Not sure y...but yeah I knew that too...we can hang up a shingle...huh?
I know I have some vascular tendencies. I had varicose veins removed a couple years ago and my Dr. said I was 1 of the 3 worst cases he had ever seen and the others were elderly. I now know that EDS causes that as well. I wonder why he didn't know....
Good idea : )
Well this is for those with Heart issues,...but EDS causes the skin and muscles to thin, this is y some have ruptures...like my friend Dayna just has been air lifted for a ruptured colon....ne of our organs can do this depending on how EDS is affecting us...well caffeine is causing the BP to pump harder against thin and weakened muscles...so, it can have disastrous effects.
Again is depends on how it is affecting us, I have yet another EDS friend with collapsed airways that is on forced air to keep her breathing....
I do not know if with the type I have if it would affect me, but my NS told me to avoid or cut back on caffeine, something I rarely have so I do not worry about it....but I was told...so I was surprised that this girl was not.
Selma I posted this question on the same thread in chiari forum but thought I should put it here too. How does caffeine affect chiari? I had not heard this and drink a lot of diet pepsi...and coffee.