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hyoid bone problems
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hyoid bone problems

History of my problem: For as long as I can remember, I have had a problem with my hyoid bone popping out and causing excrutiating pain. It is always the same - the right side of my neck. At about the age of 8 I talked to my pediatrician about it and he promptly told me it was not possible. That I was having anything "pop out" in my neck. He contended that there wasn't anything there that could pop out. So I just continued to push it back into place whenever it popped out. Back then, it was very easy to push back and only lasted a few seconds until I got it back. About 3 years ago, I noticed that this was happening more and more frequently (used to be about 2-3 times per year) Now it was happening about every month and was much harder to push back. Sometimes taking 20 or more minutes. During that time, it was extremely painful to swallow or talk. After I would finally get it pushed back into place, the pain would go away, but my whole neck would be sore up to my ear and through my jaw. It felt bruised, but no visible bruising on the outside. Over the next couple of years, this problem continued to get worse, happening weekly with some minor "slippage" on a daily basis.  Throughout my life, I have talked to various family practice doctors about this problem. They all contended that it must just be a "lump in my throad" like when you get emotional. Or maybe it's just excess head conjestion. Or maybe it's just a muscle spasm. Or maybe I'm just imagining it. Whatever the case, no one had ever heard of anything like it and no one ever took me seriously. So, I started researching on my own. I could not find anything that sounded like what I had. I posted questions to "Ask and Expert" all over the web. I did get some respones. all of which started with "wow, that is interesting. Never heard of anything like that before." One physician directed me to find a good ENT. So, I did. He took me seriously. He ran tests - CT scans, swallowing x-rays, blood work, etc. I saw a speech pathologist and everything. The swallowing x-rays showed that my hyoid bone did not more in unison. It appeared that the hyoid, which I'm told forms in the womb from 3 point of origin and then fuses into a solid bone before birth, had never fused into the solid bone at all. The ENT that ran the tests did not feel qualified to handle this case, so he referred me to a colleague who does a lot of throat cancer surgery and work around the hyoid bone. He reviewed the tests and theorized that if we removed the portion of the hyoid that was not firmly attached to the rest of the bone, it should solve the problem. I ran this thought process past the head of Otolaryngology at the Mayo Clinic, who had also never heard of such a problem, and he concurred that this theory did make sense. However, there were no guarantees due to the fact that no one had ever seen or heard of anything like it before. So, I went ahead with the surgery on 10/26/06. It seemed to go well. For 3 months, I had no problems. Then on 1/23/07, it popped again, just like it had always done. I immediately went back to the surgeon who is completely at a loss of what to do. His only recommendation is to do more surgery and remove more of the hyoid bone. However, the more they take out the greater the risk of swallowing issues post-surgery. I'm not sure I'm ready to sign up for that again just yet. Since the 1/23 incident, it has happened 3 more times with the last time being only 2 weeks from the previous episode. I'm worried that this is going to continue to get worse again. If it were only going to happen a couple of times a year, I would just deal with it like I have my whole life. But if it gets back to being almost every day, I can't imagine having to continue to deal with that for the rest of my life. As long as the bone is in place, I have no problems. No swallowing problems, no pain, nothing. I just never know when it's going to pop. I do a lot of public speaking and presentations. My greatest fear is that it will happen in front of an audience. The pain is so sudden and intense that I immediatley burst into tears. This is the main reason I have been pursuing this issues to begin with. Any suggestions? I saw in your archives that a person with the nick name of "creyn" described a similar condition back on 11/22/2004 on this web site. Did anyone ever help her? Any feedback would be greatly appreciated. Thanks!
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Hi shell,

I am having the same problem you have described in your post.  I am scheduled to go and see my ENT on Monday.  I've had mine "go out" on several occasions, always being able to move it back into place, but Monday evening I could not get it back into place, and the pain was unreal, I couldn't swallow, and was having a hard time swallowing.  My husband ran into the bathroom and got a hot wash cloth and placed it on my neck to try and relax the muscles, which seemed to help, but I can still feel that something is not right in there.  When I couldn't get it back in, it seemed to get worse, the more I paniced, and it felt like something was tilting backwards and trying to puncture a hole into my throat.  I haven't been able to get a full yawn since then, some due to it hurting, and some probably due to fear of it getting stuck again.  At one point, I had gone to a doctor for stomach problems, and he told me I had a borderline Peptic Ulcer, and put me on Prilosec, which really worked well, and helped control the acid reflux.  I was doing some research on this Hyoid Bone, and when you have problems with the acid reflux, it can cause a lot of problems in your throat, which I'm sure you are familar with, and the acid reflux can actually cause tumors in the throat, and they can become cancerous.  I try not to take a lot of the information to heart until I get the facts, but I can't help but notice many of the symptoms they list for this cancer and tumors I have or have had.  At one point, I could hardly swallow anything, except liquids, and everyone told me it was basically "in my head", and that nothing was really caught in my throat.  It feels like, right now, there is "something" on the left side of my throat, right around that Hyoid Bone.
I've been noticing over the last 4-6 mos., that the "popping-out" has gotten worse, and wants to pop out even when I swallow.  Honestly, it was kind of good to see your post, not that your are suffering with this because I DO know how painful and scary it can get, but to know that I'm not nuts, and that someone else out there knows what I'm talking about.  I would love to talk with you more about your experience, if you wouldn't mind, and maybe we can keep in touch and lend one another some support because I DO know what we are going through is NOT in our heads because it hurts too much.
My voice is hoarse today, and my throat hurts more today than the last couple of days.  I do notice it does get more aggrivated when I sing or talk a lot, but I can actually "feel" something in there, and it doesn't feel like it's a good thing.
Now, I do realize it could be many things, and I'm really hoping my ENT takes me seriously, and can figure out what's going on because I need to have a couple of really good yawns...lol...know what I mean?  I sympathize with you, and hope we can talk more about what we are going through.  Sorry I couldn't lend any "answers" to what you are experiecing, wish I could, but I do know what you are going through is very real, and very painful, and we just want someone to tell us how to fix it, right?  Have a good evening.
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I can't believe I found these posts.  I have been dealing with the same thing for the past 7 months.  It all started when I got a really bad cough in November...and I mean a REALLY BAD cough.  I coughed for 5 weeks (nothing really helped) and I felt like I dislocated something in my throat.  Every single time I turn my head to the left and then turn it back, I have to pop the upper portion of my throat back into place.  It feels like something inside is rubbing agains something and is causing me pain and other weird sensations on the left side of my throat, back of my mouth, and the left side of my tongue.  The only time I get relief from this is when I sleep.  Some days I don't think I can live like this.  I am on my third ENT doctor.  The first one really never followed up on anything and took forever between visits.  The second one said to me "I don't know what it is and I don't have any time to find out."  Do you believe that!!!  Coming from a doctor!!!  Anyway, I just got a new ENT and I hope that he can help.  When you tell them about it, they just look at you like you are making it up, like it is all in your head.  Well, I go back next week, and I am going to make my throat pop right in front of him.  If I get any information that may help, I will post it.  I have a feeling this is an extremely RARE condition, I wish none of us had to deal with this, but I am glad there is a place to post and give each other support and encouragement.
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I was so glad to get your response here. The only other person I've ever met that had the same problem is my brother. I've been told recently, that it may be genetic beause all these doctors claim to have never seen or heard of anything like it before, but both of us have had this problem our whole lives. The funny thing was that we each didn't know the other had it until about 5 years ago. My brother is 6 years younger than me and I guess we just never talked about it.

By now, I assume you've seen your ENT. How did that go? I'm very interested to hear what he/she said. I had to laugh when I read your response and even called my husband in to see, when you said your husband ran to the bathroom and got you a hot wash cloth. That was AMAZING because one of the first times that I couldn't get mine to go back, my husband did the very same thing! He has always told me that it was just a muscle spasm, but like you said, you can feel something in there. Mine feels sort of like the end of a chicken leg bone. You know how it's sort of round and hard.

I just can't tell you how excited I am to talk to you. Did you read in my original post that I did have surgery for this problem? The theory was that the hyoid bone never fused together into a solid bone and a cough or sneeze or yawn or laugh or any sudden pressure in my throad caused a part that was not attached to the rest of the bone to "pop" out. My doctor was just amazed at my x-rays showing that my hyoid did not move in unison. In fact, the radiologist that was doing the x-rays started saying, "oh my God!" "I've never seen anything like that before." "That is so strange." Then he came out into the room to talk to me. I gotta tell you, when I heard him start saying that stuff, it sort of scared me. He of course was completely thrilled to see something new and unusual.

I have a friend that works at the may clinic and she ran my symptoms past the head of Otolaryngology there. He had never seen anything like it before either, but thought the theory sounded possible and thought the surgery might just work. I thought it had worked when I didnt' have any symptoms for 3 months, but then it started happening again. It's been 3 weeks now since the last time. Every time I laugh, sneeze, cough or yawn, I do so with caution. I'm sure you completely understand that.

Anyway, please write back and let me know what your ENT said. I can't wait to hear. Take care!

Shell K
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I'm so sorry to hear that you've started having this problem too. Anyone that has never experienced it can not possibly understand how much it hurts! I've been grateful to have my brother to talk to about it. Just having someone understand helps. Keep us posted on your progress.

Shell K
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I will definitely keep you posted.  I am going back to my ENT this afternoon.  I will be let you know if I find out anything helpful!
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I went to the ENT and I when I turned my head to the left to show him how this bone pops out "EVERY SINGLE TIME I turn my head to the left", he said "do that again, and this time let me put it back in place", so I did and he pushed the bone back in place and then felt around in that area of my neck.  He said that it WAS my hyoid bone.  He hypothesized that I must have injured (hyperextended) the muscles that hold it in place (when I had my 5 week cough last November), like overstretching an elastic, so that now the muscles can't hold it in place anymore.  I asked him what could be done, because my hyoid bone moves CONSTANTLY and causes so much pain in my neck, mouth, and throat due to its rubbing on tendons an nerves in my neck whenever I move or swallow or talk.  Even sleeping is extremely difficult now.  He said that maybe they could suture it in place or something, but he said that it might cause swallowing difficulties.  But he said he wants to send me to Boston to another specialist for further evaluation.  I know that this info may not be too helpful right now, but at least this is the first doctor out of 4 to even BELIEVE me and to follow through with trying to find a way to help.  Keep me posted, I'll keep you posted.
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I just arrived here via Google. The back ends of my hyoid and the whole surrounding area, from rock-hard swollen lymph nodes through to the scars where my tonsils were removed at age six, have been sore forever. Not suddenly and dramatically like you describe, just a constant aching that varies as I move my head.

For me there is no "back in place". I can put my hand to my throat and grab my hyoid between thumb and forefinger at any time, and feel both back ends right under the skin. They are just about exactly as wide as the vertebrae behind them, and they seem to bump up and down along the muscles surrounding the spine as I swallow. Without pulling forward, I can twist the hyoid from side to side, causing one end or the other to protrude from the side of my neck far enough to get a fingertip behind the protruding end. Each end itself seems sore, but it doesn't appear to be attached to anything on the spine behind it, or restricted in movement. I can twist either end up or down by over an inch.

You seem to be saying that your hyoids have a specific normal position, and that any other position causes severe pain. I can't find any mention of any structures that would enforce such a position. At



they show the hyoid and all its connections. From each free back end "greater cornu" there are the hyoglossus muscles running up to the sides of the tongue, the constrictor pharyngis medius muscles that wrap around and meet at the back of the throat, and the thyrohyoid ligament running downward to the thyroid cartilage, but nothing that would anchor the cornu or any other part of the throat to a specific location. Most of this is shown in detail at



(The constrictor pharyngis medius has been removed; it would wrap around the right side of what is shown, from the wedge between the stylohyoideus and the great cornu.)

I've never asked anyone else about their hyoid...  Maybe mine is unusually flexible. But it looks to me like the whole throat is just hanging there along the front of the spine, suspended from the jaw and skull. Could you previous posters be unusual in having become accustomed to keeping your hyoid in some particular relationship to some other muscle or structure? What would it be? Can you describe the experience of having your hyoid "out" in more detail?

Loren
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Oops...  They stripped out my links to the anatomy illustrations! I don't see any help items about how to include links.

Maybe I can disguise them?

The first one was

education.yahoo.com reference gray subjects subject 45

You can add the http prefix, and the slashes in place of spaces, or Google that phrase and edit the first result to end with "45".

For the second one, Google

FIG. 1019– Extrinsic muscles of the tongue. Left side

and it should be the first hit.

Hope this works,

Loren
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Your situation sounds interesting. From all the research I've done and ENTs that I've seen, the hyoid bone is NOT connected to any other bone. It is the only floating bone in the body. The only thing the bone is attached to are the muscles and tendons that you mentined. That is why physicians find it so hard to believe that it "pops" out. Theoretically, there is nothing it can pop out from. I've been told that for a bone to dislocate, it must first be located, meaning attached to another bone.

GGCB's note above is interesting too in the theory of the muscles being stretched. I did have a physician once tell me that the right side of my neck muscles must be weaker than the left and that when the left side was flexed, they actually pushed the hyoid right through the other side. That made sense, but has never been confirmed by an ENT.

My hyoid bone is in fragments, according to some swallowing x-rays. It does not move in unison. The radiologist nor the ENT had ever seen anything like it before. That's why I had surgery to remove the fragment on the right side - to be exact, they removed the right lateral aspect of the bone. It seemed to work for 3 months. But then it all started happening again. Now the question is, now what? That's something no one seems to have the answer to.

It's amazing to me that no doctors have ever seen or heard anything about any of this, but apparently, I'm not really the only person in the world to ever have this problem.
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Ouch! I can't imagine having my hyoid in pieces.

My suspicion is that the hyoid is part of a complex feedback system that is involved with one's sense of "personal space", along with the obvious functions of breathing and swallowing. Or at least mine is...  

The pressure of the ends of the "greater cornu" against the muscles of my neck depends on how my head is turned, raised, or lowered. I think my subconscious looks at those sensations to help decide what the visual (and emotional) perspective in my view of the world around me should be.

Of course my jaw can modify those sensations, too, and I often find myself tensing my jaw or holding it in odd positions to adjust how my hyoid feels. Visual stress and tension in my neck muscles also feed into this intersection, and any of them can seemingly be exchanged for any other.

As a child I was subjected to supposedly therapeutic but painful to wear bifocal glasses, dental braces, the tonsillectomy, and parents who were extremely determined that I never appear arrogant. All those tensions focused around the hyoid area, and something had to give. Each new opportunity to modify the sensations, like your surgery, seemed to be a blessed release, but after a couple of months my feedback system adjusted to the change and the tension began building again.

If this all sounds too "new age", that's not because I wouldn't rather be scientific, it's just that I'm only beginning to unwind all the tensions and compensations that got me to my current state. And I'm not finding anyone else talking about the kinds of experiences I'm exploring.

Does any of this make any sense to you?

Loren
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Wooow!!! I have exactly the same problem! I have been searching for ages trying to find something to give me answers! The doctors dont believe me and say i have dental problems or acid reflux or its in my head, or its just my glands! But when your driving along, Yawn! And all of a sudden you feel like something is about to explode out of the side of your neck! Its scary! And god it hurts! I have nothing wrong with my thyroid either! When this happens to me...I am in so much pain....it feels like it is constricing over my wind pipe...i cant speak from the pain...i am just frozen!
The one thing i have noticed from reading these blogs are..we all seem to do jobs which use our voices. I am a singer....I work every weekend...fri,sat and sunday nights....
Thet told me i need to have speech therapy that im not using my voice properly....Its all rubbish! So, even in this age there are things the doctors do not know! But how i wish they did! This has only happened to me around 5 times in the last year. But it terrifies me. My doctor almost had me convinced its all in my mind! Now i know thats just what they say when they dont know....
Does anyone have any advice on what to do when this happens? It does seem to happen to me only when my voice or i am very tired.

Regards, Kayley (u.k)
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I've done some more exploring of my neck and of the anatomy book, and found an interesting feature. Pulling downward on the back (toward the spine) ends of the hyoid are the omohyoid muscles. They run downward and then behind the sternocleidomastoids (the muscles that contract into action between your skull and your sternum and clavicles when you lean your head backward or take an extremely deep breath).

In the middle of its run each omohyoid becomes a tendon for some variable distance, sheathed in fascia that attaches it to the clavicle and first rib. As it exits this corner and becomes a muscle again, it is running sideways in the triangle between the clavicle and the upper border of the scapula. It normally connects along the top edge of the scapula (shoulder blade), but apparently in some people it connects to the clavicle or other locations in that area.

If I put a finger just inside the acromion (that bone that sticks up on top of my shoulder), and roll it backward and down into the notch between the outer end of my clavicle and the top of my scapula, I can feel the end of the omohyoid. It is extremely sore - on the order of the pain other people are describing here. Of course I have the simple option of not pressing on it...  

Here is the interesting part that may apply to many of us:
(education.yahoo.com reference gray subjects subject 112#20)
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The Omohyoidei not only depress the hyoid bone, but carry it backward and to one or the other side. They are concerned especially in prolonged inspiratory efforts; for by rendering the lower part of the cervical fascia tense they lessen the inward suction of the soft parts, which would otherwise compress the great vessels and the apices of the lungs.
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When you yawn, or take a really deep breath, the omohyoids work to expand the lower airway, pulling sideways as well as downward against the hyoid. Since the other ends are attached not to some local structure but way out at the ends of your shoulder blades, your posture and arm and shoulder positions can easily lead to uneven tension on the hyoid and a sideways displacement.


I mentioned this thread to a friend who had in the past been a spousal abuse victim, subjected to violent throttling, and she was amazed to discover that there is no "proper" position for the hyoid. She occasionally finds hers displaced sideways, apparently hung up on scar tissue from past trauma, and had acquired the belief that it would be harmful to try to move it back to a more comfortable position. After I explained the anatomy to her, and she confirmed the actions of her own muscles, she was quite relieved to feel free to move her throat around to a comfortable position.

Loren
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I have a similar problem.  For about 5 years now, occasionally when I yawn or swallow and have my head turned, my throat gets stuck mid swallow or yawn.  By that I mean, the structure of my neck, just under the skin, literally sticks, and won't return to it's pre-yawn/swallow location.  It has been happening every couple of months.  It usually rights itself in a couple of seconds, but the sensation in the meantime is rather alarming.  I've asked my doctors about it, and they feel my neck, and tell me nothing is wrong.  

