Aa
Just need opinions/thoughts - Getting so frustrated
I've had bad and irregular periods since I was 12. When I had a cycle I bled like crazy (we're talking a super tampon and pad within an hour) and huge clots. The shower looked like a murder seen when I was in there. When I had sex (sometimes it still happens, but I'm sooo careful with positioning ect. now) it hurt sooo bad to the point I would have to stop and go into the bathroom to get sick b/c it was so bad and made me extremely nauseous. Of course, no one believed me.
My first GYN appt. was when I was 14. Apparently I was too skinny and that's why I had so much pain. His solution was to put me on Depo Provera...for NINE months I bled every single day. After I went off that, my mom took me to another GYN. His diagnosis was a fallopian tube infection. Antibiotics and BCP's. No help obviously. I started just going to my family doctor where he believed me, but couldn't' do any surgery b/c he was only a family practitioner. We went through numerous types of BCP's. NOTHING helped.
At 18, I finally found a GYN who believed me. She did an u/s and found a large endometrioma on my right ovary. I went in for surgery and gee, there was severe endo and 1/2 my right ovary was taken out b/c the cyst was so large. I had another surgery 6 months later. More endo, more cysts. I went to see a specialist and was told to "Find Mr. Right, get married, and get pregnant." Luckily I had already met my husband. I had another surgery in 2006, got p/g a month after with IUI.
We waited 6 months after the birth of our son to start trying again. I had another surgery in 2008, miscarriage in 2008, numerous rounds of clomid and IUI's every month and 1 cycle of injectables.(The injectables left me with a 55x55 cyst on my left ovary, not sure if it's gone, new GYN hasn't even done an u/s on me.). Finally in May 2009 I got p/g again and we had a beautiful daughter Feb. 2010.
Neither one of my pregnancies helped control my endo or my pain. I started seeing a GYN and she refuses to give me a hysterectomy b/c I am too young (25) and what if something happened...I have given her ALL of my medical history, told her of all my pain. Her solution is 1 year of Seasonique BCP's. After 7 months of it, I have no relief whatsoever. I've started noticing a lot of pain in my bowels (like internally) especially while on my cycle. It hurts sooo bad to go 2 that I dread going to the bathroom. I've also had that same pain mid cycle. I'm not sure what's going on there...(Any thoughts?) Since Christmas, I have started keeping a pain journal every single day of what I feel like. I have 2 more months left of this pack of Seasonique.
Should I just make an appt. after 9months of BCP's and give her my journal and tell her I STILL want a hyster? Have any of you had a complete hysterectomy? Do you have relief? What did/do you feel like? What about the intense bowel pain? What's going on? I just really need advice and support. DH is supportive and there for me, but just doesn't understand everything you know? Thoughts, opinions and advice is greatly appreciated...
~dnikki~
My first GYN appt. was when I was 14. Apparently I was too skinny and that's why I had so much pain. His solution was to put me on Depo Provera...for NINE months I bled every single day. After I went off that, my mom took me to another GYN. His diagnosis was a fallopian tube infection. Antibiotics and BCP's. No help obviously. I started just going to my family doctor where he believed me, but couldn't' do any surgery b/c he was only a family practitioner. We went through numerous types of BCP's. NOTHING helped.
At 18, I finally found a GYN who believed me. She did an u/s and found a large endometrioma on my right ovary. I went in for surgery and gee, there was severe endo and 1/2 my right ovary was taken out b/c the cyst was so large. I had another surgery 6 months later. More endo, more cysts. I went to see a specialist and was told to "Find Mr. Right, get married, and get pregnant." Luckily I had already met my husband. I had another surgery in 2006, got p/g a month after with IUI.
We waited 6 months after the birth of our son to start trying again. I had another surgery in 2008, miscarriage in 2008, numerous rounds of clomid and IUI's every month and 1 cycle of injectables.(The injectables left me with a 55x55 cyst on my left ovary, not sure if it's gone, new GYN hasn't even done an u/s on me.). Finally in May 2009 I got p/g again and we had a beautiful daughter Feb. 2010.
Neither one of my pregnancies helped control my endo or my pain. I started seeing a GYN and she refuses to give me a hysterectomy b/c I am too young (25) and what if something happened...I have given her ALL of my medical history, told her of all my pain. Her solution is 1 year of Seasonique BCP's. After 7 months of it, I have no relief whatsoever. I've started noticing a lot of pain in my bowels (like internally) especially while on my cycle. It hurts sooo bad to go 2 that I dread going to the bathroom. I've also had that same pain mid cycle. I'm not sure what's going on there...(Any thoughts?) Since Christmas, I have started keeping a pain journal every single day of what I feel like. I have 2 more months left of this pack of Seasonique.
