Banzel and Felbatol anyone take these.

[dollyn]

My son who is 11 has seizures and the medicines he is on and his VNS have not stopped his seizures.

The Doctor today told us to think about Adding one of these Medicines.

We believe my son has LGS .

And we worry about the side effects to these drugs like we do all the other drugs he is on.

Any info would be very helpful.

Thank you

[dollyn]

I am sorry that your son and family have to go threw so much.and I also know how the Doctors can be in NY.

My Son seizures are on both sides of the brain.

[marjj]

My son is 18 and has had seizures do to an illness at 15. Another story in itself. He is on 3 different meds and none r working. just makes him loopy. We moved to Florida from NY and am seeing a new neuro doc who thinks he may be able to stop the seizures. We r schedueled to go next friday for a test in the hospital. Not such a nice test. They have to bring on a seizure to diagnose what part of the brain is damaged then he will let us know if he can do surgery to repair "scary" or a new Implant better then the vns. Not sure the name of it but its kinda like a pace maker for your brain. It is implanted in the brain near the damage area and stops the seizures. I think for a while u need to still be on meds but if all goes well the meds will slowley be weened off. Good luck.