Well, this week, it stuck again.  And it didn't go back on it's own.  I had to push it back into place with my fingers.  Then this morning, it did it again.  And it took me nearly ten minutes to get it back into place.  I was trying really hard not to freak out.  After all, I can still breathe, but I just can't swallow.  Finally, I snapped it back into place.  But it frightened me.  So this afternoon I saw my doctor, and I now have a referral to an ENT.  I will call first thing tomorrow for an appointment.  Any suggestions?
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Oh my Lord!  Thank you for this message board!!!  I have been seeing an ENT for a few months now for "something lumpish" that is lodged/blocking the right side of my throat somewhere in the middle.  Sometimes when I yawn it feels like a piece of tissue/muscle is getting twisted into a not and gets "stuck" in the middle of the yawn, causing me to gag for a few seconds.  It can be painful but it doesn't last long.  THis started back in March when I get an chest cold/very bad cough for about 5 weeks.  The cough went away but the "deepened voice" and wierd lump feeling have stayed.  The ENT says that it is Acid Reflux and that the Rx I have is helping "heal" the redness in my vocal chords.  Meanwhile, it still feels like my voice is coming up along the right side of my throat, my voice is hoarse, I can no longer sign becuase my voice is breathing and breaks/cracks and then hurts.  I've never been able to feel any type of bone though.  Have any of you experienced this??  
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Yes, I experience this constantly.  You can read back up to my other posts, but since I got a bad cough this past November (really bad cough for 4-5 weeks), I can no longer raise my voice, or sing, or laugh, or cry.  ALL of those things cause my voice to crack and then excruciating pain in my larynx area follows and will not get better for a long while, often days!  The rest of the time I have a constant ache, which is probably my hyoid bone (which one of the ENTs told me is "getting caught" on another structure in my neck, because the muscles where overstreched by my 5 weeks of violent coughing) rubbing against nerves/tendons/ligament/muscles and causing this almost constant sore/ache.  I have decided to go to an ENT in Boston now, and I am scheduled to see him on July 27th.  Just a note for everyone.  YES...this is most likely something RARE, but....we all have this medical issue in one form or another...so some doctor out there must have seen this, we just haven't found the doctor yet, but with all of us looking, we WILL find that doctor.  In the meantime, we can support each other, and we can pass on anything that our doctors suggest.  Never give up all!
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Do any of you experience flulike symptoms with the pain?  Also, have any of you experienced bleeding of any kind into the thyroid or elsewhere, followed by hormonal problems with the thyroid.  I also use my voice as my means of income.  I am a verbatim court reporter.
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I haven't checked back in here in a while and am so surprised to see all of the comments adding up. I was particularly intrigued by Kayley's blog. My whole life doctors told me that what I was describing was not possible. It was all in my head. Then when I was persistent it was too much head conjestion or an emotional "lump" in my throat. Do these guys think we just sit around and make this stuff up? There is no way we could make this up. I saw my family doctor today for just a regular check up and he asked me how my neck was doing. I told him that I had started having the problem again 3 months after the surgery and that I was really down about it. I really thought for a while that I was "fixed." We went over the whole thing again from start to finish. What I experienced, what all the tests showed, what was done by the surgeon and where I am now. He just shook his head and said, "I've been in family practice for 25 years and I worked ER for many years before that and I have never seen anything like it before." It's the same old story. No doctor has ever seen it before and yet there are all of us having this problem and seeing doctors all over the place. I'm wondering what state you all are from? I'm in Indianapolis and none of the doctors around here know anything about it. I've spoken to the head of ENT at the Mayo Clinic in Minnesota and he's never heard of it. I got an "Ask the Expert" response once from a doctor at a hospital in Cincinnati and he's never heard of it either. I'm just wondering where the heck you have to go to find someone who does know about it? AND WHY can't someone figure it out? They can remove your heart for heaven's sake and replace it with a new one, artificial limbs are placed on people every day, but no one can figure out this tiny little fragile floating bone in our necks? It's crazy! My brother also has this same problem. Has all his life, just like me. That information lead one doctor to tell me it was probably some crazy genetic defect that only he and I had. I guess not! You've all got it or some variation of it anyway. Well, keep me posted on all your progress. Maybe someday one of us will get a real answer and then we can all report that to our individual doctors.  One other note regarding Kayley's blog, I DID go through speech therapy at one point. It didn't do any good. I did all those stupid swallowing exercises three times a day for months, but it just kept happening. The speech pathologist was just grasping at straws for a lack of knowing what else to do. She told me she didn't have any idea if it would help or not, but that it couldn't hurt. Oh well, Have a great evening!
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Dear Shell, you asked where people were from...I am from Massachusetts...I am going into Boston tomorrow...where supposedly the "best doctors in the world are".  Well, let's see if anyone there has ever seen what we have before.  Try to have a good one!
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Did anybody even read my post?  I have been sick for 3 years and it started with excruciating pain just to  the right side of my hyoid.  The point of pain was very tender and felt like a round hard lump.  I had flulike symptoms for about 1 week prior to the climax of pain.  Since about 2 weeks after that initial flareup I have a clicking in my hyoid when I swallow and the pain has switched to the other side.  I have been seeing an Endocrinologist since that time and am not secure in his diagnosis or his treatment.  I have had 4 neck surgeries:  2 cervical fusions, and 2 cervical foramanotomy's (one on each side).  About 1 month prior to the initial flare up I had started drinking C2 (The first time I've ever had any type of diet drink).  I am a voicewriter by profession, which means I repeat everything I hear into a recording device.  At the time of the initial flareup I was working about 3 days per week.  I now work full time.  
The reason I'm stating these facts is to see if there are any other common threads out there.
I run a fever EVERY DAY.  I'm very tired of feeling sick all the time.  If I'm not on the right forum, at least have the courtesy to say so.
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Oh, yeah, I forgot another symptom.  Recurrent nasal polyps, stys on my upper eyelids and bartholin's cyst.  Since this has all come on I've had at least 5 Bartholin's Cysts, and a nasal polyp that took forever to get rid of, and countless stys.
Thanks for any direction you can offer.
Laura
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Sorry I didn't answer your question in my last post. I've never had any flu like symptoms or any of the other stuff you mentioned. I've had my problem my whole life. As far as I know it wasn't "caused" by anything. The theory on mine is that the bone never fused into a solid bone before I was born. At least that's what the doctors think. They just don't know what to do about it. It's interesting that so many of us have similar issues, but none are exactly the same. The hyoid is a mysterious little bone. Anyway, sorry I don't have anything to add to what you're going through. My neck surgery was simply to remove a fragmented piece of the hyoid. I don't have anything else wrong with my neck or swallowing or thyroid or any other thing. Just the hyoid popping out of place and causing pain. I hope you're able to find a doctor that can help you. It sounds awful! Good luck. Shell K
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Thanks for the info GGCB! I was in Massachusetts last October for the first time. It is a beautiful state. I hope you find one of those miracle doctors in Boston! Let us know how that goes. Every little piece of information could help.
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Hello everyone..I'm 32 years old.... and OMG, I cannot believe there is other people out there with this "wierd" problem. I've been have all the same issues and sypmtoms for a few yrs now and its just gotten worse and more frequent to the point were I can't laugh too hard, yawn with out holding my neck in place, or sometime even turn my neck. In matter of fact it happend while I was in the car yesterday and I freaked out because It was stuck for a good 5-6 mins and I couldnt get it "unstuck" , the pain was excrutiating and I could barely speak...then after I got it unstuck by pushing it back into place..my neck was so sore, my throat is STILL sore, and it hurts when I turn my neck...I guess from what happend. It feels like I have a something boney in my throat that gets "twisted" is the best way to explain it, I thought maybe it was my pipe, or a muscle/ligament in my throat that just gets twisted backwards...( I dont know much about my anatomy to know what kinds of muscles ..ect that I have in my neck) I havent seen a docter yet, and i'm pretty much embarressed since I have so many "other" weird health issues like I have a rare heart condition... so this will put the icing on the cake if I have a rare throat condition..LOL! but also I would like to mention...that sometimes now this will sound crazy..but my lips will swell , like if I have collegen...they will get very big and swollen for about 2days..then they will get chap I guess from the swelling and peel...( and I already have full lips, so this is NOT a good thing) but I dont know if THAT is related to the whole throat thing? I thought maybe I was having an allergic reaction to something, but now it happens like 1 a week and I CANNOT figure what is causing my lips to swell..My friends and family ( and husband) thinks its funny but the same time scary that my lips just SWELL for no reason...anyways thought I'd mention that..( by the way I took pics of my lips just in case I need for proof or something..weird I know) Any info would help...and let me know if I have to start looking up swollen lips too! LOL..hopefully not! Maybe there is a connection????  
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Sorry I did not responde to your post earlier...My hyoid problem started with a REALLY BAD cough, not with the flu.  No swollen glands.  My pain radiates from the hyoid area and upper throat area and goes into the left side of my mouth, throat, and tongue...no pain radiates to the right side of any of those.  After reading your symptoms it sounds to me like you may have some sort of systemic virus that is affecting many parts of your body in different way, plus you mentioned you feel sick all of the time, I am wondering if you should consult a virologist to see if you have a really stubborn virus, which also may be causing glands in your throat to swell and cause your clicking.  If it turns out that you don't have a virus, then I would seek an ENT doctor for the throat pain and annoying clicking issue.  I wish you well.
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I went to my ENT appt. in Boston last Friday.  First I need to say he was a very smart ENT surgeon with a wonderful bedside manner, which is very important to me since I had 3 "winners" before this.  I told him how this started with a cough I had for 5 weeks last November, and he asked me if I went to see my doctor at the time for the cough, I told him "yes, but my doctor said it was a virus and gave me no treatment, and that I went back for a 2nd time when my cough did not improve after 10 days and she still said, "No treatment"", well he told me that my symptoms sounded like "pertussis" (whooping cough), so #1, this injury may have been prevented had I been diagnosed and treated properly in November.  But there is nothing I can do about that now.  (The good news is that you cannot get whooping cough again once you have it.)  He told me that I have a torn ligament from all of the coughing, and because of the torn ligament, my hyoid is not being held in place properly and is getting caught on either a tendon or some cartilage in my neck when I move my head, etc., and is also rubbing on neck structures and maybe nerves which is causing pain to radiate from my neck to my mouth and tongue region.  He went on to explain that injuries like this can take a long time to "scar up" (12-18 months) because the neck really never rests...we are always moving, talking, supporting our heads, etc.  He did not use the term heal, because the injury really isn't "healing" in the sense that it will get better and be the way it was before.  He said the best that I could hope for would be for the tissue to "scar up" so that pain can be reduced.  He also said that my hyoid will most likely always pop out unless I have surgery...which he did not recommend that I do at this time.  He wants me to give it another 6 months or so to continue to "scar up".  He said that when the injury scars up, I may get less and less pain, until it becomes a tolerable level, but my hyoid will most likely always pop out the side unless I have some sort of surgery.  If at the end of the healing process my pain does not improve, then he will talk about surgical options.  He also said that this injury/condition is very rare and that there is no surgical procedure in any of the text books to address this.  Anyway, he told me that he has seen this once before.  Someone from China flew in to see him since nobody in China could help him.  This person did end up needing surgery.  I really liked this ENT doctor/surgeon...especially since he said to me "I will give you any infomation I can give you with your options...but you are in the drivers seat to let me know how you want to handle this."  I asked him if "not fixing the hyoid bone problem would cause any problems in the future for me" and he said no, that I would just have to be able to tolerate any pain that comes from it, and if the pain does not get any better, then he would try to help me with a couple of different surgical options if I so choose to do so, and it was all up to me as to how far I want to do with this (since not fixing the hyoid bone popping out problem will not cause me any futher problems in the future, other than pain).  Each of you might have this problem for different reasons, so you would still need to have it checked out by someone who has seen this before.  I will continue to monitor this forum and keep you all updated on any changes (hopefully improvement).  But for now, I guess I am stuck with trying to find a way to tolerate my daily pain until...hopefully...the injury scars up enough to make it more tolerable.
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I just wanted to add one more this...more of a wish than anything...but, wouldn't it be great if all of us having this problem could meet somewhere, and go to one ENT doctor all at the same time?  This way, the doctor could examine all of us one at a time and maybe find the commonalities in our problems.  Maybe then, when they see so many people suffering with this, they will be able to help us AND put some procedures/treatments into place in medical books to help anyone else that may come along in the future with this same problem.  In a perfect world...
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This is so fascinating. These posts are giving me hope that I'm not crazy. I have had the same problem you all have described for about 2 years now. After seeing many doctors who had no idea what I could be experiencing, I was sent to a specialist. The second I saw the ENT specialist, I said "There is a click in my throat. There's a lump, like a second adam's apple. I can't swallow or yawn without this click. Sometimes it feels like I am getting strangled". Without any further description, the EMT put his finger right on the lump and told me I had arthritis of the hyoid bone. He gave me some anti-inflamaty drugs. While I was relieved that the EMT recognized my symptoms, I have occasional doubts that something more serious is going on. It really helps me to have you all reporting the same symptoms and concluding its the hyoid bone. I never had any trauma to the neck. My symptoms are episodic, where the lump in my throat gets larger and causes discomfort...and then seems to go away. I have noticed that my symptoms get worst in the heat and humidity of the summer.  It is alarming. The doc told me that there was pretty much nothing I could do other than to take aleve, I have no other course of action. Honestly, I think that I could deal with the discomfort if I were positively, absolutely sure that my diagnosis was correct. I worry that I have been misdiagnosed and that I need treatment. I am thinking of getting a second opinion.  
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Wow! You know, that makes great sense. As a kid, I was sick all the time with pneumonia. I had a lot of allergies which caused the pneumonia and coughing is what I did all the time. That could explain why I've had this problem my whole life. Like I said, I first talked to my doctor about it when I was about 8 years old and it had been happening for a long time at that point. If your ENT is correct and once you tear that ligament, you always have that problem, then maybe it really is something we can't do much about. He's also right about the tolerability. Since I've had it my whole life, you just learn to live with it. You learn what not to do, sort of what triggers it. But sometimes, it just pops out for no apparent reason. I DID have surgery, but not on ligaments. I actually had part of the hyoid bone removed. My x-rays showed that my hyoid was in sections. I wonder if during all that coughing as a child, when I tore a ligament did I also break the hyoid bone into pieces? Research shows that about the only way to break a hyoid is through strangulation or hanging, but hey they said the popping out wasing possible either. I wonder if you would share the name of the doctor you saw? I'd like to pass this information along to my ENT, maybe they could compare notes or something. Thanks for much for the news! Take care, Shell K
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I went to the ENT Clinic at Brigham and Women's Hospital in Boston.  I really liked Dr. Saxon.  I just wanted to mention, that even though the things he told me make sense, it is always important to keep your ears open for other ideas as to what this can be and how it should be treated, and to always follow up with your doctor if you get new or changing symptoms.  I actually have noticed that even though my pain has decreased a little, my throat has actually gotten a lot worse in the discomfort category in the past 2 weeks.  My hyoid is constantly (not an exageration) sticking out the side of my neck and I feel like it is totally dislocated.  I can move it back in, but as soon as I do that out it comes again, and now it is starting to happen on the other side of my neck.  I don't even want to swallow, or move or speak any more.  I just want to sleep.  That is the only time I have relief from it.  I barely get through the day at work, and forget about having any kind of fun!  I guess I must sound whiney now...sorry.  Some days I just get tired of acting strong.  Half of the time I get myself into the mind set that I can live with this if I have to....as for the other half of the time....well, you know.  I am very interested to hear what happens after the 2 doctors talk, so let me know.  I will also be checking this forum often so that I can keep up with what is happening with everyone.  Talk to you later.  Good luck Shell and all!
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I agree with you completely on the changing symptoms. I've had times when things were...different...with my symptons too. I'm going to print this info out and fax it to my doctor. We'll see if he actually contacts Dr.Saxon or not. Thanks again. I really hope you find some relief soon.
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Hello, my name is Jen I am a 27 year old identical twin.  My twin and I have had the same type of problem for many years.  My sister says she thinks this first happend to her when she was 12, while eating doritos.  She thought she had a dorito stuck in her throat but soon realized this was not the case.  We have always said that our throat pops out of place when this happens.  We have both noticed that this happens mostly when we are laying down and  we lift our head up and look sideways.  It also happens when standing up while turning our head in a somewhat awkward position.  I don't know if it puts strain on our neck causing the bone to pop out of place.  It feels very uncomfortable when this happens like a chip is caught in your throat.  In order for the bone to go back into place we have to move our throat around until it goes back.  Sometimes it could take a little while before it will pop back into place. We also have never heard of anyone else having this problem besides us.  My sister has told the ENT about what happens and he thought it could be a cartlige in her throat.  Like you have all said I don't think doctors are very knowledgeable about this problem.  I would like to see more research done on the topic because people think you are crazy since they have never heard of this before. Now I know that the problem may be caused by my hyoid bone.  Thanks for the input.
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I am 39 years old, I have had this problem for 6 or 7 years.  I have always explained it as  - it feels like my left tonsil has popped out of place.  Would anyone else explain it that way?
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Thank you all for this board.  Finally a group of people that have had the same thing happen.  Everyone DOES think I am crazy when it happens.  After years of struggling I found out that this same thing happens to my mother.  I will be back soon to see if anyone has had any luck with Dr.'s
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I am 24 years old and have had this problem for a few months now. I had my tonsils out in February (which the ENT said it was one of the worst cases that he's seen in a long time) and my necks pops on the left side when I turn my head to the left. It doesn't dislocate completely but I feel alot of pressure like it might but no pain. My hyoid bone is very lax and makes alot of "grinding" noises even when I turn my head to the right. I am a Physical Therapist and I realize it should move but I've had a couple of my co-workers (P.T. and a Speech Language Path.) take a look and they say it feels abnormal to them. I went back to see my ENT and she told me that I had a severe case of GERD and said that is what may be causing my problem due to swelling and inflammation which my cause the laryngeal cartliges to be rubbing against the back of the hyoid. She gave me script for Prevacid and told me to take that and if it still is happening to come back. I've been taking it for a couple of weeks and it still pops. I truly think they didn't have an answer for me. So I haven't decided if I will go back to just live with it.
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I have those same grinding noises in my hyoid area just like you which happens when I turn my head in either direction.  This is just one of my many hyoid symptoms and pains.  My hyoid bone pops out in the left side whenever I turn my head to the left, even slightly, and stays caught on something inside my neck when I turn my head back to the right.  I am in a constant state of discomfort and even pain.  Feels like my hyoid is scratching inside of my throat when I move my head or swallow or talk.  What I would like to ask you is, has the GERD medication helped the grind ing in your throat?  If it has, then I will try that because I do have mild Acid Reflux Disease.  Please post back letting me know if it helped with the grinding at all as I will try it also so that I can at least get rid of one of the many symptoms that causes me discomfort.  I am sorry to see so many people with this hyoid problem. Everyone keep posting and updating their medical status, changing symptoms, things they have tried, and any success in improving any of their symptoms!
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I feel that it has helped just a little with the "grinding" feeling, but the popping of the hyoid is still there. It wouldn't hurt to try the medication just to see if it works for you.
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Thank you for letting me know!  I think that I will try Zantac for a couple of weeks to see if it can help the grinding I have in my upper throat where the hyoid is.  I will post back and let you know if it helps me!
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Just wanted to say thanks for the post it was very informative. I have the same problem, sometimes it happens frequently, other times not at all. I usually experience varying levels of pain when it pops out but I would just simulate a yawn to get it back in. I told my girlfriend about it las night at a party and like most people she thought it was weird. I am sorry to know about the pain you suffer but it's kind of relieving to know they are people who can indentify with my problem. Thanks again for the post.
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I just turned 24 in July, for Labor Day Weekend I went to Pasadena for a wedding.  I just noticed this strange sensation in my throat last week.  As I was reading through some the posts what I found in common is that my hyoid bones moves way too easily, or atleast I think so, I feel like there is a pill stuck in the back of my throat constantly, I was diagnosed with Acid Reflux about a year ago while I was working as a missionary.  However I haven't had any big problems with heartburn or acid reflux since coming home almost a year ago.  The only thing that I think may have brought on these symptoms for me is that last week I drove to LA from SLC, the last hour and a half of the trip my friend and I started belting out the soundtrack to Hairspray.  I know it sounds strange, but I can't think of anything else.  It started as a sore throat, I lost my voice two days later and then it felt like I stuck something in my throat.  This may sounds so gross, but I reached down my throat trying to figure out if I had something growing or what, and yes I can feel the bone.  Until a couple minutes ago this has not hurt though, now I can feel kind of a shooting pain down the left side of my neck.  So I didn't read all of the posts because I have ADD and after the first 6 posts I just have the HARDEST time concentrating!  But from what I can see, it seems like seeing a doctor about this will be a waste of time?  If I am wrong please correct me, but I don't have insurance right now, or if it is in effect I don't think it is really that great coverage.  THANK YOU so much for this forum!  As I sit here I am feeling more pain though, which makes me wonder if it really is in my head, or if it is because I moved my hyoid around to see if it did what others complained of.  I'm so sorry to hear that all of you are in such pain!  That makes me sad for you.  I am grateful for the internet though!  WOW!  Thank you goodness for some answers!  
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I have been taking the Zantac for about 1 week now and I think I have had a little improvement with the upper throat "grinding" portion of my problem.  I will continue it for another week or two to see if it continues to improve.  I still have the hyoid popping out the left side of my throat still every time I turn my head.  I haven't given up on that though and I plan on seeing another doctor this month and next month.  (I have slowed down on seeing doctors recently because I just broke my foot and am out of work and non-weight-bearing for 6 weeks.  Three weeks left!)  Like I needed another problem to cause pain!  What really aggravates me is that my hyoid problem causes me more pain and discomfort than my broken foot!  How have you been doing?

To: Hotgal1
I think (and I think that everyone else will also agree) that you should still see a doctor at least once about your problem.  You may have a different problem that may be treatable, but you will not know unless you go to the doctor (preferably an ENT).  You may also get lucky and find the doctor that has the answer that you and the rest of us are looking for...good luck and post back!
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I have been reading your stories.  I have been having reoccuring Pharyngitis for many years now and the doctors always say there is nothing that will help and I just have wait it out.  I have recently been going to a Chrio as well and yesterday she said my Hyoid bone seem to be out of place and she popped it back in.  I felt good afterwards with swallowing but not even a day later it seems to be the same again - it hurts (but I am not in tears), pain killers are not doing to much either.  At least one a month I feel like my  I have  a sore, raw throat and hard to swallow, voice sounds husky/scratchy. Glands are swollen and tender, sore neck, headache, earache some time as well. My head feels stuffy and heavy. Does this sound like what you go through as well?  I would be interested to know as this has been on going for a few years and it drives me crazy.  I need answers and help!!  It would be great to hear from you all.
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well funny thing, a few days after I made that post the bone went back, I guess because I kept moving it just playing with it.  It came out the other day but went back in the same day.  So until I have more problems.. I will just assume it was a one time thing.  thanks for all that information!
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After just having an episode a second ago, I typed in "twisting throat tendons" on Google and was directed to this page! I read shell k's entry and was fascinated to read that I have similar symptoms. Mine occurs to the left, center of my throat, just below and to the back of the jawbone. I sing in a choir and sometimes when I am practicing and yawn at the same time - it is like my throat tendons twist. Or if I swallow with my head tilted a certain way it will occur. It will hurt to position my head erect. I have to turn my head to a leftward bow and try to massage it out with my fingertips and move my head gently, and I mean gently because too much movement of the head really hurts, and it can un-twist without trouble but sometimes I have trouble. I never know when it will happen. Then last Wednesday during rehearsal, I had a slight episode and quickly massaged the area before it really cramped. I noticed a crunching feeling in the area. Massaging the area now, I don't. It is very strange and hurts. And after an episode the area feels like a bruise too - sensitive.  I am concerned that it will get worse. I am not a proponent of pills or surgery. I asked a doctor about it many years ago and he told me there is nothing there to cause my throat to get stuck - he said just tendons and had no recommendations.  
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What a relief to find this page ~ after two years of suffering random throat spasms.  The pain you all describe is my pain!  It comes on suddenly, brings me to tears, and happens more and more every day.  I'm finally being scheduled for an MRI to be followed up by a visit to a neurologist.  I'll gladly keep you all posted with my progress (or lack thereof!).  By the way, my pain has always felt like it was at the very base of my throat, left side, and I've never had flu symptoms accompany any attacks.  The ENT exam was clear, but my doctor believes my pain is real, and wants to resolve it.
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OMG...THANK GOD FOR THIS PAGE...I NOW KNOW I'M NOT NUTS...FOR THE PAST YEAR OR SO...I CAN'T EVEN LIKE TURN MY HEAD AND YAWN OR SWALLOW BECAUSE I GET LIKE THIS CLICK IN MY NECK WHICH LEADS TO THE WORST PAIN EVER....I CAN'T SWALLOW I CAN'T MOVE MY NECK AND I HAVE TO LET IT POP BACK IN BY ITSELF....I EVEN ASKED ONE OF THE RADIOLOGISTS AT MY JOB IF THAT'S EVEN POSSIBLE...UR HYOID BONE POPPING OUT OF PLACE AND HE LOOKED AT ME LIKE I WAS CRAZY...I'VE BEEN MEANING TO GET SOFT TISSUE NECK XRAYS BUT WHO KNOWS IF THEY WILL SHOW ANYTHING...SHOULD I GO SEE AN EAR NOSE THROAT DOCTOR? WOULD I BE WASTING MY TIME?
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Definitely see an ENT.  It is not a waste of time.  I have seen 5 doctors so far and each time I see one, even though they can't help me so far, I have learned a little more information about hyoids and throats each time.  I am still going to go to another one after the holidays as my problem still hasn't changed.  Good luck and please post back with how you did and any information you think may help the rest of us.
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This is the first time I have ever seen this page. I have suffered with the exact same issue since I was young. I have never forced mine back in place due to the incredible pain. I did have a Dr. perform this once though his recommendation was to wait and let it go back on its own rather than force it. I also went to an acupuncturist and that seemed to work best. I would still like to know if there is anything that can be done to prevent this all together. I have had so many Dr.'s say they have no idea what it is or that it's in my head.,, no it's in my throat.
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I just did this last night and I am waiting to see if and when it will go back. I have been alternating cold/heat and taking advil to help with the swelling.
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thanks for sharing so much over these months.

wouldn't it be great if Dr. Saxon of the ENT Clinic at Brigham and Women's Hospital in Boston could contribute here?

