in my R eye.....ok no biggy. Then I started having muscle cramps in my L arm, L leg and back. This lasted for a couple weeks. Made it really hard to sleep and get comfortable at all. If my muscles were not sending some form of Morris code all day and night, they werre sore and achy from doing so.

Ok, so I go to the DR and mention these new things and ask if there is anything for the muscle spasms and sleeping. She asked me some questions I had not been asked before and suggested i may be showing signs of MS!  Great!

Because I have more distinct "flare ups" latley she wants me to have another Mri when I have my next episode.

Ok so the waiting continues. I am still having a few issues with walking because my muscles are so tight on my L side and some eye and head pain. Nothing I cant handle.

I did notice the other day while trying to count the abundant floaters in my eyes, that after just a second or two of staring with my R eye, everything goes black. Once I move my eye and look somewhere else it comes back but returns if I stare. Weird, never had that before.

I guess my question in all of this is.......Does any of this sound like Chiari or should I be concerned about possible optic neuritis and MS?

I am a little freaked out by the new symptoms.

Thank you for reading and I hope to get some good feedback. Have a great day!

Jen

[selmaS]

   My night vision went yrs ago and no one listened to me...they kept telling me it was age related as was my need for glasses...which the eye Dr would not RX...I had to go get them from a drug store....crazy...they said my eye were fine just slower at focusing...???I have no idea, but I have to keep getting stronger magnification glasses....

  LOL...my DH finds it amusing to change the channel on the TV when I come into the bedroom...I can not see a thing...talk about slow to focus...ugh....

BTW- lesions on the brain can be the result of severe HA's.....

  Crossing my fingers for u to have a good outcome.

       "selma"

[lilmiss1999]

Thank you Selma...You are always so helpful.

One of the reasons my PCP wants to look at Ms is that on my Mri over a year ago, lesions were found my the second NL and noted in my records. They were not mentioned on the report and she feels that was because they thought I was having migraines in the beginning (which turned out not to be) and may have been considered "normal for migraine sufferer"

I know that Chiari and Ms share several symptoms so that is why i asked.

I guess with my next Mri I will be able to see if the tonsil herniation has changed at all.

My Pcp did mention looking for that too as it needs to be looked at if they decide to do an Lp. I know and so does she that Chiari can be affected if it is not right.

I am going to have my eyes looked at. A little concerned with the vision loss

Oh and my night vision is all but GONE!! cant see my hubby laying next to me in bed. Have to feel his face just to give a kiss goodnight. As goofy as he is,,,,,he finds it quite amusing. LOL

Well, we will see how things go. Either way I just want an answer and maybe some relief!

Thank you again.

[selmaS]

  Hi Jen....I know how frustrated u must be....and I wish I could give u a deff answer, but, I will tell u this...chiari symptoms do cycle and often has been misdx'd as MS...that said, some with chiari have been dx'd with both!

Get tested to rule it out...from my understanding MS is a demylation condition and if u do not have demylation then it can not be MS regardless of the symptoms...then it is the chiari...too many Drs do not understand how chiari affects us and look for other possibilities and all should rule out MS during testing.

As for ur optice neuritis....go get that checked....chiari can affect our vision and  it is possible to have issues...so get it looked at.


Keep us posted : )

   "selma"