Is this epilepsy?

[iris986]

Since 1997 I had started having oculars without migraine and then suddenly this year something changed. The auras are gone and now I get what starts out like the feeling of fingers being run up the back of my head only to feel as if its going through my brain and spreading  and then I get what feels like someone taking their fist and pushing on either side of my right and left eye and pushing them together and the I lose total focus of my eyes.(all this happens at the same time) these things only show up once or twice a week.

I also still have blind spots that show up on the left eye in any given place on the eye these usually show up every day, several times a day. I also started having memory problems and stuttering trying to find words two weeks before the EEG was done, which also started after the finger thing feeling in the hair and brain and the loss of focus. these last 10 to 15 minutes. The ones with blind spots are usually only there 1 to 3 minutes.

I have been to 2 neurologist and they can't seem to come to a decision. First one did a EEG and said I had a focal over left and right temporal lobe with the left being the worst, MRI was normal.

2nd Neurologist just said today that "Memory is caused by old age yet it didn't show up until 2 weeks before EEG, severe screaming muscle spasms up back, down arm across ribs and up chest that feel like I am being squeezed and I start hyperventilating because I feel like I can't breath are stress. Yet I also get arm, leg and feet and toe spasms that are horrible. And eye things are migraines.

I have Undifferentiated Connective tissue disease, Raynauds, Livedo Reticularis, Hypothyroidism and had thyroid removed due to thyroid cancer, Mitral valve prolapse, hypoglycemia, Dry eyes,

I am on B-12 shots once a month for severe deficiency, Vitamin D 1000 IU a day for severe deficiency, Synthroid 75mcg, Estradiol 1 mg, Folic Acid 4 mg, Methyl/Prednisone 2 tablets a day, protonix once a day.

[iris986]

The docs are testing now for polymyositis now on top of the seizures.

[Addie2U]

Spoogie -

I don't know what your job entails - but I've been driving for over 40 years, and I have grand mal seizures - well, I HAD grand mal seizures.  I have been seizure free since 1989.  You can still have epilepsy and drive . . . but your seizures MUST be controled in order to be able to drive.  Some States require you be seizure free for 1 yr - others, it's 2 yrs and waaaaaaaaaaay back when I first started driving, it was 5 years.

[spoogie712]

I recognise some of the symptoms you describe. Particularly the visual thing associated with pressure in the front of my head, sometimes going down into my upper teeth. Mine seems to be made worse by movement, particularly driving. I haven't been told not to drive tho'. I also get sensation of trickling over my scalp or other places in my body randomly. I am hopefully having an EEG in next 2 wks. My MRI scan showed a cystic lesion in my R temporal lobe.
Interestingly, although prob not relevant, I also had thyroid cancer 20yrs ago.
So what did they say was significance of the abnormality on your EEG did they suggest any treatment? My first neuro started me on lamictal as a "therapeutic trial" without EEG which I think made my episodes more frequent. 2nd neuro told me to come off it and last few days I have had hardly any episodes. So will wait and see what EEG shows. Mixed feelings really cos on one hand I want a diagnosis so I then know what I am dealing with but on the other if I am diagnosed with epilepsy then won't be able to drive which has big implications for my work.
Anyway hang in there and keepbothering the docs til you get some answers.
Spoogie x

[Addie2U]

Get a new doctor.  One of the seizures I had was different from all the others.  I could remember convulsing (yet, I should have been unconscious) and looking at the bottom of the refrigerator (which is where I went down).  I know after a seizure, I would ache all over . . . so what you're feeling may be what I should feel.  It really does sound like a form of epilepsy.  

I'm serious when I say get a new neuro.  'Cause no one is gonna' care about your health, but you.