GGCB, it'd be great if you could ask next time you see 'em

i searched on "hyoid dislocation" and "hyoid fracture" but the discussion on this page has the most examples compared to the literature.
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Does anyone know if this Hyoid clicking  can be a result of Anxiety? The tightening of the throat muscles is always a symptom with many Anxiety sufferers and therefore, I just wondered if this 'tightening' would affect the Hyoid bone. I've had my 'clicking' for about 6 weeks now and been to a couple of doctors only to be told there was nothing to worry about. I'ts not painfull just so annoying. I've read that also that Acid Reflux can be a cause, something again which is a symptom of Anxiety.
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I haven't been back to this site for a few months now. I'm just amazed at how many of us have the same or at least similar problems. My surgery was over a year ago now and I still have the same problem. I've been keeping a diary of sort of when it happens, what I'm doing, how long it takes for it to go back, etc. It seems to go in spells. It happens several times in a short period of time and then no problems for 2 or 3 months. It's the same as it has always been as far as what I'm doing when it happens. Mostly when I laugh hard, yawn, stretch while turning my head at the same time. But nowadays it also seems to happen for absolutely no reason. I can just be sitting at my desk and I all of a sudden feel an aching pain on the right side of my neck and then "pop" there it goes and the pain is excrutiating. I think I've just given up on any real solutions. Dr. Choi confirmed above that there just isn't any solid documentation available on what causes this or what to do about it. I guess the best to hope for is that if enough of us complain about it to our doctors and make these types of forums, maybe some doctor somewhere will really concentrate on figuring it out. I gotta tell you, it's pretty deflating to just keep being told, "I dont know" "I've never heard of anything like it before." If we as patients can find this many people who share the same symptoms, why can't a doctor find another doctor who has ever dealt with this problem. We've all seen doctors. Some of us have seen LOTS of doctors. My doctor doesn't seem interested in researching it. He doesnt' have the answer, so just move on to something he already knows how to fix. That's what is the most frustrating.
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you said you'd see someone after the holidays...  any luck?
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In mid october I lifted a heavy suitcase above my head. Within days my hearing felt clogged, and i've barely had relief from it since. I started to have headaches at the base of my head, which I freaked out about and was told was a tension headache, one day I was sitting in my friends car and i had a sore throat ( in the front ) and I felt something pop back into place. Shortly after that I went back to the ER and was treated for muscle spasms of the neck, I told the doctor about something popping back into place in my throat but he never addressed it. Apparently my neck x-ray came up fine. I thought it went away but It's happened three more times since then. The pain isn't unbearable, mild with some swallowing problems. The center of my throat gets sore and sometimes I get short of breath and cough. I did some poking around on the internet and found this little snippet of info:

" HYOID BONE SYNDROME:
Only bone in body that does not articulate with any other bone. cause is trauma.

Symptoms: chronic constant pain in the lateral side of the throat that radiates to the ear, throat, temple, cheek and TMJ. Pain in the lower molar teeth. upper chest pain. Dizziness or fainting when turning the head towards the injured side. Pain when swallowing. Chronic sore throat, difficult or tightens when swallowing Treatment is surgery. "

Also I was wondering if it was possible for it to break off and travel somewhere. Because that would be scary.
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doesn't have anything to break off of.

nope.  wouldn't
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Hello, I can´t believe I found this page!!! It happens to me too,the last time it happened I eneded  up in the hospital for 6 hours!!and they had no idea of what I had, I said I felt something dislocated but they have never heard of it before...The pain is terrible, i cant swallow.It happens when i turn my neck and talk or swallow. I have spondilitis and Hipermoblity sindrome (syndrome),does anyone else is hipermobile?? I think that might be causing it, thank youu kisses
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Count me in as the latest person to discover this page.   I've had this problem for years with no explanation.    It started whenever I yawned really big, so I learned to not yawn big.   Both my doctor and dentist could not explain this.   Sometimes I find that if I massage my jaw it helps to relax the spasm.  Sometimes I use a hot wash cloth.   I've not found one spot, or bone, that when manipulated relieves the pain but after reading these posts I will try some of the techniques mentioned.   Usually,  if I just stop trying to swallow, and just relax for a few minutes it goes away.   Pretty scary though.    As I get older it seems to be getting worse and happens for no reason at all just lying in bed.  Sure am glad to find some explanations!!   Thank you!
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hello everybody. Went to doctors AGAIN last week with reoccuring swollen 'gland' left side of neck, which happens suddenly and brings with it headache, tingles in cheek, ear pain and raised or lower temperature.  In other words i feel generally awful.  Never heard of this bone, until doctor pressed it and said there was tenderness on the hyoid bone.  I feel uncomfortable in back of throat and swallowing can be uncomforable but nothing more and  nothing has ever 'popped out'. I ended up with anti-depressants and time off work due to stress (thought work stresses were preventing me from feeling better).  Any advice would be gratefully received. Oh, and I also have an old neck injury and get relief by 'cracking' my neck.  Do you think that may have caused something?
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I am 32 years old and last June ,I think it was I started having a sudden
"stab" like sensation in the left side of my throat.  It felt as though something was pushing in from the outer left into the middle of my throat.  It would really startle me and even cause me to cough.  It lasted only a second and really didn't cause me pain, just a strange sensation-
something that should not be there.  It does seem to be positional I guess--I am a nurse and I interview pt's preop so I do alot of talking at work and looking back and forth from patients to my computer and that is mostly where I notice it.  Also if I smile and speak at the same time it will happen.  I've been to an ENT and he looked in my throat with a camera and saw nothing except probable reflux. On his suggestion I took Prilosec for a while but it kept happening.  I asked to be referred to my gastroenterologist who did an EGD and dilated my esophagus and put me on Nexium.  I kept having the sensation though, did an MRI-I have a bulging cervical disc though this is probably not related.  I have been taking Nexium now since December and I am having this problem way less often.  In the meantime I went to see a
neurologist-because no one could explain the problem.  He actually did
mention the hyoid bone and said the problem was not neurological--what
is really amazing is that he called me this evening at home because he found this site and thought I would be interested.  He was researching also, I guess because this is just so strange and inexplainable. He suggested if this keeps bothering me to go back to the ENT, but for now I feel like the Nexium has helped me and frankly I'm sick of worrying about it and not getting any answers.  I also never really related this, but after reading all the posts I too have had the problem with the left side of my throat/neck getting "stuck" like in mid swallow or yawn and being very painful briefly-almost like a muscle spasm and this I can remember happening to me from way back.  Anyway, it is good to hear that I am not making this up and I am not a hyperchondriac-that I am not the only one with this weird **** happening to me.  Like I said before, for me this seems to be related to GERD and I'm thinking the Nexium has helped. I really appreciate the neurologist calling me at home on a Saturday night to tell me about this site. I hope you all find something that helps you too.
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Sorry I haven't posted back in a while.  I was unable to get to another doctor yet as I switched jobs and my new insurance does not start until April 1, but I plan on going back again then.  My situation has not improved at all,  Still whenever I turn my head, even slightly to the left, and then loot straight again, my hyoid bone will stick out of the left side of my neck.  A person cannot live without moving their head...I need to work, I need to drive, etc.  I am now 100% convinced that the reason this is happening is because it is getting caught on something inside my neck (possibley my cervial spine?).  If I do not push it back in (while moving the position of my head in different positions so it will slide more easily back into a good position) then my throat thumps/clicks when I swallow, and it also will cause numbness, tingling, and soreness in different areas of my neck, mouth, lips nose, and face (which is telling me that when the bone is caught to the left, it is irritating nerves (hopefully not damaging them!).  Not to mention the extremely uncomfortable feeling 24/7 that my throat is dislocated.  I am still unable to sleep in any other position except on my back (I have never been a back sleeper and my quality of sleep is almost non-existent) with pillows propped on both sides of my head so my head does not move when I sleep and cause problems for when I wake up in the morning.  I am pretty much at the end of what I can tolerate, I do not enjoy doing anything anymore (since everythings requires me to move my head).  Even sitting and watching TV is something I can tolerate for only short periods of time.  I hate to say this, but if my life is going to be like this, then I don't want to be here anymore.  But I will try a little bit longer to find someone to help me.  I have really yet to find someone who would go any further than looking down my throat.  How about some x-rays with the bone sticking out the side?  So far my doctors want to do a conventional x-ray with your head in perfect position...what will that show???  How about taking an x-ray of my neck after I turned my head so that they will see what position the hyoid is in when it is caught...maybe they will see what it is caught on?  I do want to mention one more thing though,  When I stand, my hyoid becomes a little more comfortable (even though the same symptoms are present).  When I sit down, my hyoid bothers me more (thus I wonder if this problem has some relationship with my cervical spine...hyoid getting caught on a bulging disc?...Is that possible?).  Sorry this post is so long, but it has been a while and I wanted to let everyone know the status.  I truly hope that there is nobody else out there as bad as this (if there is, then I am sorry for you), as this has totally changed my life.  The quality of my life is gone, I can no longer do most of the things I used to do and the little left that I do, I no longer enjoy.  I don't look forward to tomorrow, I dread it.
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I have the very similar problems!
I thought I was the only one to suffer from that condition!
But I don't speak english: I'm Italian..

Bye
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YES! I AM NOT CRAZY!  LOL But seriously I have had this problem since the 8th grade and I'm now 52 years old.  Alot of you seem to have this problem are public speakers, singers, and others who use their voice alot.  This isn't my case.  I do have alot of back problems, but the only one that was present at the time this problem (I don't know what to call it, cause my doctors sure don't) presented itself was I was born with mild scoliosis.  Sometimes I do hear an audible click, and sometimes just sense it........and then if I swallow...you all know that's a bad idea, it confirms it.  It feels like a knife slicing down the left side of my throat.  GGCB I am truly sorry for your pain and I can only hope doctors begin taking us seriously.  I'm lucky in that I have always gotten it to "pop" back into place.  Somemtimes it can take a while (during which I am trying not to panic).  The only thing that I have found to work for me is to put my head up and down and all the while wiggling my throat with my hand.  It seems that when it pops out (for lack of a better word)  I've looked down and then sideways.  This hapens several times a week and I've just lived with it......doctors just seem to think it's all in my head.  I got the idea of it being a problem with my hyoid bone by watching CSI.  lol  I'm sad, but at least I'm sane to know that there are others out there with this condition.  Thank you for this post.  I'll visit soon.
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Not sure if I have a problem with the Hyoid bone, but 4 weeks ago my throat started clicking everytime I swallowed my saliva, I thought it would go away in a day or two, but it never did. I went to my family doctor a couple weeks after, and he reffered me to an ENT to get checked up, I have an appointment on April 24th, hopefully it'll be gone by then.
Anyhow, its still there and is really annoying, something clicks everytime I swallow my saliva and sometime while swallowing food and drinks. If I relax my throat I get this pumping like pain around my adam's apple. I tried some neck exercise, which helped a little.
Another thought, I'm planning to see a chiropractic to have my spinal cord aligned, since I've heard mis-alignment is the root cause of a lot of bone related problems. Anyone ever tried it?
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I am sorry to hear that you started having the click when you swallow.  I know how annoying it is also as I have had my click for 16 months now.  I can say that, as for the clicking part of my problem, some days it does not click when I swallow at all, so at least I get a bit of relief from that part of my problem.  Hopefully yours will go away.  Let us know what your ENT says about your throat.  Regarding your comment about a chiropractor, I was thinking about that too,  I sometimes think that the reason I have my problem is partly because something might be misaligned in my neck (cervical spine).  If you get any help from your chiropractor, please post back and let us know that also.  Good luck on the 24th.  Hope to hear from you soon.
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Hello,

I just found this website. I was told I have Hyoid Syndrome and have been to the ENT and family doc several times. I too have described a lot of what everyone has posted on here. I truly thought maybe I had a Thyroid problem but the ENT says no just Hyoid Syndrome. I have had CT's, Ultrasounds, and a scope ran down by nose/throat twice and still hear the same thing. I do go for a steriod/cortizone shot in my neck on Wednesday, I will post the results if helpful. Thanks for all the insight here.
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I just wanted to let everyone now that I spoke to someone who encouraged me to try a doctor of osteopathic medicine.  These are medical doctors who take an additional 500 extra hours of study of human anatomy than a regular M.D..  I have been told that these doctors know the body like no other doctor.

From the wikipedia:  "Today, the training of osteopathic physicians is virtually identical to that of M.D. physicians. Osteopathic physicians use all conventional methods of diagnosis and treatment but are trained to place additional emphasis on the achievement of normal body mechanics as central to maintaining good health.  D.O. physicians receive training in Osteopathic Manipulative Medicine (OMM), a form of manual therapy shown to be of some benefit for patients with certain musculo-skeletal disorders. However, this form of therapy is used by a minority of osteopathic physicians in actual practice."

I made an appointment with one that uses OMM.  You would need to find one that uses OMM in your area too.  I know that surgery is not the answer for me or for any of us.  It can only cause more problems since it is experimental.  My appointment is in May.  If anyone is contemplating having going to another ENT or having surgery, please consider going to a D.O. first to see if they can help you.  I am going to a highly recommended doctor in Maine, about 2 1/2 hours north of here.  Once I have my appointment I will let you all know how it went.  Wish me luck!
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http://dysphagia.com/mlist/2002-January/msg00146.html

Article maybe helpful?
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Dear all:
       I am a tmj specialist.Neither did I see a patient's presentation as you described in the past 20+ years practice. Although hyoid bone has no articulation with other bone, it has indirect connection to other bones through myofascial tendinous structures. The bones associated with hyoid bone are mandible,temple, sternum, scapula, as well as thyroid cartilage. The function of hyoid is associated with mastication, deglutition, respiration, and phonation. The hyoid bone can not pop out without the forces generated by muscular contraction.There must be " muscle imbalance" involved in the pathogenesis of your hyoid hypermobility.However, the root cause of muscle imbalance of hyoid musculatures would be difficult to identify. Occlusal therapy for temporomandibular disorder generally can relieve the muscle tension of masticatory , cranial, posterior cervical, upper shoulder, as well as sternocleidomastoid muscles.I do'nt know if the therapy is effective for supra and infra hyoid muscles.There is a book titled" myofascial pain and dysfunction,the trigger point manual,volume1.upper half body"in which chapter12/digastric muscle and other anterior neck muscles may be worth your reading.The book was published lippincott,williams& williams.In conclusion, I personally think that soft tissue manipulative therapist, such as D.O. chiropractor, myofascial trigger point therapist, and tmj specialist may provide relief of your problems.
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I had my appointment with the ENT on 4/24, and the doctor used a scope to go thru my nose and checkout the throat. Everything looked good, he said that I'm having this problem due to tensed throat muscles. The cartilages in the throat are very close, and I probably had a muscle spasm or something that caused this a couple of months ago. He said he had seen many people with this problem, and that it would go away by itself, no medicines needed. I'm still a little worried though, does anyone know if there are any exercises I can do to relax these muscles, and how long it would take for this to go?
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Thank you for your post.  As I stated in my post, I do not think that surgery is the answer for this issue based on the 5 ENT's I have seen.  I am glad that you feel that seeing a D.O. may be helpful.  Myself and many of the people in this forum have such little hope to get this issue fixed, so it is finally good to see another specialist agree that OMM might help.  I am sure that myself and others in this forum will view your recommended reading.
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Hi everyone, I just finished reading all of the posts! I just can't believe so many are suffering this!! I am so sorry for all of you. I just got back from an appointment with an ENT and asked him if he could tell me what this painful hard lump in my neck was. I have been thinking it is a swollen gland,,my regular doctor said no swollen glands. Anyway the ENT started pressing on it  and boy did it hurt!! Then he said it is my Hyoid bone and that it is much larger on the left side than the right--and he told me not to worry about it. So I came home and typed in hyoid bone in google and found all of you!! Unbelievable...he didn't seem concerned at all that it is painful or anything. Well anyway as I was reading all of your posts --I kept on thinking about a chiropractor. I am glad that it was finally suggested . I think everyone here would do well to at least go and see a chiropractor..they can do amazing adjustments and alignments and who knows maybe you will get some relief. It's funny because I was just thinking this morning that I feel like alot of the pain I am having might be coming from the way I have been sleeping with my neck. I have terrible sinus infections and polyps--which I will have surgery on soon,,,but because of them I sleep on like 3 pillows,,,and since then I have had quite alot of back and neck pain and then this hyoid bone thing started..and the pain and weird sensations travel to the back left side of my tongue, into my ear and back of my throat..really strange painful sensations...so after I have the polyps removed and my sinuses cleaned out..if the problem persists I am going to go and see a chiropractor. Well I hope everyone here gets some relief !! I will check back soon to see if anyone has any updates.
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Thank you for your input here. I had the surgery because my throat x-rays showed that my hyoid bone was not in one solid piece. What I had done was removal of a piece of the bone that was not attached to the rest of the bone. The theory was that if the moving piece was removed, then it couldn't pop through muscles/tendons or whatever it is that is attached to the hyoid bone. Unfortunately, removing that piece didn't take care of my problem. I have seen a speech pathologist who has prescribed throat and neck exercises, but they haven't helped either. I may look in to seeing the D.O. as suggested by GGCB. Actually, I'm thinking I'll probably just continue to deal with the problem as I have for the past 40+ years. As you noted, you've never seen anything like it, every other doctor I've ever seen, talked to or been associated with in any way has the same problem...they've never seen it either. Some have been excited about it and the possibility of figuring out something that no one has ever seen before, but none have come up with any real solultions. Maybe a D.O. will be the answer, but I'm not getting my hopes up...again.
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It appears that poping out of your hypermobile hyoid bone is associated with movements of head turning, tmj, and tongue. I think occlusal therapy for temporomandibular disorder may be worth a try.
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My D.O. appointment is next Monday.  I will let you know how it goes.  The doctor that referred me seemed extremely optimistic that this doctor will be able to help me...I, like you, am very guarded as I do not want my hopes to be shattered again, but I also need this last bit of hope as I ran out of doctors in Boston.  I actually contacted Mass Eye and Ear, they are supposed to have one of the best ENT departments in the country, but they ended up not even wanting to see me and instead referred me to Brigham and Women's Hospital, where I already went with no success.  It seems that nobody wants to deal with this and this D.O. I am going to see in Maine (2 1/2 hour drive each way) is pretty much my final hope as far as I am concerned.  I have already decided that, if this doctor is unable to help me, I am going to give up.  Living with this problem, since it has changed my daily quality of life (I have given up doing everything I enjoy...including reading) is really not a good option for me, but it seems that it may be my only option.  I won't however give up quite yet...let's see what happens on Monday.  I hope that he is able to help, if not fix the problem, at least make it better...not just for me, but for you and anyone else with this problem.  Keep an eye out for the results of my visit!
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has anyone found out what the name of this disorder is i've have this for the past 6 yrs I'm only 23 it all started when i was eating food in a awkward position (sidewayz on the couch..dont ask) i remember swallowing then excrusiating pain as if my hyoid when down and never came back up i have to wiggle it back in place (it snaps back in) ...first it only happened twice to three times a year then it started being more ofter i find it happends most when i burp/belch with my mouth close with my chin to my chest or yawn to extensively(over stretch)it fells like the hyoid I'm not shure if this is correct or adams apple goes down and wont come back up as if caught on something the only problem is its happing more and more and i feel as though ive grinded down the nitch that it fits in (so to speak)so it takes longer to get back in place its extreamly painful to swallow and brings instant tears to my eyes and i cant speak or move of fear of stretching this muscle now it takes like 10 min to get it back in place and when i tell people they look and me like im crazy it also is only on the left side never the right any ideas
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For those who report anxiety issues.

Hello, I do not suffer this hyoid condition but I took note of those who
report anxiety with the condition.

It sounds as if most sufferers have neck tension issues.

I studied something called the Alexander Technique, it is something you
learn with a teacher.

I am not sure I could even begin to offer a good description here but some
of the aspects that
may be of interest are as follows.

The neck is mis-used and overtense in many people.
The way we mis-use or our necks is deeply connected with fear - try google
on "startle reflex" we are often
not in slightest bit aware of how badly we are "using" ourselves, we tense
our necks in just about every activity
we do even though it is not necessary.

The Alexander Technique is about a lot more than neck tension, I cant define
it for you easily I can only pick
certain aspects that I think may interest you. I can tell you that if you
visit a teacher you may feel as I did,
a wonderful oiled, smooth freedom in every joint in your body. If you suffer
fear you may find considerable peace
and calm. Its impossible to make promises, each person experiences something
different and it would be incredibly
irresponsible of me if I made any claims at all.

In general Alexander Teachers do not achieve "cures" for specific problems
nor do the claim to do so. However
they can have a remarkable effect by showing a student quite how much damage
they do to themselves completely
unintentionally by the way they mis-use themselves. If something is
structurally wrong with your hyoid bone
then an Alexander Teacher is unlikely to fix the problem, however they may
have some surprising effect on general
neck tension and anxities.

I would advise anyone who finds this interesting just to do a little
research of their own on the internet.
You could start by searching for "Robert Rickover" and go and visit his
website which is one of the largest
depositories of Alexander Technique related matireal on the web. Please dont
take my word, do your own research
and come to your own conclusions, all I would like to do is suggest a
possibility to you.

I am not an Alexander Teacher myself, the advice is offered without any
vested interest.