Should I just make an appt. after 9months of BCP's and give her my journal and tell her I STILL want a hyster? Have any of you had a complete hysterectomy? Do you have relief? What did/do you feel like? What about the intense bowel pain? What's going on? I just really need advice and support. DH is supportive and there for me, but just doesn't understand everything you know? Thoughts, opinions and advice is greatly appreciated...
~dnikki~
My GYN I have now does not want me to have another laparoscopy since I've had 4 already. I haven't done Lupron a.) I don't want the side effects - it seems like I get the worst of the side effects there is... b.) My insurance doesn't cover it and I don't have 3k for the course of it. I almost did the Mirena, but I have a huge family history (not myself though) of depression and anxiety. I did plenty of research on the Mirena and decided it's not the best course of treatment. I did the Depo Provera for 9 months, but bled 9months straight on it - and I had MAJOR mood swings :/ I'm going to finish my last 2 months of this current BCP and hopefully in the meantime I'll be able to find a specialist. I went to the endo assc. site and the closest one to me I think is NY.
You need to find a doctor that specializes in endometriosis and will listen to you. If you are having bowel problems- especially pressure- you most likely have endo tissue attached to your bowels. I have had that issue and I have had the tissue attach to my bladder. Have you tried a course of lupron? You may also want to consider an IUD - Meridian or try Depo again. I had my first laproscopy when I was 17- and had my 6th in 2008. I have a great doctor and we have tried everything there is to try- and when pain gets too bad- she lasers it out. Birth control pills never worked for me- Depo worked the best for me- but everyone is different. I hope you can find the right doctor- not being listened to or being dismissed is very frustrating. You most likely need to have laporoscopy again to remove the tissue causing problems. Good luck!
It wouldn't hurt to make a follow up appointment concerning those tests and just ask them about PCOS. I have come across women with PCOS who simply don't make enough estrogen but are like you and have too much testosterone and not enough progesterone. With PCOS possibility, they should've checked your TSH as baseline protocol. Usually the thyroid is off, too, with PCOS. Protocol says to test the TSH and if it's off, then test the other two types of thyroid, T3 and T4. This could certainly explain why so many things are acting so strangely for you, as the thyroid and its cousin, the parathyroid, are among the master glands of the body.
I don't have PCOS myself, but I have symptoms that told me to check into it. Others here do have PCOS, so they will know more than this basic information than I do. While you're checking your thyroid levels, check your adrenal (cortisol) levels. These are the glands that sit on top of your kidneys. They actually work in conjunction with the thyroid. When everything is working correctly, the two adrenals and the thyroid play a very finely tuned balancing act. You'll hear more of this in natural medicine than in conventional medicine, but if they didn't check it this last time, they should check the adrenals.
I haven't dealt with the hysterectomy issue myself. I may have an undiagnosed case of endo yet, according to the information I learned about that I think I posted on one of your other posts. Or, at least I think it was you. Anyway, Google Endometriosis Association and you'll find their address. I found it interesting that they were talking about something called ablation that doesn't sound like hysterectomy to me, and they were saying that you really should have an OB/GYN who specializes in endo. I was also surprised to find out that even adults can have it and not be diagnosed 'til much later. According to the website, and it makes sense now that I think about how doctors dismissed me, many of us get turned away when we're looking for help with this awful pain, being told that painful periods are normal. Well, there is pain, then there is pain. Some girls with endo pass out, so it's not a joke.
I don't have PCOS myself, but I have symptoms that told me to check into it. Others here do have PCOS, so they will know more than this basic information than I do. While you're checking your thyroid levels, check your adrenal (cortisol) levels. These are the glands that sit on top of your kidneys. They actually work in conjunction with the thyroid. When everything is working correctly, the two adrenals and the thyroid play a very finely tuned balancing act. You'll hear more of this in natural medicine than in conventional medicine, but if they didn't check it this last time, they should check the adrenals.
I haven't dealt with the hysterectomy issue myself. I may have an undiagnosed case of endo yet, according to the information I learned about that I think I posted on one of your other posts. Or, at least I think it was you. Anyway, Google Endometriosis Association and you'll find their address. I found it interesting that they were talking about something called ablation that doesn't sound like hysterectomy to me, and they were saying that you really should have an OB/GYN who specializes in endo. I was also surprised to find out that even adults can have it and not be diagnosed 'til much later. According to the website, and it makes sense now that I think about how doctors dismissed me, many of us get turned away when we're looking for help with this awful pain, being told that painful periods are normal. Well, there is pain, then there is pain. Some girls with endo pass out, so it's not a joke.
Yeah, got that too. I make too much testosterone and not enough progesterone - I don't think I had my thyroid tested, but when we were TTC they checked basically everything so maybe they tested it.
Has anyone tested you for poly cystic ovarian syndrome? Have you had your thyroid tested?
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