Autoimmune urticaria anyone?

[jbaum27]

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?

[itchyaussie123]

I am now on Methotrexate 10mg per week, and the following daily:  Telfast (same as Allegra) 180 mg, Zantac (Ranitidine) 300mg, Doxepin 75mg, Singulair 10mg, Plaquenil 200mg and Prednisone 7mg. Still getting bad urticaria about 3 or 4 days per week.  It is worst in hot humid weather.  I am usually best the day after I take the Methotrexate but then it comes back again. Hardly a day goes by without some degree of urticaria.
Any ideas anyone?

[lenrosen]

My wife had her first Xolair injection on Thursday. No dangerous side effects so far. Her immunologist told her the hives might get worse for a few days and then go into remission for up to a month. I'll let you know how she progresses. This first injection was done under a clinical trial. The next one we will pay for at about $750 a pop. Worth every penny if she goes into remission.

[Jam79]

That was a horrible drug for me to. I gained 15 lbs in a month and got my period every day. I just came off it Sunday and hoping the side effects wear off soon. My new allergist does not like it either and put my on a antihistamine regiment that is working so far.

[Jam79]

I tried plaqunil and the side effects for me were horrible. I got welts on my face so bad and painful. The only thing that has helped me so far is Zante 2 times a day, Zyrtec 2 times a day and Allegra  once a day. The dr said she could add another Allegra and Cingular if necessary but so far after a year this is working and I have Ben hive free for 5 days.

[rhondacarol]

you mentioned in your blog about too much histimine in your body and then working against you? Well I hadnt quite understood that. One of the allergist that I has done periodic allergy tests on me and found on of the things that shows up is too much histimine, it was a number 9 on the allergy tests. the allergy medicine would work short term and then wouldnt work anymore. Still not much relief from the itchy welts.

[marysia153]

Hi guys!
I just start feeling better after 7 month’s hell causing urticaria (pressure, food, sun…), angioedema, stomach ache and other symptoms. I was hospitalised 7 times because of internal edema…. I was able to be back to a normal life thank to people like you who share their experience on the forums. In my case all this was caused by a bacteria: Helicobacter or H pylori.  We can get it during our childhood or even it can be contracted when we travel… Some countries have a very high percentage of it. I don’t say that it is your case as well but it is worth to check.  I had to take antibiotics for more than one month but once my breathing test was negative (no helicobacter anymore) I starting slowly getting better. Now, 2 month later I am the happiest person ever. Please check with your doctor if you are H pylori positive. Take care and let me know if you have other questions.