Best wishes Jon.
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Please Do NOT give up Hope. I am just a graduate student trying to find my way through life and I stumbled upon you folks. After reading about all your struggles and pain, I realize that there is much more to the human body that we just cant quite figure out, no matter how much time we spend studying it. Don't let the body overcome the soul. I'll be praying for a miracle.
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I am sorry that you have to deal with this problem too.  I wish that we knew a name for this problem. I know that it really doesn't help with the problem, but just know that you are not alone with it, and you are not crazy...it is a real problem.  I know (as do many of us in this forum) how painful, and frightening it is when the hyoid pops out.  Mine pops out the side every time I turn my head to the left (which equals hundreds of times per day that I have to push it back in).  Please keep checking in at this forum to see if anyone has some advice.  I don't have much faith in ENT's (seen 5), but if you haven't gone to one yet, you should at least go once so you can get a baseline CT Scan, and MRI.  Some people have suggested trying a chiropractor, a speech pathologist, a physical therapist, neck exercises, etc.  I am trying a D.O. (Doctor of Osteopathy).  If you go to an ENT it may be a good idea to print out these posts to show that others out there have the same thing.  Please post back to let us all know how you are doing and post any time you feel like you need a little emotional support.  
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Thank you...at this rate we are going to need a miracle.
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There is no telling how long the click will last.  I have had my click for 19 months now, some people's may have gone away, and some people have had it for years, so there is no way to tell.  I hope that yours goes away soon like your doctor says.  Let us know!
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I too, have had the exact same problem as you all for the last two years, I am only 21 and decided something needed to be done after having it pop out twice in the past weeks. Just today I visited my local Doctor of Osteopathy here in Bastrop, TX and he did some reseach and found this site and he theororizes it could be a fragmented hyoid aswell. I am very happy he has extensive knowledge and didn't give me the same conclusion of not knowing as you all have experienced. I am going next week to have a CT scan and meet with a ENT to discuss a solution. My D.O. also did warn me that this condition is rare and there is not much knowledge out there about it and to be cautous of doctors suggestions. Similar to what others have suggested he did say it could be related to tension in the neck caused from stress. This makes perfect sense as this has happened mostly under times of serious stress (finals week). Please keep posting as you find more information about the problem as well as any helpful doctors. Shell K and the others: I will keep all of you in my prayers for a soloution to this problem.
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Did your D.O. suggest the he/she do some manipulation of the hyoid and muscles attached to the hyoid?  Did your D.O. say that if all your tests were negative for a fracture that he/she would try to help you in that way?  Please let me know more of what your D.O. said, I am very interested since I have just started going to a D.O. also.  Thank you!
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Hi. Like others here, I cannot believe so many people have this. For me, it first started as a feeling of a piece of popcorn stuck in my throat. From there it progressed to a lump feeling in my throat. Scared it was a tumor or something, I saw an ENT. Did a barium swallow. Everything good except for my thyroid muscle wasn't working in tandem with everything else while swallowing. I was referred to a gastroenterologist. Why, I don't know. i thought the thyroid was an ENT thing.

Anyway, I have since "graduated" to this clicking thing on my right side. Basically It feels like a cyst or whatever is pressing on the right side of my throat (Right above adams apple, near thyroid), and whenever I swallow I hear this clicking and rubbing. Not to mention that when I swallow solid foods, it hurts because the food rubs against my throat which is getting protruded from the outside from this lump. I can actually feel this click with my fingers on my neck when swallowing. Even worse when I turn my head to the left.

Hey GGCB, how is it going with that new doctor in Maine? Don't fret from your past doctors. It's amazing that how "smart" they are, yet they don't do the most common sense things like take an Xray while it is popped out. Or they'll order 5 tests before doing the test that should have been ordered first. I have time and time again seen this in most doctors. I look at this way. If a patient has the means to pay, and the test can either find something or rule something out, why not try it? it certainly can't hurt right? But No. Doctors are weird like that.

Anyway, GGCB, you're not going nuts. I know the feeling of not wanting to go on with life when you have an ailment, you have the symptoms, but there is no fix for it and you are basically forced to live with it. I have had medical problems in the past like that. Try not to give up.

O yeah, I know this is way out there, but is it possible for a hman being to live without this hyoid bone? If so, maybe just get it removed. I know that sounds crazy but if it is possible, you never know.
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The first visit with the D.O. was nice and relaxing.  However, the second visit, they tried to release the hyoid, without telling me ahead of time what they were doing or that it could make the problem worse (I wish they said something, as I would have refused to let them do it)...not a good thing...it brought me all the way back to square one.  As soon as I left the office, I was in pain...just like the pain I just gotten rid of 24 days ago which I had for 18 months and made my quality of life almost non-existent...I called the doctor back and I went back in to see if he could calm it down..it calmed down a little, but my hyoid feels worse than when I first went in for help.  I am very frustrated...I cannot sign up for this again...now my hyoid is literally popping out BOTH sides AND FRONT of my neck constantly.  Extremely uncomfortable to swallow now.. I wish I left well enough alone.  I should have been satisfied to have just gotten rid of the pain in these past few weeks...but no...I had to get rid of the uncomfortable feeling and clicking in my throat too...I am such an idiot!  I guess I was just not thinking that treatment could make it worse...I had such confidence that it would get better.    If I had not gone to the D.O. this week and they had not done the hyoid release treatment (which I was told they hardly every do, after it was already done), then I would not be as in as bad a shape as I am in now.  I was told that everything that they do is gentle, and after that first visit, I trusted them to continue to be gentle, not to hurt me...I don't think it was right to lead me to believe that, and then out of the blue try a manipulation that is so harsh.I am back to going to bed most of the time.  I am making myself this promise though...If this pain ever goes away again (this time it may not) then I am NEVER going to let ANYONE touch my hyoid or neck EVER AGAIN.
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Sorry to hear that. I am curious to know how this all started. I know you posted it, BUT what I mean is this. Right now you are in XYZ condition. Did you just wake up one day and this was like this? OR did this pain and problem gradually get worse and worse over the course of weeks, months, etc.? At what point did it really become a bother?

Also, I know this sounds off the wall, but I think if all of us here at this forum posted our habits, our weight, our routines, christ, down to what we do for a living and state we live in. I am sure there has to be a common link amongst all of us. I'll lead the way. Again, I know this is off the all but what is to be lost.

I am in NY. Male. I smoked till 2005, and have been smoke free since.
I am under weight slightly. Love to eat steaks on the BBQ. Love pasta. Kind of have somewhat medium to high stress in my life. Bad eye sight. mid 30's. Balding. High sexual energy. Need to sleep 9 hours to feel good.

I thought maybe that my problem was triggered from trying to lift too much weight while attempting to workout. Think about it, your neck kinda flexes and stresses when trying to lift alot of weight. But who knows. Did you try like advil or aleve to maybe reduce inflammation? I know, it sounds like you are at the end of your rope. Hang in there man.
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I got mine from 5-6 weeks of extremely hard coughing, I coughed until I would dry-heave, that is how bad it was...I went to the doctor twice during that time and she did not treat it...so...a doctor's lack of action caused this to happen to me.  During the second week of my coughing is when this happened.  I did not just wake up with it, I got this from trauma from the cough (I was told by another doctor that it was probably misdiagnosed whooping cough).  It was bad right from the beginning, but the pain increased even more over the next 2 months then stayed that way for another 14 months until the end of April just this year when I had 24 days of blessed relief until my visit to the D.O. last week.  This problem has been a bother to the point that my life is nothing like the way it used to be before it.  

Well, here is my info:  I am from MA.  Female.  Never smoked or drank.  125 lbs., 5'5", fit.  I don't eat alot of meat, mostly fruits and vegetables, I eat 6 small meals instead of 3 larger ones.  Low to medium stress (if I didn't have this my stress level would be low).  Medium stress at work.  Bad eyesight.  Mid 40's.  Can't sleep well because of this, but I would do best with 7-8 hours of sleep.  

It is quite possible you did this while lifting weights.  At the beginning I took 2 advil 4 times a day just to take the edge off as it never really did much more than that.  I have had to cut down because I have been on it so long I don't want to hurt my stomach, so now I take 1 advil 1-2 times per day.  

I do have to say that today was not as bad as it has been recently.  I was very grateful to have such a good day today. I only needed 1 advil.  If I get some more days like this, it will lift my spirits and I will be able to hang in there.

When did your problem start?  What are your symptoms?  Have you had any luck with any doctors regarding it?  I wish you luck.
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My problem started at the end of April. Started with just a minimal sensation of a piece of food stuck in my throat. From there it has progressed into a "piece of popcorn kernel" stuck in my throat and poking it. And then to a very tender spot on the right side of my throat/neck. But it's not actually on the inside of my throat. It's on the outside. I know this because salt water and other things like orange juice don't bother it.

If I push in the right side of my neck/throat (upper mid point on the right), I can hear and feel like I am clicking or rubbing something like cartilage, and it is tender. Doesn't happen on the left side though. Also, over the past couple days, now the bottom half of my neck has this tender type sensation and my neck feels tight like someone is restricting it.

When I swallow, the right side feels off. Like I can feel the food rub against whatever is pressing up against it on that right side, but the pressing is from the outside, not the inside. I also feel and hear a clicking thing going on on the right side when I swallow. I guess it is the hyoid bone rubbing against the thyroid ligament? But why? and why has it been getting worse especially since I have been taking it easy the past few weeks.

The ENT looked down my throat with the camera and all looked good.  I had a barium swallow and the only thing to come back was that my thryoid had dysmotility. I had a ct scan and am awaiting the results. I have also been referred to a Gastroenterologist. What do they have to do with this though?

I have been living on aleve and trying to get more relaxed. Seems to help a little. I even bought an asthma inhaler just in case for this throat tightening thing.

I guess I don't understand why it has gotten worse if I am making every attempt to take it easy. How can something like hyoid bone clicking and tenderness get worse if I am not provoking it? Can anyone answer this?

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O yeah, forgot to mention that my teeth are pretty bad. Lots of fillings (Amalgams and composite). Even have a few implants. Don't know if that adds a piece to the puzzle. Just trying to see if there is something here that all of us have in common. Matter of fact one of my fillings came loose a few months back and now there is this hole in one of my teeth. Who knows.
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The amount of pain I have and the severity of the clicking I have does not correlate with anything I am or am not doing.  I can be sitting and doing nothing...not even moving...and the pain gets worse, sometimes I can be working in the yard and the pain and clicking subsides and sometimes it gets worse.  I think the reason for this is that the pain is actually coming from nerves in our throat and neck, not really from the muscles and tissue around the hyoid, so if the hyoid is pressing on nerves, we get pain, and if it does not happen to be pressing on nerves (even if it is sticking out), then we get less or no pain.

Paste the following URL in your browser and read the entire article.  I think it really relates a lot to us:

http://dysphagia.com/maillist/2002-January/msg00146.html

The article also has some insight as to why it may happen...something about how the hyoid and thyroid cartilage and ligaments change shape as we get older in some people, but read it as it is very interesting.

Let me know what you think after you read it...

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That link is now working for some reason
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oops, meant to say That link is NOT working for some reason
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OK, it is working now.
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Very interesting. Is anyone else besides us reading this thread anymore? If so, let your presence be known. Maybe we can all find a link to this. Our habits, height, weight, age, etc...

I forgot to also mention that I do suffer from acne. Not really bad, but it's there. Just a another piece. Thanks.
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Now, since I went to the D.O. and they did that "hyoid maneuver" my hyoid pinches against nerves and tissues in my throat ALL of the time instead of only once or twice a day...Like I need more pain, numbness, and discomfort to deal with.  I am so much worse since I went there.  I can't live like this...I don't think this is ever going to end...it keeps getting worse since the visit...I even had a few days where I had trouble dry swallowing (which I never had problem with during the entire time I have had this - Nov. 2006)...I wish I could turn back time to before I went, at least I could have lived with the level of discomfort I was having at that time, now, that's what I get for trying to find an answer, that is what I get for trying to improve my condition...punishment!!!  I just don't know what to do now...I can't go to an ENT and I can't go to a D.O.  I wish a doctor who visits this forum would give some suggestions...I can't take this any longer.  I have been at my new job for 5 weeks and was actually starting to be a little happy...now I am having trouble even functioning again.  Why is it that every single time I try to make things better, things only get worse...I am at the end of my rope...added to all of the other things that have happened in my so called "life"...this is the proverbial "straw that broke the camel's back".
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Occlusal appliance therapy for temporomandibular disorder is highly effective for muscle disorder of  masticatory , neck ,and upper shoulder muscles. The therapy is conservative. If you do not wish to invest for the treatment, you may try a simpler method. Place a cotton roll between your front teeth to disclude the back teeth. When your back teeth are seperated by cotton roll, tmj tends to seat more upward and backward than your teeth clenching position. This joint position is a musculoskeletally stable position, which would promote functional harmony of associated musculature. If this simple maneuver helps, I feel it's worth spending the money for definite occlusal therapy.
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I’ve been having a problem very similar to this.  Occasionally, my throat pops out and I loose my voice.  It does so with a very sharp pain.  Then I have to hold my throat in place, with my finger, to talk afterwards.  I can feel two spots on the left side of my throat that are very sore.  One is directly left of my Adam’s Apple the other is up by the back of my jaw bone.

This first started after I had throat and sinus surgery 4 years ago for Sleep Apnea and has been happening about every 3-6 months.  Every time I have seen a Dr. about it, it has gotten better by the time I’ve actually gotten in to see them and of course, like many of you, they wrote it off as my imagination.

Yesterday this happened when I was eating lunch after I had been doing a lot of singing.  I decided to go to Urgent Care to get it checked out.  The Dr. there said he had the same problem.  He figured it was the Thyroid Cartilage popping over my Larynx.  He explained it like when a person throws out their knee and the tendon pops.  Since he was an Emergency Dr., he said there wasn’t anything more he could do and that I should see ENT about it again and to just try and rest my voice.

I’m glad I found this forum.  There is a lot of very good information here.  That is a great article, GGCB.
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GGCB, Sorry to read that your having more pain.

I too get that feeling that popcorn and pills and other things that size get stuck back there.

I also have a problem with choking on my saliva ocasionally.  I'll be just sitting there and all of a sudden I'll just start choking and coughing.  Then my throat will close up and I can't breath.  The first time this happened I thought I was gonna die.  I went in for swallow tests, upper GI, and they said everything looks good.  They told me to try and just relax and breath through my nose when it happens.  I didn't think that was very good solution.  But, what can you do.
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I am amazed that so many people are having problems with their hyoid too!  I have been having problems with it for at least a couple of years now.  Like Jamie Nelson, I too choke on my salyva, it actually runs on one side of my family.  Definately breathe out of your nose during that and I have recently discovered that if I massage where the collar bones connect right below my throat, for some reason it seems to help stop the coughing associated with it.  I'm 44 and have had problems with tmj.  I was diagnosed with mild scoliosis in Jr highschool and have had problems with my neck and back since highschool. I have been going to chiropractors on and off since then, but am pretty flexable and find that I can usually adjust most of my spine and joint misalignments back into place with stretches.  I tend to stretch out my neck and spine periodically by leaning back in a chair, dropping my head all the way down until my chin touches my chest and then putting my hands on the back of my head and gently rolling it foreward just a little bit more.  For about a couple of years or so now, I have noticed that when I do that particular stretch I get a pain in my throat like something is sticking me in the adams apple from inside.  That was the only symptom I had, so I didn't pay much attention to it.  There are probably lots of people with hyoids slightly misaligned that don't know it.  Over the past two or three weeks I developed a worsening feeling in my throat like there was a pill stuck in it on the right side.  When swallowing food, it seemed to get stuck midway down my throat, and eventually even water didn't seem to be going down well.  This sounds a little crazy but it also seemed that there was an air-bubble stuck behind the adams apple that was blocking the passage of water.  I would burp up air that didn't seem to be coming from my diaphragm every time I drank water.  Does anyone else have this?  I thought I had some kind of a faulty valve in there or a growth or something.  Fortunately, I didn't get the intense pain felt by many of you.

Has anyone tried seeing a good massage therapist (key word there being "good")?   A week ago I was talking to my sister about the throat thing.  She told me about the hyoid bone and how hers has been giving her trouble off and on for ten years now.  Years ago she saw a good massage therapist who fixed it for her and showed her how to adjust it back into place on her own.  My sister instructed me over the phone how to do it.  Originally I was moving the adam's apple back and forth because that's where I felt the lump in my throat, but that didn't work because the hyoid is above that.  

I don't know if this will be of any help to anybody, but this is what I do to fix my hyoid: The throat needs to be relaxed.  What works for me is sitting down, leaning foreward, and hanging my head down.  I spread my thumb and index finger appart and hold my throat (as though I were going to strangle myself) up high under the jaw, then slide my hand foreward about an inch so the thumb and fore- finger are about 3 inches appart.  I start up high and gently feel around until I find something that feels like a rubber ball that's right above the adam's apple.  I can almost get my fingers a little bit around it.  With my thumb on one side of the "ball" and my index finger on the other, I very gently slide the "ball" all the way to the left and then very gently all the way to the right (sort of from the underside of it) and while I'm doing this I can feel it "clicking" back and forth, back and forth.  When it stops clicking, I leave it the heck alone.  The symptoms disappeared until it would shift out of place on it's own again and then I'd have to readjust it again.  It stayed in place a little longer each time I did it and now so far has stayed in place on it's own.  Like I said before, I don't have the extreme pain that many of you do.  I don't know that I would try to adjust it myself if I had that kind of pain... I would be afraid that it was litterally sticking into something in my neck and it could cut something in there if I messed around with it.  Use your best judgement because only you know what you have been living with.  

Well when I do that chin-to-chest stretch, I don't get that stab in my adams apple anymore, but now I am having a kind of what I would call a "tingling burning sensation" that is like what I get when I've been crying a long hard cry or get "choked up".  Does anyone else have anything like that?  It's only on the right side, though, where the pill-in-my-throat feeling was.  It's been on and off now since I readjusted the hyoid bone.  It feels better when I drink ice water or put a cold compress on it.  I am guessing that the throat tissue is probably irritated from all that time that the bone was misaligned.  I am hoping that it will eventually stop.  I still burp up air that doesn't come from my diaphragm every time I drink water.  Hopefully this too will pass.  

Best of luck to all of you.
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I just wanted to post an update.  As of today the tingling burning sensation in my throat where the hyoid used to stick in my throat before I adjusted it is gone now.  No sign of it all day long!  I hope for relief for all of you soon.  Best of luck.
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I have had a episodic issue that feels similar to what you all describe a few times over the past few years as well!   What happens with me is that the right side of my throat will suddenly feel as if it has "cramped" or something, and has knotted into a ball that protrudes into the inside of my throat.  I have found that my solution is to swallow, which seems to "pop" something back into place, almost as if something (I describe it as my adams apple) had become stuck underneath/behind something else (felt like a muscle or tendon) in my neck, and the swallowing "freed it back up".  The swallowing hurts excrituatingly, and I really do NOT want to do it when it happens, but it does fix the issue and the feeling usually dissipates quickly, if not emotionally. :)

I have described the feeling to many people and no one understands what I am talking about.  It has only happened to me maybe 10 times in the past ten years, but the thing about it is that it is SO VERY frighteneing.  It is unsettling in a manner that I have never experienced with ANYTHING else, even injury.   The pain is fleeting for me (maybe only 3 seconds max for the event, then sore for a while afterward), and while it is very bad in itself, the eposides are just so ODD feeling as to leave me shaking an nauseous, and in TOTAL FEAR of it happening again.      

I have done like many of you have, and have stopped yawning deeply, swallowing with my head tilted/turned, or even streching my neck extensively in attempts at prevention.  I had given up on anyone figuring out what it is, but while it is ridiculously frightening, rare intances are not life-threatening, and I think they can be dealt with, and I had not thought about the issue (conciously - always scared of it unconciously :) for a few years.

I am at this site today because I started doing research again - I woke up this weekend with SEVERE thouch-sensitivity on the LEFT side of my throat, not around my hyoid (from what I can see of anatomical diagrams on the internet) but almost BEHIND where the thyriod cartelige is (see http://en.wikipedia.org/wiki/Image:Gray1194.png).  I also have tenderness in some muchsles in my neck, extending to my inner left clavicle, my left rear and front jaw, and even my left inner ear.  There are muscles concting the hyoid (and the thyoid cartelidge) to all of these points (see http://en.wikipedia.org/wiki/Image:Infrahyoid_muscles.png and http://en.wikipedia.org/wiki/Image:Digastricus.png).  I especially get pain when I turn my head 45 degrees to the left and put my head back - going back and coming back up causes pain in my throat, almost like either the muscles are strained/torn OR that the nuscle movement is causing something in my throat to move/hurt.  At first I thought it was perhaps just an after-effect of the swallowing-thing having taken place during my sleep or something, and that it would wear off, but it has not over the past two days and I am starting to be concerned that I have fractured something.  (I was singing loudly on Friday night, and am thing that perhaps haev been the cause).

Anyway - it is just really good to know that there are other people that experience this odd sensation as well.  I know that some people think you are crazy but it is such a frightening experience that it cannot be anythign but real :)  I hope you all feel well - if my pain/discomfort continues I plan on seeing my doctor, and if I do will let you all know how it goes.

Thank youa ll for being here and best of luck!!
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HI , kinda new to this but i have had these issues since a car accideny in 2006. Ear pain ,throat pain and heaches, neck pain all of it....
But i saw a doctor first one in years that didn't bypass nor brush off my symtoms (symptoms). He is the 1st and only specialistf for this issue with the hyid bone. His name is Ira Klemis in south amboy, nj. Center for headacke,neck and facial pain. My attorney sent me there . I thought one of those docs just for the accident but he actually is worried about relieving pain and takes care of people all over the world . he gurantees relief. He will even pay for it if ur insurance company refuses but u have to complete his treatment. He is almost 2hr from me and i did the consultation but haven't made my treatments as i soon willhave no chose. its becoming hard to eat ,drink and it hurts bad, I am a mother of 3 and work so it seems impossible to take care myself, so i deal with the pain. so make the time , it;ll be worth it! look him up if u want the# me know . Pass on this doctors name ....
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I'm sorry to hear that you have been in so much pain for the last two years.  It's good that you found this specialist.  Hopefully he will be a Godsend for you.  Thanks for sharing the info.  Luckily I won't need it because I am having no return of symptoms since I adjusted my own hyoid, but it could help everyone on this posting.  I wish you and everyone else here a complete recovery as well.  
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Not sure if this is relevant, but I had the hyoid problem on and off along with light headedness and fatigue. I am going to the chiropractor now and he says my neck is way off. Muscles tight, spasms, discs, etc.. It is possible he said that the tightness and spasms make everything including the hyoid move to one side and poke. He is adjusting me every other day and so far little by little it seems to help. Just a thought.
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Sorry but I don't speak english.
I'm taking clonazepam, 0.5mg at night before to sleep and I'm feel better.

