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Ehlers-Danlos Syndrome

User Group

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620923_tn?1335125657
MissyPrissyNov 07, 2011
selmaSNov 05, 2011
enzymeloverNov 05, 2011
3
By selmaS
Hi all here is a link to several videos by a Dr that has EDS and shares info on this condition. I hope these help...
1340519_tn?1305170302
selmaSMay 18
1
By CB1122
This is more for support of others with EDS and/or other rare diseases... created for May since its EDS awareness mon...
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selmaSMay 18
3
By sickforoverhalfoflife
Hi there, I'm not sure yet if I have EDS or not, but I'm having a hard time finding support forums and places on the ...
700067_tn?1332992883
selmaSApr 02
2
By bledpub
Just recently diagnosed and still waiting to get in to see the rheumatologist. It's going to be a few weeks. In the m...
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selmaSMar 21
1
By seamatty
Ok I need some clarification...it seems from what I read online there ultimately isn't much difference between Hyper ...
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selmaSMar 12
1
By jonnykino
So my skin is quite stretchy. Most noticeable on my face/neck. I don't bruise easily, I don't have any joint pain, I ...
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selmaSFeb 22
1
By nsalem656
Selma showed me the link to this page from the Chiari forum. I'm not a hundred percent sure I have eds. I do know tha...
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selmaSJan 30
selmaSJan 27
3
By michelle669
I am a mid 30's mother of a 6 year old boy and after a very long life of ignorant doctors and hospitals, I have been ...
1427565_tn?1327433809
selmaSJan 25
1
By jane_pain
Hi after never hearing of my HMS condition, i decided to research and see if there was a book that could inform me mo...
1427565_tn?1327433809
jane_painJan 24
suzsibsJan 21
jane_painJan 15
selmaSJan 10
jane_painJan 10
8
By jane_pain
Hi there, Just before Christmas i was diagnosed with hypermobility syndrome, and after 13 years of looking for ans...
1427565_tn?1327433809
jane_painJan 24
suzsibsJan 21
selmaSJan 16
3
By jane_pain
Hi there, I have HMS and have been newly diagnosed, now i know what i have i am trying to help myself as much as p...
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jane_painJan 15
kittykat19891Aug 26, 2010
selmaSAug 25, 2010
kittykat19891Aug 24, 2010
springeedingeeAug 05, 2010
7
By pain101679
I am 15 and my mom refuses to belive there is something wrong with me, but my doctor says i may have Ehlers Danlos al...
1823499_tn?1329334955
jane_painJan 15
MissyPrissyNov 14, 2011
selmaSNov 11, 2011
3
By Sexybare
Was wondering if some of ya'll could give me some info. How were you diagnosed and what are different symptoms? Im ju...
1903798_tn?1333908888
selmaSJan 09
2
By Rylanesmom
I meet with my EDS Dr tomorrow:)
1427565_tn?1327433809
selmaSJan 08
1
By jane_pain
Hi there, I have been newly dignosed with HMS after 13 years! I am 25 and i am thinking about starting a family in...
1168938_tn?1327157832
selmaSDec 31, 2011
2
By suzsibs
Just wanted to wish you all the best for 2012. Suz
620923_tn?1335125657
selmaSDec 22, 2011
1
By selmaS
http://www.medhelp.org/health_pages/Neurological-Disorders/-What-is-Ehlers-Danlos-Syndrome-EDS/show/730?cid=186 Pl...
1903798_tn?1333908888
selmaSDec 14, 2011
RylanesmomDec 13, 2011
selmaSDec 13, 2011
RylanesmomDec 13, 2011
RylanesmomDec 07, 2011
6
By Rylanesmom
Selma is there a list of Drs for EDS?
620923_tn?1335125657
MissyPrissyNov 14, 2011
selmaSNov 09, 2011
MissyPrissyNov 08, 2011
selmaSOct 25, 2011
suzsibsOct 25, 2011
9
By selmaS
Hi All... what type of joint pains do u have... .how long does it last... d...
1168938_tn?1327157832
MissyPrissyNov 06, 2011
MissyPrissyNov 06, 2011
selmaSSep 27, 2011
suzsibsSep 27, 2011
selmaSSep 26, 2011
9
By suzsibs
I've just found out I have joint hypermobility. What tests should I have to find out which type I have? So far I've d...
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