Autoimmune urticaria anyone?

[jbaum27]

Looking to make friends with others who have autoimmune urticaria and share stories, symptoms, food for thought, etc. Anyone game?

[Robertta]

Hi Shellan,

i just like to say Hi :) And let you know your story is a lot like mine. I have Chronic AUTOIMMUNE Urticaria.

I'va tried to H1 + H2 -respetor Antihistamin: means for example SINGULAIR & XYZAL. I don't really know if it's helping or just the time period this Urticaria have now been going on. I've also been teking ATRAX for nights to heliping sleeping while skin is itching anyway.

This time i have had urticaria every day started on January 20th. So about two months now.

Last week i did not take ATARAX at all. ANd yesterday evening i took, AND I REALLY WONDER THIS WHAT HAPPENED ---->  I think ATRAX made my skin become itchy !!!!  

Can it be so, that my body has devolped over sensitiveness for ATARAX????

Have you other having this kind of experience?

Thanks for all & take care :)

[kristful]

Hi, thanks to all here for sharing your stories.  I find that this type of research has helped me more than all the professional sites put together!  My son is 13 and has had Chronic Immune Urticaria for three years.  He has had about 8 episodes, the first one extended for the longest until we found a food link.

I know the food link is reported as "rare" but if anyone hasn't tried it, it is worth a go...he went off of everything except pork, rice and water for two weeks.  In the first 24 hours, he went from having 90% of his body covered, along with congestion to almost clear both from hives and congestion.  He now stays away from beef, dairy, citric acid and corn products from our months of experimentation to identify triggers.

When he is clear, he can eat these foods in controlled amounts.  Not sure if this will help anyone, but it is worth mentioning.

My wish for success in controlling this to each!  Kristen

[Robertta]

Hi,

i was just posting comment here, but there was wrong link.

I meant this link, which i found You Tube last week:

https://www.youtube.com/watch?v=6D5DCN6yU5s

Has anybody already ordered that book? I would like to read commnets about it. I think that with this horrible chronis autoimmune urticaria antihistamins or other meds doesnät really work. ANd i have tried to eat  really fresh and clean food, as natural as i can find here in Northern Europe.

Well - tell here if you have got help by clening your nutrition ??

Stay in touch :)

[Robertta]

Hi Debbie,
i'm about the same age than you. My Autoimmune urticaria started when i was about 30 years old.

I have symptoms about twice a year and it lasts 8-10 weeks each time. Itching is like hell, it really hearts. It makes my nights restless. Antihistamines dosn't work anymore.
And PREDNISOLON i wont eat NO MORE. It's horrible medicin.

I noticed this at youtube: https://www.youtube.com/watch?v=Pzz5edhtsUU

I haven't order the book yet, but i'm sure that we might do a lot with eating refreching food.
I try to eat lot fruits. And keeping my weight normal (or rather skinny, because then i'm feeling stronger)

I got my Autoimmune diagnos 14 years ago, before we all thought this is allergi for somthing. But it is just my own body who i'm allergic, like you said too :v :) :v

Lot of happy days and lot of smiles to you Debbie, and every other with this burning Urticaria - - let us support eachothers! :)

[lenrosen]

It is now almost 3 weeks since my wife's first Xolair injection. Her hive incidents have dramatically lessened. If she gets a hive it disappears in a few hours. Our immunologist has never used Xolair in the case of delayed-pressure hives and thought it was unlikely that the drug would work. So far, so good. Usually treatments with Xolair last about 3-4 weeks before hive symptoms reappear. Only symptom of concern is unusual tiredness. Could Xolair be contributing to this? My wife is seeing her family doctor to get that checked out.

[Cisa93]

I read about a woman in Europe that suffered from several swelling to the face and body. She was on different types of steriods and eventually, a physician specializing in autoimmune studies, claimed there was some rare genetic disorder that was causing this. However, there is a special blood test that is required in order to identify this. My best to everyone on here...I started off with these symptoms about 5 years ago. A couple of doctors feel that it's due to Dengue fever (military service related) long term exposure to DDT (still used by some 3rd World countries to spray during the rainy season. Any input is greatly appreciated.