Bye
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Before I accept my diagnosis of hyoid bone inflamation (inflammation) I am having my esophogus scoped , ENT has said throat looks fine and he can see the hyoid bone pushing against my throat. Intense burning , stinging pain, along sides of throat and my vocal cords hurt and get very tired after talking. My tongue tingles and feels funny along both sides. ENT also says I have EPR and GERD (had GERD for 20 years), had bad bout with H Pylori 10 years ago. Sharp pains between my shoulder blades, also pain and ringing in ears.
I hope my stomach and esophogus are fine but how can you live with these other symptoms and pains- these just started with me in July, although funny feeling when swallowing about 2 years. 55 year old female, not overweight, don't drink or smoke-do have slight posture problem, nothing severe. I no longer drink carbonated drinks and recently have watered down my coffee. Soy milk and yogurt feels great going down but usually gives me burping and indigestion.
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I am in shock right now...I have been going through this for a while with my throat "popping out" after swallowing/eating, talking, yawning, etc.  I have gotten to the point where if I roll my neck from the right to the left, it will normally pop back in on its own, but sometimes I have to pop it back in with my hands.

I am so happy to have seen all these posts here and to know I am not alone, although I wouldn't wish the shock of this on anyone!  I have had swollen/infected tonsils for a while now that no doctors seem to want to do anything about, and the throat issues seemed to start shortly after my glands became very swollen from the tonsil infection and I have never been the same since.

At first when it would pop out it would send an overwhelming pain through my entire neck and I would go into complete panic mode, but lately, knock on wood, there has been no pain associated with it, although it is happening every day now.

I hope to see and ENT soon, and will keep everyone posted if I hear anything new and interesting about this.  Good luck to you all!!
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I spent two days almost totally quiet and had no symptoms, thought maybe the meds were working. Then next day went into work, talked, watched grandsons, talked, laughed-then the pain started. Terrible raw, stinging pains on vocal cords, tight crushing pains in chest. What is crazy is it feels better while I eat. My hyoid bone feels like something is swollen around it, not as sharp when I feel it. These symptoms are scaring me, no one understands how bad it feels. Does anyone feel ok when they don't talk but once you talk a while everything starts?
Thanks
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oh my gosh... what a relief!  I have had these symptoms all my life... beginning when I was 13.  If I inadvertently twisted my neck suddenly, there was a pop and a feeling as if I was being strangled.  Swallowing was excrutiating.  It only happened about once every year or two, and I learned to "pop" it back, and not to panic.  However, now I am middle aged and it is happening much more frequently, and leaves me with a sore neck and vocal problems.  I am sitting here now with a sore neck and trying to move very slowly.  I do some public speaking and I am  terrified that it will happen in public.  I did not even know there was a hytoid bone!  I am taking this entire discussion to my doctor.  Has anyone had some long term, positive results from treatment?  Thanks for posting.  What a relief!
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Hi to all,

For about a 5 months I  have had a clicking sensation in my throat. It all started with alot of sore throats, crypic tonsils, and alot of doctor appointments. Then one dau after seeing all these doctors I was prescribed amoxicillin, penicillin, Z-pac, and clonzapam.

I am now going to a PT for neck massages and exercises on my neck. What i am wondering if anyone has ever had this problem and if so wgat did your doctor say about this condition? I am sick of having this feeling in my throat and if anyone can help me out, please come and chat with me.
Thanks everyone!!!
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I have been reading some of these comments for the past year or so, off and on.  I have a similar problem where I thought my hyoid bone was dislocating when I would be laying down, turning my neck and or yawning.  I would get a very severe pain in my neck near where the hyoid bone is located.  To get it dislodged I would push on the area with my hand and swallow, this would immediately fix the problem, but I would feel the area was then irritated or swollen, which would then cause the problem to happen more frequently. Eventually things would improve for about a month or two, then the cycle would begin again.  I recently decided it was time to get things checked out.  I am a dental hygienist, none of my docs new anything about this, so I went to my MD, she sent me to an ENT.  He was quite helpful, and was confident in his dx.  He said it was not my hyoid bone that was dislocating, but rather the stylohyoid ligament that was likely catching on my C-Spine.  With my line of work, my neck is in an awkward position a large portion of the day, contributing to my problem.  The Dr. rec'd I change my position when I work, take NSAIDS when the problem flares up to break the cycle, and get some physical therapy.  He said there is a surgical procedure that could help, but he rarely performs it, it involves  breaking the styloid bone, you can look this procedure up online if you Google Eagle's Syndrome.  I'm not sure, but maybe this is what we have, Eagle's Syndrome is when there is calcification of the stylohyoid ligament, which can become symptomatic.  Although I didn't see anyone with this clicking/ getting stuck feeling like we have.  Anyways, I really appreciate everyone's input.  Thank you!  Laura
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Well, endoscopy tomorrow morning, checking to see if still have Barrett's Esophogus or complications from that, have GERD, Had H-pylori. I am very nervous and hungry , of course, but just anxious to get it over with. Need to eliminate the fear of cancer and then will proceed with MRI of thryoid and perhaps Eagle's Syndrome, I found that also just searching symptoms. Something is working in unison to cause burning throat (that feels good while eating???) , problems swallowing-like bones rub together-, pain, tenderson and swelling around hyoid bone, shooting pains into ears, tight chest pains after eating meals and terrible pain between shoulder blades. Could this be combo of LPR, GERD and hyoid bone inflamation (inflammation)????????? I am praying all comes out well-thanks
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I have had similar symptoms for about 8 months, ever since shortly after I went to the dentists for bridgework.  Additionally, I have soreness on my left jaw area and an area of soreness all along the fibers (not sure if muscle or tendons) from just below my left ear all the way down my neck down to the shoulder bone.   I do have GERD, quite badly, and I have vocal cord nodules.   Also, I have TMJ -  Temporomandibular joint disorder.   Does anyone else have TMJ?  Wondering if there could be a connection.  I have that pressure sensation that someone was talking about, mostly in left jaw area, and pain in jaw area, and when I "pop" my jaw by an exaggerated movement, it makes it feel better, but usually only for a little bit.  These aches are almost a daily occurrence these days, for awhile now.  I have the clicking in the throat and the sore muscle type area in throat at the base of the tongue.   Also, I have that sore "ball" feeling up under the tongue area, too.   I was very glad to find your community and be able to feel not quite so alone with this problem.  I have an appointment with an ENT next week, and I will tell him about this and see what he says.  Thank you!
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I also get the tingling burning in my throat, like you try not to cry, but 10 times worse.
Then after I talk awhile my vocal cords get tired and start to really hurt. Doctor says all part of LPR and hyoid being inflamed. endoscopy went well, but I still have Barrett's , but nothing has gotten worse and I am thankful for that. Went today to reg doctor as my chest pains were horrible all weekend. Had an EKG, then basic X-rays, will find out Wednesday how that is. I just have to eliminate big scares so I can deal with this terrible chest, throat and back pain!
Has your progressed to chest pain?
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I'm glad to find other people to relate to. I decided to search about this chronic condition after I started my anatomy of the larynx chapter for my graduate program.(speech pathology) I have been living with "something" popping out of place in my throat for as long as I can remember. I'm 27 now. My mother said it happens to her also. I think it may be genetic. It can be fine for months and then it can start chronically happening sometimes daily. The pain of the dislocation and the annoyance of putting it back in place is stressful. It seems ridiculous to me that no doctors would know of the condition or have any answers when this many people suffer from similar symptoms. I noticed most of us have it on the left side more, yawning brings it on as well as moving in odd positions. I just wish there was an answer:(
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I developed this terrible problem after a pretty standard whiplash injury while lifting a beam and twisting overhead. Ever since 9 months ago my hyoid bone clicks out of place when I rotate my head to the left and it feels as if something is poking inward on the esophagous, when it gets bad it feels like someone is strangling me and I sleep every night in upright position because the throat pressure is unbearable. I have done extensive research and seen at least 10 doctors for my injury (it is my utmost priority to find a cure and conquer this), an ENT at the University of Southern California finally held a stethoscope up to my throat and listened to the clicking and put his finger over it, he told me it was probably the hyoid bone rubbing against some cartilage. My CAT scan and throat scope was normal.  But I am very confident what causes this problem, because of the way in which it was brought on, very similar to how people here injured themselves coughing I was straining my neck . It is obvious to me that the cartilage or a ligament got stretched and small fibers torn which causes a sort of instability and rubbing in the region. I am fortunate enough to live in Los Angeles, where they have actually sucessfully treated and performed multiple documented medical surgeries at the UCLA medical Center to treat this condition which seems to most frequently be caused by the elongation of the superior cornu (research this article on Pub-Med), or a superior cornu that is slightly displaced. This is most definitely not psychogenic but a real structural problem with the neck that has been documented it is by no means a medical enigma, and if any doctor tells you otherwise go and print up this article (google dysphagia in 25 year old you will come across this wonderful article http://dysphagia.com/mlist/2002-January/msg00146.html) They can go in and shave the offending cartilage and this surgery has been successful so do not lose hope. Every day of my life is a struggle and  because swallowing and breathing got so uncomfortable I was going to the ER so I deeply sympathize and relate to those of you suffering. I am currently getting a swallow test and rehab, and waiting 3 months to decide if I want to go ahead with the surgery. In the meanwhile I would focus on strengthening the anterior neck muscles and supporting muscular structures of the hyoid bone through isometric and resistant training exercises (google isometric neck exercises); this seems to be the only thing that has broughten me relief. The stronger the muscles are the less episodes I have had, and it has helped reduced frequency of popping with head rotation. I have also noticed that when I yawn something feelings like its going to explode and I get tension headaches, obviously there is a whole interconnectivity going on with the jaw, hyoid bone, and neck and this can lead to headaches. My headaches seem to shoot up and radiate from the hyoid bone. Another thing I think everyone should explore is prolotherapy (Lidocaine and Dextrose injections). This procedure has been known to strengthen and thicken ligaments and rebuild cartilage (it is theoretically possible that if the stretched ligament scars up more through prolo the clicking will subside), but I do not know if any doctors perform it on the hyoid region and how safe it is ( I do know they used Lidocaine at UCLA as a preemptive diagnostic before undergoing surgery for this condition) I am currently researching this. If anyone has any questions feel free to email ***@**** I have seen a lot of doctors and can help give more advice or just share experiences. I also would be grateful if anyone can tell me if they have stiffness or trouble turning their neck when they change lanes on the freeway? I wish everyone the best of luck with this terrible ailment.
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I developed this terrible problem after a pretty standard whiplash injury while lifting a beam and twisting overhead. Ever since 9 months ago my hyoid bone clicks out of place when I rotate my head to the left and it feels as if something is poking inward on the esophagous, when it gets bad it feels like someone is strangling me and I sleep every night in upright position because the throat pressure is unbearable. I have done extensive research and seen at least 10 doctors for my injury (it is my utmost priority to find a cure and conquer this), an ENT at the University of Southern California finally held a stethoscope up to my throat and listened to the clicking and put his finger over it, he told me it was probably the hyoid bone rubbing against some cartilage. My CAT scan and throat scope was normal.  But I am very confident what causes this problem, because of the way in which it was brought on, very similar to how people here injured themselves coughing I was straining my neck . It is obvious to me that the cartilage or a ligament got stretched and small fibers torn which causes a sort of instability and rubbing in the region. I am fortunate enough to live in Los Angeles, where they have actually sucessfully treated and performed multiple documented medical surgeries at the UCLA medical Center to treat this condition which seems to most frequently be caused by the elongation of the superior cornu (research this article on Pub-Med), or a superior cornu that is slightly displaced. This is most definitely not psychogenic but a real structural problem with the neck that has been documented it is by no means a medical enigma, and if any doctor tells you otherwise go and print up this article (google dysphagia in 25 year old you will come across this wonderful article http://dysphagia.com/mlist/2002-January/msg00146.html) They can go in and shave the offending cartilage and this surgery has been successful so do not lose hope. Every day of my life is a struggle and  because swallowing and breathing got so uncomfortable I was going to the ER so I deeply sympathize and relate to those of you suffering. I am currently getting a swallow test and rehab, and waiting 3 months to decide if I want to go ahead with the surgery. In the meanwhile I would focus on strengthening the anterior neck muscles and supporting muscular structures of the hyoid bone through isometric and resistant training exercises (google isometric neck exercises); this seems to be the only thing that has broughten me relief. The stronger the muscles are the less episodes I have had, and it has helped reduced frequency of popping with head rotation. I have also noticed that when I yawn something feelings like its going to explode and I get tension headaches, obviously there is a whole interconnectivity going on with the jaw, hyoid bone, and neck and this can lead to headaches. My headaches seem to shoot up and radiate from the hyoid bone. Another thing I think everyone should explore is prolotherapy (Lidocaine and Dextrose injections). This procedure has been known to strengthen and thicken ligaments and rebuild cartilage (it is theoretically possible that if the stretched ligament scars up more through prolo the clicking will subside), but I do not know if any doctors perform it on the hyoid region and how safe it is ( I do know they used Lidocaine at UCLA as a preemptive diagnostic before undergoing surgery for this condition) I am currently researching this. If anyone has any questions feel free to email ***@**** I have seen a lot of doctors and can help give more advice or just share experiences. I also would be grateful if anyone can tell me if they have stiffness or trouble turning their neck when they change lanes on the freeway? I wish everyone the best of luck with this terrible ailment.
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As far as coping with the uncomfortable feeling of slowly being chocked to death on a daily basis I would recommend a daily dosage of Clonazepam (Klonopin) if you are completely miserable. Also I forgot to stress the important roles that the anterior neck muscles play in this popping sensation. I do not recommend muscle relaxants this will aggravate the hypermobility of the hyoid that relies on constant muscular support. Clicking is a sign of a weakness and hypermobility and this popping sensation is due to the inadequate support or stretching out of the hyoid or neighboring ligaments. Many people on the forum talk about throat illnesses and screaming which makes a lot of sense because these are traumatic forces on the throat and when surrounding muscles become damaged or strained it can throw delicate balancing act that keeps the hyoid in place. Most of our problems may feel enormous or severe, but the fact that almost all of them don’t show up on mris and cat scans says that even a slight tweak in this throat structure can cause a lot of pain and discomfort. Don’t lose hope because there are good doctors out there who will pay attention and not brush you off. It took me ten visits to ten different doctors to finally find what was causing my popping noise. Many people write that this problem is unfixable, but that is not true. This problem can and has been fixed without remission. The medical community in general may be behind on understanding muskoskeletal injuries of the hyoid, but trust me there are groups of smart doctors and surgeons out there very aware of this problem, who have performed multiple surgeries. I am constantly checking this thread so feel free to ask any questions I have talked to some very reputable doctors and can give a quick reply.
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Hello, thankyou for the info, just read the article about the elongation of the greater cornu.  I've been going through nightly episodes of my ligament, or whatever-it-is getting stuck.  It's very painful to get it unstuck.  Just wondering if you have this symptom.  It feels like my hyoid bone is dislocated.  I have to push on the area of the hyoid bone and swallow to get it unstuck.  Did any of the Dr.'s you saw mention anything about breaking the styloid bone to correct the problem?  I guess surgery isn't really an option for me at this time because I'm afraid of the possibility of being worse than before, scarring, expense.  But... I may change my mind,  I just hope this doesn't get any worse.  Do you go through times when your clicking occurs frequently and times when it improves?  This is what happens to me. Well, thank you for your posts, I will look into the neck exercises.  
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Yes, my hyoid bone and cartilage "dislocates" about 500 times a day on the left side even the slightest movement to the left or right will bring on an audible pop and foreign object sensation poking into my throat. It is a noticeable problem for me everyday but is very much so episodic (annoyance can range from mild to extremely annoying), awkward neck positioning, hot weather, talking to loud can all aggravate the condition. I am constantly readjusting my throat, and the episodes can get very bad at night because when you lie down your muscles relax so your ligaments have to take up the slack, this is probably why your episodes are so much worse at night (If you are having trouble sleeping prop yourself up with some pillows it takes strain off the throat or buy a portable massage chair with headrest at brookstone and prop it up against the back frame of your bed this works great for me). Definitely look into the neck exercises they make the difference between complete misery and a tolerable day. I have also found weight training targeting the upper trapezius, particularly shoulder shrugs and lateral dumbbell raises (pick a weight you are very comfortable doing 10-12 repetitions at) to be extremely helpful as these muscles that connect up from the scapula can help add more support to your anterior neck region and stabilize the hypermobility that exists in your hyoid region. No none of the doctors I saw mentioned breaking the styloid bone, it seems the problem is fixed by excising the offending cartilage when it is caused by the  elongation of the superior cornu, but then again everyone’s injury is unique so that may very well be something surgeons do. I agree with you surgery is always a risk (even getting your wisdom teeth out can be dangerous). How did this problem begin for you, did you have any type of trauma, or was it’s perhaps onset by the years of awkward neck bending as a dental hygienist? Best of luck, and I will keep you posted as I meet more with my head and neck surgeon.
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http://resources.metapress.com/pdf-preview.axd?code=f3g87h7k88160u73&size=large
another very informative article showing  the medical community pointing to thyroid cartilage as the culprit of this foreign body sensation.
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Hello wildblue98,  I really appreciate your post.
Unfortunately my english is very bad.
Here are some interesting articles founded on pubmed.

- Odynophagia Secondary to Variant Thyroid Cartilage Anatomy
- Hyoid bone insertion tendinitis: clinicopathologic correlation
- An Unusual Cause of Foreign-Body Sensation in the Throat: Corniculate Cartilage Subluxation
- The Omohyoid Sling Syndrome
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Found those articles very fascinating thank you. I am totally convinced now it is due to the subluxation of the corniculate cartilage rubbing against the hyoid. You can even test this theory, by pressing firmly inward on your chin with the bottom of your palm, try to push your chin against your palm like you are trying to move your chin forward but resist with your bottom palm, this should contract the muscles enough in your anterior neck that if you turn your head simultaneously (to the side you normally get clicking on) while doing this pushing exercise the clicking will subside. This proves that their is very likely a "subluxation" of the corniculate cartilage rubbing against the hyoid that can be mitigated by increased muscular tension which helps temporarily realign the subluxation, until it shifts back out of place again. One can only hope this soft tissue injury corrects itself and heals with time (optimal healing time can be 12-18 months until maximum collagen maturation is achieved) after this though it is very unlikely you will get rid of the problem and popping unless: you build up the muscles in your neck enough that the increased muscle mass keeps the subluxation in place. If a rigorous physical therapy regimen fails, then the only other rational option I can think of is living with it or excising the cartilage subluxation.
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I have tried an aggressive regimen of neck strengthening and it has helped but my symptoms and problems still persist on a daily basis. My ENT and I  are getting prepared (filing insurance) to go ahead with the surgical procedure which involves a 1.5 inch incision in the anterior neck and clipping the top portion of my thyroid cartilage off, it can be done as an outpatient procedure and according to a recent 2001 article laryngeal clicking surgical fiction or fact the surgery has shown very promising results with complete resolution of symptoms namely dysphagia and throat pain that were completely resolved in in 11 of 11 patients who were operated on this study. THE MOST LIKELY CAUSE FOR THE CLICKING AND DISCOMFORT WAS AN ELONGATED OR POSTERIORALLY ORIENTED SUPERIOR CORNU OF THE THYROID CARTILAGE-- SPECIFICALLY THE SUPERIOR CORNU HORN RUBBING AGAINST THE TRANSVERSE PROCESS OF THE CERVICAL VERTEBRATE. This was often times not visualized on CT scan until a special swallow turn method was used to diagnose the underlying dynamic cause and actually see the thyroid cartilage jump of the transverse process. In my case I most likely will opt to be awake during the procedure while my throat is slit open to make sure that the surgeon sees the exact region that is rubbing abnormally on my cervical vertebrate and trim until I can confirm resolution of symptoms.
Greatest risks are developing a hematoma, or severing a nerve that involves swallowing though these are somewhat rare complications; mortality rate is extremely low, estimated at somewhere 1 in 100,000 patients. I am only 22 years old so I figure a small surgical procedure is worth the chance of complete resolution and not an entire life left of misery, dysphagia, and pain. I hope the surgeons scalpel can finally deliver me a sense of inner peace and that the same random swirling atoms that ruined the last 310 days of my life will reallign and fix me in this unfair, cruel, and random universe that has no pity for even the deepest human sufferings.
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I have not posted in months.  If you read back in the posts, I have the same problem as you have.  I cannot even turn my head slightly to the left without my hyoid getting caught sticking out the left side, at which time I need to push it back in.  This happens multiple times per minute/over 1,000 times per day.  I too saw the article regarding the surgery they performed on 11 different patients.  This was a joint effort between UCLA and Salt Lake City Utah.  Please, please, please post back to let me know how your surgery goes as I am not sure how much longer I can take this (now 733 days and counting...).  I am on the east coast, so I would have to fly out there and I am not sure if my health insurance would cover it, but I would still like to know how you are after the surgery and what the procedure was like during and after.  My ENT here in Boston says he can trim the greater cornu of the thyroid cartilage about 1/2 inch or so as he thinks my hyoid may be getting caught on that, but he is only guessing.  It may be getting caught on the transverse process of the cervical vertibrae also and I don't want to have surgery on the thyroid cartilage and wake up with the same problem because the cervical vertibrae part was not looked into.  I truly wish you well, and I hope this resolves your problem.  I will be anxiously awaiting your further posts.  Keep us updated as to when you will be having the surgery.  Good luck...I hope you will be symptom free.
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Yes I will be sure to get back to you after my surgery. I want to reassure you that this problem can and has been cured. The doctor I saw is an internationally renowned figure in laryngeal abnormalities. We are not as mutant as you think and he sees this case once every other month. The solution to your problem of whether it is cervical transverse or hyoid is simple, as my surgeon must make the same decision with me on the operating table. If you elect to undergo the procedure through conscious sedation which we agreed was the best method for success, the surgeon will have you rotate your neck on the operating table so he can see the exact region of cartilage and where it is rubbing on the bone. He will then use fine tooled instruments to trim away the offending cartilage, you will be able to respond to the doctors verbal commands but will most likely not remember any part of the procedure. This procedure is actually much safer than I anticipated and the surgeon told me mortality rate is less than 1 in a million, there is a small chance a hematoma will form but this can be drained. The procedure is performed on an outpatient basis and you will be sent to a recovery room and released from the hospital the same day. GGCB from reading all your posts I am more than certain we have the same laryngeal abnormality, I have no medical degree, but I would guess most  likely both our problems stem from a minor cartilage abnormality from torn stretched fibers that are rubbing up against the hyoid bone/ maybe the transverse process. This is no medical enigma but rather a minor cartilage subluxation that causes the bone to ever so slightly rub against in my case the horn of the superior cornu of the thyroid cartilage creating this popping sensation and inflammation that makes even the slightest head rotation an annoyance.  Given the location of the abnormality as minor as it may be (even brought on by coughing in your case) it is enough to drive one to the point of insanity. Fortunately, the Chief Head and Neck Surgeon at UCLA has seen and successfully treated this problem and from my consultation he is very confident he can eliminate the clicking entirely. I think this surgery may very well be the final answer to our suffering, and I will be sure to post back after the procedure is done.
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I was just reading over your old posts and forgot to mention just some random things you may find helpful:

Klonopin .5 mg at night for me is extremely helpful for sleep and this condition as I have found its the only reason I am even in school right now.

