Aa
A
A
Close
Avatar universal
wieght loss and chiari
I need to lose weight but finding most things make me ill afterwards due to csf build up and pain in my joints and head any help would be grately apreciated
Cancel
7 Answers
Page 1 of 1
1306714 tn?1327260680
I don't have an answer,  but just wanted to add to your flustration.  I also was diagnoised with fibermyalgia so they put me on Lyrica.  I gained 14 pounds in a month.  I know it is the medicaion, but what can we do.  I do go for a lot of walk's and I try to figure out how to loose this weight.  I finally come to realiaty and now I weigh my concern's.  Feel  better? or gain a little weight?  I'll take the weight right now,  because I am just focusing on feeling better.  The weight will come off in time  Just try walking a little every day.  A little is better than none. Enjoy your day with a small walk.  I know it is awful that whatever we do we duffer for it.  Even if it is a little walk.  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

Weight gain with conditions like chiari is all too common, and difficulty losing is not far behind.
I do not know what u were using/taking to lose weight, but u should not use products on the market for weight loss as it is not good for chiarians.

It puts added pressure on areas where we already have pressure....

  The med Topamax is said to help with weight loss....I am taking it, and had initial weight loss, but it leveled out...I was told to try to  up my dose but I had a reaction....so at the level I am on I doubt I can lose nemore....

I am hoping once I feel better I will be more active and lose the weight...it is just inevitable as we r sedentary.

  As Linnie said, I'll take the weight and worry about feeling better...one step at a time...we will get there....

I am much smaller than last yr this time....so, it is possible.....

   Eat healthy ....and walk when u can.

     "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I too am struggling with this and unfortunately, waiting to feel better is not an option for me since I have a lot more than a few pounds to use.  Honestly, I'm hoping that if I can lose some weight, maybe some of my symptoms will get better. Ex: Taking a walk may not give me headaches if it's not as hard on my feet & spine to carry this much weight around.

I'm attempting to hit it hard with my diet.  I'd be happy to share any details with you, but I am definitely not an expert and don't even know if it's going to work for me yet.  So far though, I will admit I have been feeling better (less tired especially!).  

As far as exercise goes, you have to find what works for you.  For me, I found that I can go swimming (backstroke and walking laps in a 4ft or less pool), and I can do low impact cardio (stair stepping at a low pace, biking).  My headaches can be triggered by an increase in blood pressure, so I don't go for very long...but I figure if I get a little in, maybe I can build up enough endurance to do more the next time, and more the time after that.  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
OK, I think the forum is broke - I posted and it looks all messed up now!  Oops
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Hi...what is the problem?...there are a few glitches since the updates this weekend and MH is working on them.

Let me know what u mean...can u capture a pic of the issue and send it to the email at the bottom- contact us?

  "selma"
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
1755089 tn?1376057155
I need to loose a lot of weight to. But I'm always so tired!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248


   Next week I hope to start posting the exercises from the Dr to see if neone here benefits....and to see how if affects others other than myself.....

      I modified my diet long ago....and that has yet to yield results....I did lose some but not enuff to satisfy me....I always level off and feel stuck.....

Hopefully we get results with working out as a group???
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar universal
Blank
girton08 joined this community
Welcome them!
17 mins ago
Avatar universal
Blank
skrowe uploaded new photos
23 hrs ago
18714950 tn?1467221160
Blank
InGodsHandsIStand added the Sleep Tracker
Jun 30
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
Avatar f tn
Blank
lasel22
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
Avatar f tn
Blank
mikeysmom1995
Oxford, MI
Chiari Malformation Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
Avatar f tn
Blank
lasel22
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
Avatar f tn
Blank
mikeysmom1995
Oxford, MI