Put on a pair of earplugs and then slowly rotate your neck to the left, this will really give you an idea of the rubbing and grinding that is taking place may gross you out but it just really helps emphasize the fact this is a piece of cartilage clunking against bone, you discuss getting pain at different moments well this in my case is brought on by the grinding that inflames the area and inflames the surrounding nerves depending on how your moving your neck this is what brings on your episodes, its just a matter of getting that area inflamed enough it puts pressure on a nerve obviously once we get rid of this constant grinding the pain should go away.
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I also read that you get popping on the right times sometimes. Could you describe this to me more. Because my left is definitely the worst but if I push inward on my left i can get a sort of left right crepitus on both sides I may need to have the right side done also because it exhibits the same abnormality but much less annoying.
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Firstly, I want to thank you so much for responding so quickly to my post today.  I agree, when I read your posts, I have been following this forum since it began with Shell k with my first post being in June of 2007.  I feel that out of all of the posts on this site, your case is the most similar to mine, actually almost exactly the same except for the way it started.  

Now to respond to your posts...I do have quite a bit of crepitus in the upper portion of my throat which is extremely annoying.  When I put my fingers on the outside of my throat and turn my head I can feel the grinding.  When I first felt this it totally grossed me out, but it has been so long now that it doesn't gross me out as much.  The hyoid is definitely getting caught on some cartilage on the left side constantly.  The act of my pushing it back in all of the time will often create pain as the area inside is rubbing and grinding which inflames the area and the nerves.  Depending on how I move my head I even feel a nerve being pinched between the cartilage...I totally agree with you that if they can stop the rubbing, the pain and dislocation feeling will go away.  Plus, it will be a great releif for the popping and clicking to stop when I swallow.  Yes, this can make you insane...for most of the past 2 years I haven't even wanted to be alive any more...that is how bad it gets...I am sure you have felt like that too...like you don't want to live like this anymore.  I have spent many of my weekends sleeping just to be unconcious.  

I do also have a problem with the hyoid getting caught on the right side too, but not nearly as much...maybe 20 times a day as opposed to close to 1,000 times a day for the left side.  The right side mainly gets caught when I have just pushed the hyoid in from the left side and maybe pushed a little too hard, so it ends up going in little to far in the other direction.  Sometimes it gets caught on the right side if I turn my head to the right and leave it in that position for a while, for example if I sit to the left of someone and turn my head to the right to talk to them, when I turn my head straight again, it will sometimes get caught on the right side.

When my hyoid gets caught on either side, you can definitely feel the hyoid sticking out the side of the neck and it will stay that way unless I adjust my neck and apply pressure (not very hard pressure though) to put it back in, at which point, I can feel the hyoid jump around a couple of times going over 1 or 2 things in my neck before it slides back to where it belongs, but if I turn my neck again to the left (even slightly) I need to repeat the process.  If I do not push it back in, the hyoid stays hung up on the left and my upper throat feels like it is dislocated and feels like it is being pulled to the left (very uncomfortable).  I agree also that the right side is much less annoying and if I get the surgery I am not sure I would even have the other side done, but I would have to determine that at the time.

There have been about a dozen days throughout these last 2 years where I have actually had difficulty swallowing, but not when swallowing food or drink, only when dry swallowing.  But every day I have to consciously think about swallowing every single time I dry swallow, it is as if I can't dry swallow unless I do.  If I don't conciously think about dry swallowing, I literally won't swallow for 10 or 15 minutes, at which time I need to "prepare" to swallow.  I wish I could just dry swallow without knowing it.  I believe this is because there is so much sensation due to what is going on inside my throat that I can no longer dry swallow without thinking about it.  I know that if my throat were fixed, and I had an extended period of "normalcy" I would eventually ignore my swallowing function.

I would also like to make reference to your inability to sleep laying down.  I empampathize with your need to sleep sitting up.  I had to do that for the first 5 months I had this (I slept sitting up in a recliner), then one day I moved my neck in  toward my chest and felt a terrible pain and pop, but right after that I was able to sleep lying down, so somehow I got a little lucky there.  I am still only able to sleep on my back (if I sleep on either side, it aggravates my hyoid issue) and I have been a side sleeper all of my life.  Because I have to sleep on my back on a special pillow that I use to form around my head and neck to keep it from moving in either direction, I also have a problem with my tongue falling backwards in my mouth and I will sometimes wake up feeling like I have been suffocating.  I wish I could sleep on my side again...but I am thankful that I am now able to lay down at least.  I remember how hard it was to sleep sitting up and I sympathize with you.

I hope that I have answered all of your questions...let me know if I can give you any more details.

I feel that our correspondence back and forth will not only help you and I, but may also benefit the others reading these posts.  I know that I already don't feel so alone with this and you have given me renewed hope...and believe me, after 5-6 ENTs I was feeling extremely hopeless before I read your posts today.  I am extremely interested in all of this every step of the way and I thank you for keeping in touch about this.

Believe me...I am wishing for you the absolute best!
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Just one more question...you mentioned that the doctor at UCLA sees this problem about every other month...could you tell me how many times he has done this surgery?
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I am just in awe of how similar your case is to mine down to the nearest minute detail. Everything you describe is exactly exactly the same even the the left side 1,000 times a day and the right side not being as worse and only popping out 20 times a day its amazing in fact for me to really pop out the right I need to get a really good position like you or press in on in it slightly with my finger than I can repeatedly pop it in and out . We both managed to injure ourselves in the exact same places left and right (this makes sense since the right is stronger and absorbed the trauma better) and to the same degree I was tensing my neck really hard when I was lifting and grunting so this makes sense we both had strong contracting forces that tore the cartilage fibers, but still the utter detail you go into is me talking, even the lying down thing, , I also have trouble speaking at times and my voice gets weak and raspy I can no longer project my voice like before, and sometimes I to feel like I am going to choke on my tongue it is so awful although I only get this sensation maybe once a week but the tongue is anatomically connected the hyoid somehow so this all makes sense, I also am conscious of dry swallowing constantly, but I do not get clicks when I swallow only when I rotate my head and minor pressure on both sides will elicit a sort of laryngeal crepitus where I can palpate the left and right sides back and forth with my fingers. However the overwhelming majority of the disability and pain is centered in the left hyoid/ upper superior cornu thyroid region where I too feel as if it has been rotated upward and is gagging me constantly or when I turn my neck up and to the left. Do you get clicks when you just swallow? I got over that a couple months ago too. I asked the UCLA surgeon how many times he has done this and he says well I cannot remember his exact words paraphrasing him, "I get all the people on the West Coast come see me with this problem, a case about every other month" So I did not get an exact number, but seeing he has over 30 years of experience and published that study back in 2001 one would assume at the least hes seen and treated this at least 30 times, but I will ask for the exact number next time I see him. When I asked if he has made anyone worse he said no and that the surgery is very successful in eliminating clicking. I asked him a percent that this clicking would go away. He told me basically it is guaranteed the clicking will go away. But our cases our exact mirror images of each other and I thank you so much for your past posts as you helped me figure out my problems and seek a surgeon accordingly, I only owe it to you to keep you meticulously updated on my progress.
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When I said I recently got over the clicks, I meant to say I recently got over to sleeping in an upright position. No my throat has never clicked from swallowing only from slight head rotation. Also I saw in the case studies that two of the patients had bilateral symptoms like us (funny thing about these two patients is neither of them had any sort of neck trauma which shows that subtle cartilage abnormalities with changing age can cause this same problem) with one side being greater and they were treated succesfully on both sides. The only other symptom I can thi nk of to ask you is do you ever have trouble yawning fully on both sides and get tightness in the jaw? And did you ever get headaches from this?
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Let me address the issues you mentioned in your last 2 posts:

I agree, out of all of the people who posted here, our 2 cases are the most similar, almost identical.

I also have trouble speaking at times and will get hoarse and raspy if I talk for more than 10 minutes on some days, and talking can even make pain develop in my mouth, tongue, and throat, although that happens a lot less than it used to.  I try not to yell when I am mad because that also aggravates the problem, as does crying.  Also, when I try to sing I am unable to hit notes that I used to hit and it can often cause throat pain so I don't sing anymore.  Even if I try to sing (like singing to a song on the radio) I hardly make it through a song before I get raspy and my throat and tongue get all tight feeling and I have to stop.  When I used to eat, my tongue used to get very tired and the back of the tongue used to feel like it was getting a muscle cramp so I ended up not eating all of my meals for a time, but that hardly ever happens now thankfully.  

My hyoid also clicks and pops when I turn my head.  I will turn my head to the left, even slightly, and it will get caught on something inside my neck and then when I go to straighten my head or turn it to the right, my head turns, but my hyoid stays caught to the left (very uncomfortable) so I need to lift my chin and turn my head far to the right, then it will come loose and pop and click once or twice and go back in place, but I also click when I dry swallow.

When I have what I call a "really bad throat day" and it is bedtime, I feel like I am going to choke or smother on my tongue too, almost as though the back of my tongue is swollen, but it isn't.

One thing I am not sure if I mentioned, but sometimes, depending on what they hyoid is pressing on in my neck, I get intermittent numb feeling in the left side of my face, sometimes the left half of my lip, or around my left eye, or left cheek, or all of the above.  Sometimes my left eye will twitch too, and I also have had some left lip tingling which has disappeared.  Do you ever get any of these sensations?

I used to have a great deal of difficulty yawning, but now that it has been 2 years, the only thing that happens when I yawn is that my left eye will sometimes close and twitch, most likely from a nerve getting hit by the hyoid...just a guess.  No unusual tightness in my jaw, but my jaw does pop.

Yes, I have gotten headaches, mainly on the left side of my head, and even some pain in my left ear and behind my left ear.  Luckily those things happen only intermittently now also.  The headaches and the pain in and behind my left ear got so bad at one point that they did an MRI to see if I had a tumor...I did not, it was related to nerve irritation coming from my hyoid and radiating upward.

Thank you for your kind words saying that my posts have helped you to figure out your problem and seeking a surgeon accordingly, but I thank YOU also, as YOU have given me hope again.  I am not glad that either one of us has this debilitating problem (most people don't even understand how bad this is and how profoundly it can affect our quality of life), but I am glad that I have someone like you to talk about this to, to support and encourage each other, to get us through this...which we will do...we will both get through this...we will both have the surgery and we will both be able to enjoy our lives again.

Keep in touch!
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This information is unbelievably valuable as a go into surgery now it gives me total confidence. The quivering lip, numbness around the eyes, heavy eye lids, headache pain shooting up the back side of my head brought on my jumping up and down, tongue sensations, popping in the left jaw, everything you describe have been bizaree symptoms I have had since this left hyoid popping started 11 months ago. The surgeon told me their are delicate nerves around the hyoid that control sensation and movement of the tongue and swallowing reflux, it is obvious to me now that all these myriad of symptoms are a result of nerve inflammation from the grinding structures in our necks. This is really reassuring to know, as I thought I may have had some really serious complications from what seemed at the time a relatively minor/moderate whiplash injury. This information has helped so much. Other weird symptoms I have had that you did not mention is a feeling like a want to faint or pass out when I turn my head up into certain instances, dizziness, clogged left ear on occasion, and shortness of breath. It would be great if you could tell me if you have had shortness of breath, as there may be other medicaly factors causing this in my daily life. Thanks again. I will keep in touch
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Sorry just one more thing do you say you click every time you dry swallow, because that would be the only important difference between us. So every time you swallow you get a pop on the left side?
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I have not had actual dizziness where the room is spinning, but I intermittently get the feeling of being "off-balance" and I sometimes need to catch myself from falling in that direction.  

I have had no shortness of breath.  

My left ear does get a blocked on occasion also.  

I have never felt like passing out while I was up and about, but I have had the sensation of no longer being able to feel or control my body when I am laying on my back and my head and neck is in a bad position sleeping at night and when that happens I wake up very suddenly in a panic because I can no longer feel my body and it does feel like it eminates from my hyoid area.  Once I move my neck in a better positon and sit up, the feeling and control of my body comes back.  It is as if the hyoid was putting pressure on my carotid artery as I slept.  I wonder if that is what is happening to me.  I also wonder if that is what happens to you when you turn your head up in certain instances...maybe the hyoid puts pressure on your carotid artery and causes your fainting feeling.  Only the doctor would know that though...I can only describe what I feel at the time and what seems to make sense to me as to what could be causing it....only a guess.

I have days when I don't click every single time I dry swallow, and I generally don't click if I turn my head slightly to the right when I dry swallow, or if I turn my head far to the left when I dry swallow, but there are exceptions to those rules too though.  As I am sure you have now gathered that the symptoms can change frequently.  My clicking/popping can happen on the upper left, right, and center of my throat and it constantly changes.

I hope this further info helps.

Talk to you soon...
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thanks for the info, yes your case does sound exactly like the ones published on pubmed and in other journals I have read patients would notice the clicking subsided with head rotation to the affected side or that this seemed to alleviate the symptoms when swallowing. I also get that sudden panicky jump sometimes during the day or in the middle of the night or often times when I am riding my bike to class or walking on cement or other hard surfaces and I cant readjust my throat its like a horrible jolt of impending doom "or loosing control of ones bodily functions" when I readjust it quickly and wiggle it back into a more comfortable place the panicky feeling subsides. I just figured this was my nervous sytem's instictual response to being chocked or having pressure in the hyoid region, it probably activates some portion of the nervous sytem which creates this feeling of loosing control "panic attack" sensation, too bad the hyoid area is so delicate, but this can also be a good thing the problem could literally be centimeters of displaced cartilage that needs to be trimmed off which is what Im hoping for. But I will only know after the surgery which is coming up soon, and if it works for me theres a good chance it will for you, I hope you can fly out to Los Angeles and finally get rid of this horrible thing.
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I also wanted to ask you more about your headaches because for the first 6 months that was my most debilitating symptom yes it did feel like I had a brain tumor, I had 2 mris, an occipital nerve block,  a medial branch block, and cervical epidural steriod all performed on my neck because I never guessed the pain was coming from the superior cornu/hyoid region and shooting up the back of my neck into my head. I was wrongfully convinced my pain was coming from an inflamed facet joint as I thought this was what was popping when I rotated my head from left to right but then I had problems swallowing and I realized it must be coming from the throat. Could you describe these headaches you had in more detail, what brought them on, if they felt like tension headaches, I just remember my head feeling like it was going to explode and pounding headaches brought on by just standing up and walking.
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I forgot to ask if you have trouble looking over your shoulder like in the car when you change lanes, it is very diffcult for me it has affected my ability to look over either shoulder tremendously. I just wanted to make sure before my surgery this limited rotation was coming from the popping hyoid. thank you so much. also I was looking under the clicking in throat forum on this site and their are a lot of other people with our exact symptoms and another site I was looking a today one man posted about having surgery done recently at UCLA for our problem and he was fixed, so there are definetely more people floating around the internet talking about this if you look more carefully lots of them point to UCLA to seek treatment, I keep on finding more studies too that point to the superior cornu of the thyroid cartilage. hope to hear back from you soon
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As I read this page, I found myself saying the same thing as so many of you--Oh My God, I'm NOT Crazy!   I have had this problem most of my life.  I think it was first in my twenties and I'm almost fifty now.  My former husband would just look at me and saw I was nuts when I would try to explain it to him.  

The only way I have been able to "get it back into place" is to flex my head downward, tuck my chin into my throat and swallow a few times.  Most of the time it will move back into place.  If I can catch it quick, I can avoid the horrible pain in my throat and the panic feeling.

I have neck issues and subluxation in many joints, so the explanation of the hyoid subluxating could be a reasonable explanation.  I'm a nurse and when I've told peer about it, they all look at me the same way.  I've never told my doctor because I thougth it was just me.....

I will ask my doc the next time I go and tell him what I've found on this site.

kat
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Sorry it took me a couple of days to get back to you, but I have been working long hours lately.

As for the headaches, I really didn't get many headaches until about a year and a half into this problem.  I went to an osteopathic doctor and his intern made a pretty radical adjustment to the hyoid bone and right after that, I was having terrible pain in the left backside of my head, along with terrible deep ear pain and sometimes the headache will also happen over the left eye.  I had them for several months, so I went to my doctor and that is when she wanted to do an MRI to rule out a tumor, which, of course, I did not have.  Yes, to me they did feel like tension headaches a lot of the time since they seemed to come from the base of my skull.  I read all of the things you had done for them...you went through an awful lot.  They must have been very debilitating.  Mine were bad, but not bad enough for me to go through what you went through.  I used to take advil and lay down, but sometimes laying down actually made them worse.  I am grateful that they just disappeared a couple of weeks after I had the MRI.  I still get ear pain sometimes, but the worse of that issue seems to be over for now...I hope.

I have no trouble actually turning my head when I drive or at any other time, my problem is after I turn my head back to its normal straight position, so the mobility in my neck is intact.

I was wondering if you could tell me the other website you found where the one man posted about "having surgery done recently at UCLA for our problem and he was fixed."  I would like to read about that.

I do plan on flying out there to get a consult with the doctor at UCLA this coming spring, and as long as my insurance will allow me to, to get the surgery if the doctor says it would be a good option for me. I will plan to spend a couple of weeks in Los Angeles.
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No you are not crazy, because if you are crazy, then that would mean that we are all crazy, and believe me, we are not crazy.

I am very glad you found this site.  It has been a godsend to me and probably for many others, for the information and the support you will find here.

I wish you luck with your doctors and in finding an answer to your problem.
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http://www.************.com/throat_clicking_and_jaw_pain_t119495.html

The man at the bottom posted back at the end of October  2008 in reference to a 45 minute outpatient procedure (the one I will be having) this is what I was referring to.

I dont know if you already told me this.... I forgot to ask if you get a foreign body sensation in throat ever like something is poking or gagging you. I found a really interesting article in the Journal of Larnygology and Otology 2006, 120, 608-609 " Foriegn body sensation in throat due to displacement of the superior cornu of the thyroid cartilage"
on this having to do with the distortion of the hyothyroid complex and persistent foreign body sensation at the hyoid level in the neck due to an indented superior cornu pressing inward on the hypopharnyx. I think for a lot of people on this site this abnormality of the weakest structure of thyroid cartilage (the superior cornu) is what is causing clinical symptoms of foreign body sensation and the clicking as the displaced cornu rubs against the hyoid/tranverse process. Though it may not always be visualized  using a flexible fibre-optic rhinolarynscopic view pressure from the indenting cornu seems like a really logical explanation for a twisting or gagging feeling in the throat it has even been treated endoscopically without an exterior incision though this may not be the safest method.
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************ should be in place of the asterisks that this site for some reason blocks
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steady health
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Thank you so much for the link...I checked it out...I bet the same doctor did has surgery as will be doing yours and hopefully mine!  One thing I thought was pretty good was that he had his surgery in 2002 and he posted in 2008 so he is still feeling good, no return of the problem for him.

I do get a foreign body sensation in my throat sometimes (not very often, but always on the upper left side of my throat), but not like there is anything big in it, or anything that really pokes me, but it does feel like there is a piece of food sticking to the inside wall of my upper throat sometimes and it can get annoying as it makes me want to try to swallow it to get it down, but there is nothing there...I think it is a sensation from a nerve being rubbed on.  Also, on rare occasions when the hyoid is in a certain position I sometimes feel like something is scratching inside my throat when I swallow, but that usually only lasts for less than half an hour, and like I said, not very often.

Hope the info helps.
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yes that is good news as to the foreign body sensation sounds identical to my symptoms It happens to me when i try to sleep with a normal pillow with head to my side or on my stomach the most. I really think its the displaced cornu though causing this but I will only know until after surgery. I have decided just to do the left side to see how it goes  since it is 80 percent of my disability.
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I can't sleep with a normal pillow either.  If I do I will be in for one hell of a bad day or longer (sometimes even an entire week of particularly bad suffering).  I think I mentioned before that I sleep with a special pillow (one filled with tiny microbeads) that I can form to the back of my head to keep it in the same position all night.  I can no longer sleep on my sides anymore because of this problem...I guess because when I sleep on my sides it puts pressure on the hyoid bone on the side that I am sleeping on, and sleeping on my back does not.  I agree with you regarding doing only one side.  I will probably only do my left side since it is approximately 80%+ of my problem also.  Please let me know when you are going to have your surgery when you decide on it so that we can keep in touch and I will be here to talk to you and for emotional support also if you want it.  I know I will need it when I do it..: )  Talk to you soon.
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I met with the team of surgeons again and unfortunately for various personal and medical reasons have decided to push the procedure back until summer when I will not be in school. The main surgeon told me he has done my exact procedure 30 times and that it seems to help the problem and is an overall effective surgery, the other surgeon said that he has done "similar" procedures to this problem a couple hundred times but as to our exact problem ( when they were examining me) the main surgeon said only 30 times but that he operates in this region (larynx) constantly. He took a 3D model of the larynx out and showed me how the superior cornu gets bent or stretched out of position and then starts clunking against the hyoid making the clunky noise this can cause gagging sensations and similar pains I have experienced, it made a lot of sense and the surgeons seemed very competent. He said I was a good candidate for surgery and I was ready to go ahead and do the procedure but I want  to get more tests and a third opinion by my San Diego ENT before I decide to go through with it.  They said their is always a chance of the procedure not working but that they recommend the surgery if I am in pain. There is no doubt this team at UCLA is the one to fix this problem if anyone else is going to fix it, it is one of the best medical centers in the nation, has published research, and according to my research arguably one of the best Chief Head and Neck Surgeons (specifically larynx)  in the World. I hope this information further helps and I still plan on getting the procedure just at a later date
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I would also like to add that the surgeon told me this problems happens in a lot of people for no apparent reason or from trauma, they just walk in with it and do not know what caused it. From looking at the model of the 3D larynx it seemed most likely to be the superior cornu bent hitting on the hyoid, the first surgeon told me he thought this was the most likely given my symptoms and by palpating me on both sides of my neck. But that they would not know until the operation when they could have me move my neck and confirm this, the only other thing that could cause this distinct clunking would be the transverse process, which is one of the main reasons I pushed my surgery back is they found on my mri a mild right disc osteophyte on my C2-C3 vetebtrate which may be totally unrelated and been their for years or an important clue as to what the cornu is rubbing on and where the operation should be targeted towards. I am seeking more opinions on this surgery and just want to make sure I have all the info before I go into it.
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I believe you are right in getting all information possible before going ahead with the surgery.  Is the transverse process you mentioned have to do with your hyoid rubbing on your vertebrae?  Does that make the surgery more complicated than if it was rubbing on the cornu of the thyroid cartilage?

I believe that I will make an appointment for a consult and take a trip out there late spring to get their opinion on my specific situation.  Then I will decide what I plan on.  Lately, I have really not been in much pain at all...most of mine is discomfort of feeling like my throat is dislocated and the annoying feeling I get when my throat pops/clicks when swallowing...I wonder if they will recommend me for surgery even though my pain is intermittent and minimal at this time.  Well, I guess I should take a trip out there and find out.  Please keep in touch...I will too.
  
Happy holidays to you...try to enjoy them the best you can!
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I cant believe ive had this for over a year now ) :  I dont know if the procedure is any more dangerous whether is hyoid or transverse I do know they are both fixable by the superior cornu which in our cases is probably bent out of position creating that horrible rubbing Ive asked so many doctors, brilliant people, everyones advice and it looks like my only hope is this surgery It would be great to keep in touch I know I will be having it sometime between march and the beginning of june depending on how much more of this I can take 365 days was my limit but I just broke that  , if your coming down to LA before summer  I live near UCLA and our cases are so similar and everything I might think that the UCLA Surgeon could figure something out by comparing us or at least mentioning my case to him in reference to yours. Mines gotten slightly worse and I can pop it in and out on both sides when I press inward on command if I have the right touch and I can even see it pop out of place in the mirror when I rotate my head where I can see it jump back into place. Im so sick of this I really think the surgery will work though the problem is just so apparent I dont see how it couldnt be fixed otherwise I wouldnt be getting it done, but we will see let me know if you need any more information or help with your consultation I know we would be dealing with the same surgeons who could learn a lot from our separate cases and very very similar symptoms.
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I had a ct scan performed using the neutral then head turn method mentioned in the previous UCLA- Salt Lake study. The ENT actually can see the cornu (thyroid cartilage) touching the hyoid on the cat scan films on the left side he pointed this out to me. His interpretation is that this cartilage against the hyoid is what is causing the clicking. The right side has a very mild case and the left side much worse completely touching which completely matches with my symptoms. I am so relieved they finally found something on CAT scan that makes sense and can explain my symptoms, I highly recommend you get these images done in the nuetral head turn method mentioned in the study to help visualize this problem maybe they will catch something. For now, it looks like it is definetely superior cornu hitting the thyroid I am going to have a couple more surgeons look at the tape and get their opinions.
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I mean superior cornu thyroid cartilage hitting the hyoid in that last sentence.
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And as for the disc osteophyte all three surgeons feel it is unrelated to my symptoms and had formed years and years ago from playing so many hours of tennis and training for national events, so it is almost certain that is the hyoid hitting the bent superior cornu. Hope this information helps. Talk to you soon.
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I know exactly how you feel...November of 2006 was when mine started and I didn't think I could make it a year...now it is 2 years and 2 months later!  After so many doctors, so much searching and so much disappointment I really hope/feel that this is the year that we will both get relief from this.  Just to vary away from topic for a moment...I know there are worse things to have in this world...but this problem is so little understood that people do not even believe us, let alone have any empathy for the way we feel and what it is like to have to deal with this debilatating problem daily.  Most medical issues that people get are known conditions, so there are treatments, support systems, and even the average person can sympathize and understand those people who have them.  Nobody, except us, understands what we have had to go through, what we have had to endure, and how alone we have felt...up to now.  We have had to suffer and continue to, though hopefully for not much longer, with nobody to understand.  Every person I have told my problem to...including some doctors...just look at you like you are crazy...some people have even laughed and joked about it.  I have had numerous people say to me "learn to live with it"...I wouldn't wish this on anyone, but sometimes I wished that they had this, even if only for a day, and see if they could "live with it".  When people don't understand a problem and have never heard of it, it is very hard for them to have any sympathy.  It has been a frustrating, lonely, and sometimes frightening ride.  A ride that I hope is almost over.  Well, sorry I have been ranting, but I have held this in for so long, I needed to get it out.  Now back to topic...

Just like you, I can see it pop into place when I look at my throat in the mirror!  All I have to do is look left (which makes it get caught) then I turn my head left and slighly upward and I can see the hyoid jump back into place.

I would be willing to bet that if I have the neutral/head turn CT scan they would see the exact same thing as they see in yours.

Hopefully, because it is hitting in a common place, it will be an uncomplicated surgery.

Keep in touch, and I will let you know when I come out there!
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Correction:  All I have to do is look left (which makes it get caught) then I turn my head RIGHT and slighly upward and I can see the hyoid jump back into place.

Just curious...did you mention me to your surgeon at UCLA?  If you haven't, maybe you could give him a heads up that someone in Mass. may be coming to see him in the late spring.

I need to get all of this cleared with my health insurance first and I would prefer to go out there in the spring, since I will be driving to California.

Thanks.
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Yes I know it the most awful thing to live with it has destroyed every aspect of my life at least we know what it is now! and we do have a name for this demon of demons. I am by no means a sensitive person, my pain threshold is actually extremely high and this thing drives me insane.  Mine does the EXACT same thing you describe in the mirror I turn slight left it gets snagged and then up and to the right it catches once or twice and clicks back into motion making this kinda noise a nuckle makes when cracked but wetter and clunkier. For God sakes we can even see it pop out in the mirror the structural abnormality is so APPARENT. It HAS got to be the superior cornu hitting the hyoid in both of us it has shifted out of position, fortunately this problem is very structurally correctable and I know the surgeons can cut out that part that has shifted so that cornu is no longer in contact with the hyoid, only logically the pain and pressure will relieve like in the 11 out of 11 other patients. I have the feeling this problem is very correctable I do not feel horribly injured more like a piece of cartilage has just been bent  out of position, as long as the surgeon goes in and trims it correctly their is no reason I can think of we shouldnt have our lives back. Comparing to you has been incredibly helpful to better understand this condition, and I dont know when you are coming out in spring but I would almost want to have the doctor to compare us togethor and our CT scans because I know it would be incredibly beneficial to both of our surgeries. I have a dream that someday I will be able to sleep with a normal pillow without feeling strangled to death and not wince in pain every day I have to wake up and shave in front of my stupid  mirror and watch my neck pop out of place with every turn. IS THAT TOO MUCH TO ASK FOR!!!! or is the universe just this pathetically cruel?
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No sorry, I Have not mentioned you yet I tell the doctor their are others like us but the only doctor that I have seen who has really seen this a lot (30 plus times) is the chief head and neck surgeon at UCLA, but I really think we should coordinate our surgical consulations somehow because our cases are mirror images if they can see two patients with such similar symptoms, CAT scans, it can really show them a lot. There is a 50/50 chance I will be having this procedure in March, but if I am feeling good enough and can pass school I may wait as long as May 15 by no means no longer than that. Either way we should coordinate! I am not a creepy person or anything dont worry I am still in college even, but I think it is extremely beneficial we meet before our surgeries if you are near UCLA I live right there so just let me know if your interested in meeting/coordinating an appointment.
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This obviously significantly impacts the rest of the quality of our lives which is why I think we should do everything in our hands to ensure the surgeons acknowledge and understand this problem to the highest degree and compare our cases be they identical in person. These are great doctors but often times they have so many patients and ones sicker with cancer etc. that they may not pay as much attention as necessary, and  Compare Cat scans, I dont normally meet strangers but obviously it helps us both for the rest of our lives, so hopefully we can work something out.  
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Sorry it took me so long to reply.  I havent't come to this web page in a few months.  No, I have not progressed into chest pain.  The only symptoms I still have is an occasional  slight burning or tingling sensation inside my throat to the right of my adams apple where I used to have the pain from my hyoid sticking out.  Besides that, I have had no problems associated with it.  How did the xrays and ekg turn out.  Have they given you any answers to the situation?

Meesh64
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Wow, I am so happy to have found this forum, it has given me hope to know that i am not the only one going through this and my fear of it being very very very rare is not the case. I too have this annoying clicking feel in my throat, mine is on the left side.

First off i would like to go on to say that it saddens me to see how many other people are going through this very difficult time.

My symptoms began in the beginning of Dec. '08 after getting over a cold. At first i felt a little swelling in the left side of my throat and i just took it as being a swollen gland and i dismissed any bad ideas of what it could be. It wasn't too bad up until Jan. 9, 2009, then my world turned upside down, all of a sudden out of the blue my symptoms became worse and new symptoms came into play. My symptoms happened as followed;

-clicking feel in the left side of my throat, though not loud, I myself could feel n hear it causing my throat to become very sore while dry swallowing, and sometimes drinking liquids, never happens while eating though, never happens if my head is turned left (THIS HAS SUBSIDED A BIT)

-dryness in the left side of my throat (HAPPENS OCCASIONALLY)

-numbness in the left side of my throat, causing me to feel like food/water may go down the wrong pipe, also numbness in my lips, and somewhat in my left eye (SO FAR IT HAS ALSO SUBSIDED)

-tiring voice while talking, i couldn't talk a whole lot without my throat feeling exhausted and sore (IT HAS SUBSIDED A BIT)

-headaches that happen in the lower back of my head and works it's way up causing dizziness and at times the feeling of almost fainting (RECURRENT HAPPENS 7 OUT OF 10 TIMES)

-aching in left eye, due to headaches

Those were the symptoms that i developed from a week ago. The past 3 days have been such a relief for me as most of my symptoms have gone down but i am still weary of it returning. It has been a very horrible and miserable experience, i am trying so hard to keep the faith and pray that this annoying pain will go away and bury itself deep deep in the dirt. I sympathize with GGCB because i know how depressing it is, i have ran the thought of not wanting to live like this for the rest of my life, because i don't think this is how anyone should have to live their life. BUT i refuse to give up because there are too many things i worry about if i were to leave so soon.

I have tried to go through the possibilities of what may have caused/triggered these episodes and the things that i came up with is maybe coughing too hard could have pulled some tendons in my throat, or it could be from lying down in awkward and sometimes uncomfortable positions for long periods of time or my molar tooth on the bottom left side in which a filling i had in there came out resulting in a hole in my tooth which a dentist drilled in my tooth to take out my nerves to relieve the horrifying pain i was in, then told me to call another dentist to do a root canal but i never did due to my fear of dentists. My main question i want to know is "what causes these symptoms?"

I live in Hawaii and do not know if any other cases have been reported, if reports have been made, were they investigated or even looked into as other possibilities than what they may only be guessing. I do not have a job nor health insurance but i am currently waiting for my health insurance to process with QUEST (government assisted) so i am more scared than ever that i will not resolve this issue.

The findings at UCLA and University of Utah have been amazing and very valuable for future references but unfortunately i do not live in the mainland and it has been bothering me and i am becoming depressed to know that help IS out there but i may never be able to get it due to that simple reason.
I do thank all of you for sharing your experiences and research as it has greatly helped me with my anxiety(due to this stupid clicking in my throat, etc.) and depression i will pray for and every one of you and pray that we will overcome this horrible horrible thing.
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I am 38 and have had this problem for 10 years. After some practice, I have gotten pretty good at manipulating the hyoid back in place. I have talked to two doctors about this, and both of them were kind of like hmm, interesting, pulled out an anatomy chart and started talking about the hyoid. Thanks for the lecture, doc!

Also experience frequent nasal congestion and problems clearing my ears from time to time, but that's most likely allergy related. Such a frustrating problem, and so glad to know I am not alone (although you all have my sympathy).
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your pain referall patterns are very similar to mine. What you describe sounds like an occipital headache that works its way up from the clicking and up the back of the head. The dizziness and headache is something I live with constantly and from all the doctors I have consulted it is most likely the side effect of inflammatory conditions in the hyoid region putting pressure on nerves. I think you may very well have the same thyroid abnormality GGCB and I have, maybe you elongated or slightly displaced your cornu from all the coughing. Hope this helps.
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Thank you for your reply, i think you've helped ease alot of people's minds, i greatly appreciate you sharing this with us, i will do the same also. It was very helpful, when my medical finally comes in and i go to the doctor i will share with them all this information.

For a week and a half i felt as though it was getting better, the pain minimized except for the clicking (i still have to turn my head to the left to swallow), but for the past couple days the clicking feel is felt in the middle of my throat more than the left, sometimes when i swallow it feels like I'm swallowing a lot of air too, also yesterday i had another episode of something swollen in my throat, causing my airways to feel tight and causing shortness of breath. Also, i don't drink as much water as i used to, causing me to become dehydrated, the reason is because i feel like something is grinding/clicking when i drink any kind of liquid, eating is still ok i feel the click maybe once or twice a day when eating. I am VERY afraid of the many possibilities that it may be and considering the lack of knowledge i am in great fear that my problem will never be resolved and like many of you i cannot see myself living with this condition. I guess all i can do is pray and keep faith.

In the theory of the superior cornu cartilage being displaced/elongated, does anyone know if there are any bad long term effects from this? I know there are alot of people who have had this for 10+ yrs, so I'm wondering if there are any complications such as breathing, eating etc.
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One more question i had was, does anyone experience the dryness in the throat on the affected side?
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Yea as for the dryness of throat feels like someone shoved a napkin down the left side of the throat and its stuck. Dont worry I doubt it is anything serious, although you should definitely see a doctor to rule out anything truly sinister. Most likely, you just slightly displaced the cartilage or stretched it out I have read a lot of posts on other message boards where people had this sort of problem start from coughing, vomiting, or a throat illness. Hopefully it will go away for you soon, but if it does not I would get a CT scan in the way mentioned in the study to help visualize any anatomical thryoid variation that could explain the clicking. Fortunately if it doesnt go away, there is that procedure that has proven very effective in eliminating the clicking.
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I thought I should tell you that I saw three more surgeons in the LA area for each of their opinions. And after meeting with all of them and going back to UCLA and showing the doctors my CT scan there, it is pretty apparent that I have elongated my cornu on both sides  (worse on the left side) where it is virtually touching my transverse process. It turns out my problem is the tranverse process and the first ENT I saw thought it was hyoid, but after talking to the doctor's at UCLA ( and the chief surgeon who helped publish the study) and viewing the tapes myself I have that same abnormality in the study where the cartilage gets elongated and then when I rotate my head to the left it jumps off the transverse process. I guess this would explain that jumping I see above the adams apple and below the chin whenever I turn my head to the left and back to nuetral position. Now that the problem has been identified on CT I think their is a really good chance it can be fixed, and I think it might be tranverse for you as well.
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Thank you for replying. The dryness in my throat is one of many of the most annoying symptoms, along with the headaches which have not happened as much as when it first started, knock on wood. I have noticed that the past two days my left ear is starting to hurt a little, a bit of sharp pain, and my ears plug up somewhat. Hope this doesn't get worse. I am thinking to myself, "what's next?"  

Discovering the whole UCLA and University of Utah study on this had me very excited and i hope that one day i will be able to get there and have an experienced surgeon to look into my issue. Unfortunately, money wise i may never be able to get my problem fixed, considering the fact that alot of doctors have no knowledge of this i am losing faith that doctors out here in Hawaii will not have a clue as to what to do. I'm probably being dramatic about it but there are so many fears that are wondering around in my brain that I'm simply not me anymore, and i am very afraid that my relationship will slowly diminish because of it. Well, i will continue to pray for each and every one of you.
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Yes I totally sympathize the amount of symptoms from this click is unreal. Sometimes I feel like I am going crazy because their are just so many weird symptoms but I know it is not mental, that area is just very sensitive and can cause a lot of weird sensations. I hope you can find a good ENT, the surgery can be "relatively simple" to a trained surgeon so be sure to show your doctors that published article it may have something to do with your problem.
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I haven't posted in a little while, but I am monitoring the posts every few days.  I have been handling a different problem this past month.  I was exercising and something strange happened in my head, numbness, tingling, and bad headache for several days.  I ended up going to the doctor.  She wanted to rule out an aneurysm with an MRA and an MRI.  I just got the results yesterday and I do not have one, but they found something unusual on the MRI which she wants me to have checked out with a neurologist (she doesn't think it is anything serious, but she wants it checked out).  As soon as I do this, I will continue to pursue treatment of my hyoid problem, which has actually gotten worse since my MRA/MRI this week.  When I was in the tube, they would not give me anything for neck support and it ended up straining and irritating my hyoid area so badly that I am getting major pain and soreness, like I used to the first year I had this....I can't go through that soreness again...I feel like I am at square one again.  I would like to come out to LA and visit with the ENT together with you, I think it is a good idea, but I probably won't be able to come out until summer.  I do want to know everything about your visits and surgery every step of the way and if you think there is anything I can do from here to help the ENT compare our cases, I will.  If anything changes, and I can come out sooner, I will certainly let you know via this forum. I feel like I am so close, yet so far. I feel like all I have to do is go out there and I will be free of this, but I know deep down it may not be quite that easy.  Sometimes I am afraid that my case may be different, or more complicated, or maybe inoperable.  I know that it is only a fear, and the only way I will know for sure is to go out there and have them look at my problem.  I want so badly for them to help you...you don't know how badly I want this surgery to work for you.   In the meantime, keep posting and I will keep reading and posting back.  

P.S.  I am so sorry for the people who have recently posted on this forum.  There is hope...don't give up.  Some days I feel like giving up...like right now, but don't give up.

To:  808_gurl:  I am on the mainland, but I am across the country in Massachusetts.  I will be trying very hard to get to California this year.  Please don't give up getting to UCLA, Hawaii is closer than I am so try to get there too once you get some medical insurance.

Hope to hear from you soon.  I think I will call the ENT surgeon from here.  I can at least introduce myself and my problem and get their opinion as to how I can go about getting authorization to get examined at UCLA, and maybe what tests I can get done here and maybe sent him the results so that they can take a look at them.  I will let you know what they say and how that works out.
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Exercise always brings on a really bad headache for me and tingling in the head, its because it gets that structure grinding and grinding and the inflammation brings on horrible headache and dizziness.
I still cant figure out why my left jaw pops though and I remember you telling me you got this also since your problem seems very bizarre we both have that too.  I was going to get surgery in March and I want to but I only get a week off and I am afraid I wont be able to recover and will fail the semester so looks like I have to wait until May which seems like forever. Some reassuring news I overheard one of the surgeons talking  at my last appointment about a person with a clicking larnyx just like me, he said the patient was so relieved after the surgery he had even come back to have the other side done it helped so much. I asked if I could call the patient but they said it violated patient cofidentiality which was disappointing because I wanted to talk to the guy who just had it. But at least we know it can work and someone just had it done.
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It sounds like a good idea to phone ahead and ask about tests, make sure to ask about getting the CT scan they mentioned in the study nuetral head turn method . If I were you I would get it regardless it may very well show up as elongated cornu then it will be easier to figure out what to trim off.
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Thanks for your encouragement. I know i have been going through this for only a month but i really feel like it's gonna be a never ending thing, and like you, i too have days where i just wanna give up to the point that i don't even get out of bed til late in the afternoon. I can't get over the fact of reading the many years people have been living with these symptoms.

I know exactly how you feel about fearing that your condition may be more complicated than they've seen as i have stated in my other post, that is something i am afraid of happening also.

I think i may have missed the part about the jaw popping thing. I have it too but not on the same side as the throat clicking, mine is on the right side. Whenever i open my mouth wide, for example eating a cheeseburger/sandwich, my jaw pops toward the rear i guess behind near where the upper & lower teeth meet, it doesn't hurt or anything but i am afraid that it might start soon. I have been thinking about what could be causing this and i am guessing it could be a bad tooth that I've had since almost 7 yrs ago. What happened was i guess a filling i had on my bottom left molar and i was in excruciating pain so i went to the dentist the next day and he said he would have to remove my nerves in the tooth and that i needed to make an appointment asap to have a root canal, but being as scared as i was i ignored it so now i have a huge hole in my tooth(where the dentist drilled down to take my nerves out), and my gums are very swollen, i am convinced i more than likely have abcess (abscess). As soon as i receive medical i will have to suck it up and visit the dentist, because i know this is something very serious.

I will continue to pray for all my fellow clicking larynx sufferers and i hope that you guys get the necessary help you need, which at the same time educates us more and more on the findings and possibilities.
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That is so weird because my jaw popping only happens during eating also. Did yours start right when you had all these symptoms. That is really interesting we all three have popping jaws and we didnt before. All i can think of is that this type of cartilage abnormality in which the cornu is shifted causes me to tense my jaw a lot and put pressure on the tempomandibular joint which could create clicking with eating. But still I find this whole jaw clicking thing very interesting. I also sleep most of my days away except to get up for class. It is awful, the surgery scares me a little because of the location and I have to be awake, I mean
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My jaw popping started when I was around 11 years old.  I fell right on my chin and it pushed my jaw into my head.  Ever since then it has popped.  When I was younger, my jaw would actually get stuck open when I opened my mouth too wide, like when I went to eat a sandwich, or when I went to the dentist and held my mouth open for more than a few minutes.  But now, it just pops but does not get stuck anymore.

The surgery scares me alot too.  Probably because I don't know enough about what they do in there, but mostly because of the area being operated on.  I am hoping that by talking to the ENT surgeon that it will diminish my fears considerably.  I am pretty sure it is going to get rid of the clicking/popping, but I am also afraid to end up with something else because of it (unfortunately I have a pretty active imagination)...but like I said, talking with the surgeon will most likely make me feel better about any after effects (temporary or permanent) of the surgery.

I think he should ask his other patient (the one who just had the other side done too) if it would be okay for you to talk to him/her so that you would have a better idea of what it was like, but to let the other patient contact YOU, rather than you to contact him.  This way patient confidentiality is kept.  I know that if I had a procedure and a doctor asked me if I could share information about it with another patient I certainly would contact the other patient to help him/her regarding what things were like.  Well...if that cannot happen, at least we have each other to compare our symptoms, share our experiences, and just to talk to and offer encouragement and support through this whole thing.

Talk to you later.
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Ya I am pretty confident it will get rid of the popping and clicking also since it is purely structural. Thats a good idea I will try to ask if that patient could contact me, it would be interesting to talk to him. I remember you posting something about how you kept on having numb hands and tingling. Well for a couple months now Ive been waking up with really numb hands like the circulation has been cut off and its because im holding my head in place well i sleep so im sleeping on my hands constantly. This thing makes sleeping so annoying and even with a rolled up towel in a pillowcase it still puts a lot of pressure on my throat area so I guess well im sleeping i bring my arms up to brace my head just thinking this might be happening to you too. Do you by any chance have a link for that special pillow you use. Thanks.
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Anyways I really think their is good hope for us and we have one of the best surgeons in the world so I am sure it will be fine if you decide to get it done. The big clincher for me was finally seeing it show up on CT, right before my eyes after 400 days and finally an answer. Theres really only two things in that area that can create really distinct clunking sound on left right palpation of the larnyx and well if yours doesnt show up on CT scan at least you have me to compare to so you have a better idea of whats going on in there.
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I started really noticing the popping jaw about 2/3 weeks ago. I probably had it happen before but not often enough for me to notice it was a problem. I would sometimes pop my jaw myself but it would never pop on it's own how it does when i open my mouth wide. My jaw pops whenever i eat something that requires me to open wide or when i yawn etc. I sometimes have to open my mouth just a little bit and move my jaw left and then open my mouth in order to open wide enough to put food into my mouth or yawn. This is very interesting, I'm just scared that it will begin to hurt, that's all i need is another uncomfortable symptom. I wonder if anyone else has experienced this, could there be a link?

I totally feel both of your concerns about surgery. I can handle needles, but the thought of being sliced open is extremely scary, i have never ever had surgery and always hoped i would never but of course i guess most people at one point in their lives need it. I guess the thing that is causing the fear is we keep asking ourselves "what if?"

Thank god for this forum, i would have literally gone crazy had i not found it. At least here we can not only find very useful information but we can also find comfort and give comfort as well, that our families/friends would not be able to succeed at because of the fact that they are not in your shoes.
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I think the jaw popping is definitely a symptom of this throat problem I had the same thing start happening since I got the throat click really hard to yawn and when I am eating a sandwich or anything that requires a lot of chewing i get intense popping in the jaw. I was researching this and what I think is that the displaced superior cornu alters the jaw positioning in such a way that I am always tensing my jaw and it aggravates or causes popping in the jaw region due to increased muscular tension this popping didnt start until months after the injury but I am sure it is related. I was wondering if you can elicit a laryngeal click by pressing inward on your throat or with head rotation, or is it only from swallowing that you get this click. The surgery also scares me Ive never had anything done other than my wisdom teeth under general anasthesia so its definitely scary I dont think it will be that bad though, and they have done it many times under local anasthetic and the drugs are really good so you wont remember anything. But I would definitely focus on getting the health insurance as much as I would like to reassure and tell you this just goes away it may not once the cartilage gets shifted out of its normal position it may always click , thank god for surgery though.
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The hardest symptom for me recently though by far has been the dizziness and pressure in the throat. Sometimes I am convinced I am going to faint or have a seizure and this horrible feeling goes away somewhat when i take NSAIDS strong anti-inflammatories which tells me that nerves around the area are getting pressed on by the inflammation. I just wanted to let you know Ibuprofen or Naproxen has helped a lot with the vertigo and episodes of feeling like I am going to faint, I feel strongly it is related to inflammation of the nerve fibers.
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That is one of the most difficult symptoms i have experienced also. I haven't taken any type of medication or anything for it, i probably should take some anti-inflammatory when the area starts to become inflammed. Though it is not an everyday occurance(knock on wood) it is very scary. I also believe the inflammation is affecting the nerves, when i feel as though my gland is swollen i start to get neck pain in the back of my neck on the left side and i have to constantly crack it, then that is when the headaches start to occur. Is your clicking audible? When i first noticed the weirdness in swallowing it wasn't too bad until all of a sudden almost a month later it came at me hardcore, that's when i noticed the clicking feel, it wasn't loud or anything but it was bad enough to where i was thinking it was loud and only happened on the left side, now it feels like it is in the middle of my throat, the severity of the annoying click feel has gone down on a scale of 1-10, it went from 9 to about 4. I noticed some of you posted that you hear a click when you rotate your head or turn your head, i haven't had that happen yet, and hopefully it never will. The thing that i am dealing with now is drinking liquids, i find it difficult because not only does it feel like it might go down the wrong pipe but when swallowing the liquids the clicking feel is there and it aggravates my throat alot, i probably only get a cup of water a day.

With all the researching we've been doing, you'd think that the doctors would be doing twice as much instead of saying there's nothing they can do or they don't know what the next step would be, that is a shame that most just brush it off as if it were nothing, it seems only a few doctors out of how many ENT specialists in this country really looked into this and really studied it. I just want this to go away.
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It seems to me that the main problem might be related to glossopharyngeal neuralgia which has a number of causes, grouped into two broad categories - idiopathic and secondary. Secondary causes would include a fracture or elongation of the styloid process or a calcified stylo-hyoid ligament.
Has anyone tried carbamazepine (tegretol) for control of pain. This is a common treatment for controlling neuralgic pain, for example, trigeminal neuralgia.
annmb
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The pillow I use is filled with tiny microbeads, some stores call them "squishees".  They are about 1 and a half feet long and are tube shaped.  What is nice about them is that they conform to your head and neck, which in my case, keeps my head from turning either left or right as it is important for my head to remain stationary when I sleep to prevent an increase of hyoid pain and discomfort the next day.  The pillows cost between $10 and $20 and you can get them in most stores (i.e., Sears, Walmart, Target, etc.).

Here is link that shows a picture of what I mean:

http://www.footballfanatics.com/COLLEGE_Virginia_Tech_Hokies/browse/partnerID/2595/featuredProduct/239422/source/NexTag_CA

I actually have 3 of those squishee pillows for sleeping.  I have one behind my head/neck and the other two I have on each side of me and I use them to prop my arms/hands to try to reduce the numbness in them.  It does help about 75% of the time.


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I agree with your comment that it is ashame that doctors just brush us off and don't even try to figure out what the problem could be...everyone in this forum has been there.  The doctors that don't believe you, or don't take you seriously, or that don't think the problem is all that bad, or the doctor that has no idea what it is but has no time to help you because all they want to deal with are the problems they can fix.  And they call themselves doctors...healers...it is a bunch of bull.  They don't care because they don't have to live with it.  If it were them that had it you could bet your *** they would be doing everything possible for themselves, but then again, if THEY had this hyoid problem they would not have the problem of other doctors believing them because they are doctors themselves.  There I go on and on again, venting....but right now this is a moot point as there IS a doctor out there who believes us, and wants to help us, and that CAN help us and he is in California and I WILL find a way to get to him and so will you.  So I am going to do my best to not think about those jackasses that I have seen and focus on the future, and the fact that I do not have to search any longer and that this is the year I will no longer have to suffer.  And hopefully neither will you.
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It is really interesting you post about a fractured or elongated styloid process because after over 500 hours of personal research thumbing through medical journals, university anatomy books, that is the only other thing that explains all my symptoms. I asked the UCLA surgeon about an elongated styloid process and he even stuck his hand down my throat to check both sides for this and he said I was normal. I did have calcifcation of the stylohoid ligamnets on my ct scan but the surgeon said this was a normal finding with age and that it would not explain my loud crepitus that can virtually be heard from across the room. Anyways I am glad you sent that post because the very last thing I wanted to rule out before surgery was an elongated styloid process even though I very rarely doubt this is what is causing my clicking and symptoms. You seem to have some knowledge in this area have you had personal experience and do you know what the best imaging study would be to check for an elongation of the styloid process. Thank you
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yes my clicking has gotten very audible(if I press in or rotate my head from left then up and to the right it makes a very apparent clicking noise) initially i thought it was coming from the back of my neck because I didnt know there even was this superior cornu in the throat and like you I felt like I had to constantly crack my neck and then Id get head aches up the back of the neck which are caused from this throat click. I had a couple questions for you. And since Ive seen 15 doctors and read over 500 hours on this area I want to make sure I can help you the most so you dont have to suffer as long as I have. And based on my experience with these symptoms these are the things I though to ask you to help see if it is the same thing or a similar abnormality.

1. Do you have a persistent foreign body sensation in the throat at the hyothyroid level in your neck? (this is the level between the adams apple in men and chin)

2. Has you hearing at all been clogged or plugged up since these symptoms started?

3.  Do you have pressure in your throat region, and or trouble sleeping with a normal pillow?

4. Does swallowing in certain positions make the click go away entirely (i.e. with the head extended to the side with the click)

5. Do you have trouble projecting your voice, varying your pitch, or is your voice sore and raspy, or have you noticed any change in your voice?

6. Are your headaches brought on by jumping jacks or activities like running that jar the area?

7. Have you noticed feelings of fainting or diziness when you bend your head over to pick something up and then stand up quickly?

8. Can you see the click in the hyothyroid region if you look in the mirror and drink liquids, GGCB and I can actually see our cartilage jump out of place by just rotating our heads slightly.




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yes my clicking has gotten very audible(if I press in or rotate my head from left then up and to the right it makes a very apparent clicking noise) initially i thought it was coming from the back of my neck because I didnt know there even was this superior cornu in the throat and like you I felt like I had to constantly crack my neck and then Id get head aches up the back of the neck which are caused from this throat click. I had a couple questions for you. And since Ive seen 15 doctors and read over 500 hours on this area I want to make sure I can help you the most so you dont have to suffer as long as I have. And based on my experience with these symptoms these are the things I though to ask you to help see if it is the same thing or a similar abnormality.

1. Do you have a persistent foreign body sensation in the throat at the hyothyroid level in your neck? (this is the level between the adams apple in men and chin)

2. Has you hearing at all been clogged or plugged up since these symptoms started?

3.  Do you have pressure in your throat region, and or trouble sleeping with a normal pillow?

4. Does swallowing in certain positions make the click go away entirely (i.e. with the head extended to the side with the click)

5. Do you have trouble projecting your voice, varying your pitch, or is your voice sore and raspy, or have you noticed any change in your voice?

6. Are your headaches brought on by jumping jacks or activities like running that jar the area?

7. Have you noticed feelings of fainting or diziness when you bend your head over to pick something up and then stand up quickly?

8. Can you see the click in the hyothyroid region if you look in the mirror and drink liquids, GGCB and I can actually see our cartilage jump out of place by just rotating our heads slightly.





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Sorry about that my computer just froze and sent it twice. Thanks for the pillow link I am going to go order one : )
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To answer your question:

1. I felt the foreign body sensation when the symptoms were at it's worst, it has not been persistent. When i started having the symptoms which were mild (Dec '08), the only thing i noticed was a swollen like gland on the left and feeling like liquids are going to go down the wrong pipe. The foreign body sensation lasted for about a week then wore off along with alot of the other symptoms.

2. Yes, about 40% of the time my ears feel plugged, mainly in the left ear, and i also have a bit of soreness in the left ear, kinda feels like I'm going to have an ear infection.

3. I do feel a little pressure, it feels as if it is swollen on the left side. Sleeping was very uncomfortable for that week when the symptoms were at it's worst. Not as bad now, i can sleep without any pain. Sometimes i feel like not enough air can get through because of it.

4. Yes, when i have to swallow (dry/saliva), i have to turn my head to the left in order to eliminate it, still feels like an abnormal swallow but it takes away the clicking feel. When drinking liquids i have to stick my head forward and up a little in order to drink without feeling the click, most of the times it works but not always.

5. I have had the tired voice happen during the week when symptoms were at it's worst. During that week, whenever i spoke my voice felt tired and my throat felt a bit sore, speaking a sentence or two felt like i had spoken for 2 hours straight. I loved singing, not professionally or anything but i can't project and hit certain areas of the songs i used to. I can now hold a conversation without my voice feeling tired but i am started to get mucus which is of course affecting my voice and causing me to lose my voice until i clear it up.

6. Since having these symptoms i try not to do too much, because i don't want to strain anything in my throat after reading that it may also be tendons that could have torn during coughing or something, so i try to be relaxed as often as i can. I try to keep the activities to a minimum so i do the main things that don't strain anything too much such as cooking and light cleaning, then my boyfriend usually picks up the rest such as laundry etc.

7. No, i don't get the dizzy fainting feelings when bending over to pick up things off the ground.

8. I don't see anything popping out when i turn my head or swallow, i haven't always looked at myself drinking any liquids or swallowing prior so I'm not sure if it may and be minor or what it would look like. I made my boyfriend watch me as i swallowed to see if anything pops out and he said the top part of my neck in the middle moved which i believe is normal so i grabbed that area with my pointer and thumb then lightly pinched and pressed it moving it left and right and i felt it pop/click and he said he seen a bulge when i did that, so i don't know if that is the same thing.
What exactly do you see when you see when you swallow?
How long after the symptoms started occurring did you start noticing the movement?

When i drink water i also swallow air, do any of you experience this too?
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Well all your symptoms match up exactly with me, those are all things I have experienced to some degree. I think yours may be less pronounced seeing it doesnt pop with head rotation, for me that started the day after I injured myself so I doubt you will develop it. The most important thing I found in your reply was the fact that you said you can elicit a click from throat with your pointer and thumb that is very important. If you can re-create that crepitus or click in the area by inward palpation it means you cartilage has in someway been damaged or misplaced and is rubbing on another stucture most likely the tranverse process or hyoid. If you can re create the click this is very good for the surgeon as he actually has something tangible to fix and can see where it is coming from, without being able to reproduce the click makes this surgery much harder and they may not perform it at all if you cant show them that something is structurally wrong there. Hope this helps be careful and gentle but I would definitely check again to see if you can elicit a click with inward palpatation, in seeking treatment this is probably the most important thing for you to show an ENT surgeon.
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And as for drinking water l I have gotten used to it but it definetely feels off, I can see how you say it feels like you are swallowing air that is one way of describing it. I have gotten so used to it though but I do have a similar feeling and I dont drink as much water as I used to because it is somewhat annoying.
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Remember when I said that mainly my popping causes me discomfort, like my throat is dislocating?  Well, for the past week all of the pain and soreness and foriegn body feeling has come back on the left side, even worse than it was in the beginning of this over two years ago.  Does that happen to you too?  Does something as simple as sitting in a bad position or laying down in a bad position cause your symptoms to get worse?  It may be my imagination, but the popping and crepitus is a lot worse this week.  My throat pops, clicks, and creaks in every direction I turn and any way I try to swallow, even when I put my head in positions that used to get rid of the swallowing click.  It is making me very nervous...I hope it is not getting so bad that the ENT at UCLA will no longer be able to fix it.  I am afraid that he will say it is getting caught and rubbing on too many structures and they he will not be able to eliminate all of the problem, or that it will make the procedure far too complicated.  My hyoid and throat structures seem to be clicking on everything, I can't even sleep very well now.  Last night I managed to sleep for about 3 hours.  I hope to sleep a little better tonight, I am exhaused after working all day.  Sleep used to be my refuge, now it is a trial.  Does your hyoid click on multiple things in all head positions or does it click/pop on only a coulple of things?

(By the way, I will be going away next week (starting Saturday) in order to get some rest and relaxation...if I can...and I will try to keep reading the posts on this forum, but I am not sure if there is wireless where I am going to be.  If there is, I will respond but if there isn't, I will respond as soon as I get back.)
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Yes the throat is a very sensitive place basically anything can make mine worse even walking, shaving, talking to loud, chewing anything hard, laying down without head support like you describe in the MRI. This area is so sensitive evolution made it this way it is an important place to protect from injury. The feeling like it is catching on a lot of things well I wouldnt worry too much about that seeing that their are only a few structures that could be causing such a distinct click. Sometimes it does feel more complicated and nastier than one structure hitting another but I had a peroneal tendon subluxation in my ankle from a really minor injury and it felt very nasty  like it was rubbing on all sorts of things and it was just a little tendon popping out of place. The throat is very sensitive in actuality your problem like mine is most likely very minor so I wouldnt worry its not fixable I think there is a good chance seeing their is no major damage to your body. Also you can only injure yourself so bad from coughing, their was no direct blunt trauma to your larnyx, so  it is most likely just a small section of elongated or bent cartilage causing these horrible sensations. Thats all it takes the hyoid region is one of the most sensitive areas in the entire body so even a minor problem can be very debilitating. I feel in our cases its not the severity of the injury thats debilitating but rather the location.
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Can you get the crepitus going on both sides from left to right,  if you push in from the left with your left index and in on the right with your right index can you get it popping on both sides and get the clicking to alternate on command.  This is one of the main ways they examined me to decide if I needed surgery.  
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It helps very little using my fingers to push in and upward, it is a temporary relief that lasts maybe two swallows. I try not to mess with that area too much fearing that i may cause more damage or tearing or whatever it is that is causing this. I do massage the muscles in my neck area a little to relieve some tension that i have in my neck. My symptoms so far has not been as extreme as it was almost a month ago, the thing that happens almost every 2 to 3 days is the feeling of my left gland being swollen and at times while lying down with my head elevated on 2 pillows i feel pressure on the left side of my throat like my air is somewhat being cutoff.
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Girl, don't worry about venting lol, if you have to, I'm here to listen, or read lol, but i know what you mean though and it is very frustrating to know that it is happening.
I am so sorry that you are feeling worse than before. I agree with wildblue98, you shouldn't worry too much about it not being able to fix, i think one of the reasons my symptoms were so EXTREME that one week of hell a month ago was because i panicked, I'm no expert or anything but i believe after i had done a bit of research and especially finding this forum it kind of eased my mind and i think it helped me bring the symptoms under some control. Don't get me wrong i have days where i am so stuck on this that it consumes most of my day, though it's hard i still try to pray and keep faith and laugh as much as i can and do the regular things i did before this happened. I hope that you have a very relaxing getaway and you get the much needed rest you deserve and try not to think about this too much, just enjoy yourself and come back feeling rejuvenated.

If only house was not just a fictional character minus the attitude. Have you guys heard of a guy named Edgar Cayce? I have read about him and heard that he is a phenomenon, i wonder if he would have anything written about this problem that we are all suffering, i think that would be wonderful if he did.
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I do get the crepitus both left and right when I push, but I do have to move my head left and right just a tiny bit to really feel it.  I am sure you are right, that it is fixable and when they see me they will probably say it is not as bad as it feels, it is just that the problem has debilatated me, encompassed my entire life practically, and I have been playing with my hyoid and throat area for so long that I am in fear that I have made it even worse.  I don't even swallow properly anymore.  I have no trouble eating or drinking, but any dry swallowing feels like the muscles are not moving right, like I am not getting a good full swallow.  And even when I nod my head, I get a sensation of a deep pinched nerve inside my throat which shocks me for a second and then turns the left side of my throat and the left side of my tongue numb for a few minutes before the sore pain hits.  Anyway, I have decided that as soon as I get back from my little respite, I am going to call the UCLA doctor and get things rolling.  I at least would like to come out for my consult and testing in April I think, if he can see me then, with a goal of having the surgery (if he thinks I am a good candidate for it) in June/July.  Hopefully the recovery will be easy and I will be able to enjoy not only the rest of the summer, but the rest of my life.  I think it may be a good idea for me to start writing down all of the things I need to tell them so I don't forget anything, like what head/neck movements cause what sensations, etc.

Thank you wildblue98 for all of your support and encouragement.  I really need it.  You help me remember that I am not alone.  Talk to you soon.
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Thanks for understanding....you can vent whenever you want to too...LOL.  I have had this for too long to panic about it...I am just so frustrated...it has always been one step forward two steps back during this whole ordeal.  I am very impatient impatient...like I was on this very very long journey that I didn't think was ever going to end and then all of a sudden, you see your destination on the horizon...those last few miles seem longer than the entire trip, you just want to get there and to have it be over, a distant memory, but you feel like you will never get there even though you know you will.  I am lucky to have you and wildblue98.  You guys are the nicest people I have NEVER met...LOL.

I have never heard of Edgar Cayce...I will look him up on the internet.  Thanks for all your info.  Have a good one!
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I actually get the tongue numbness too and numbness in the lips if I dont readjust or get bad positioning. I have to turn my head slightly also to get crepitus but that is a really good sign you have and its shows its almost without a doubt the same thing I have in the same spot and they say it can be fixed. Well be sure to give me a heads up if you are coming out in April it would be great to talk to you before my surgery.
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I was lifting some boxes around my apartment today and now I am really short of breath definetely aggravated my problem. Do you ever get this where it is hard to breath up the left side of your throat where you feel the pressure it makes my air way feel like I cant suck the air up right its so annoying well I guess I will just call it a night. I wish Edward Cayce could help us but he was a psychic healer and I wouldnt count on that to help fix you, plus we know what it is we dont need his help, its a thyroid cartilage abnormality we dont even need house either : )
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