What next?

[coleenb]

My 3 year old nephew has generalized seizures.  He has had them for 18 months now.   The dr said that his seisures are almost constant.   He has been on many types of meds and is now on the Kenetic diet.  He is the shell of a once happy little boy.  The diet makes him tired and hungry.  His seisures have gotten less but he still at least 10 a day.  He does not talk and now hardly smiles.  Is there something else we should be doing?  He has been with the same dr. the whole time.  Should he get a second opinion?  

[dowma]

I'm so sorry to hear about your nephew!! It must be terrible for a child tohave to experience that.  I'm sure others and the good doc on the site can give you more support, just wanted you to know that we are all here for you.  I agree that the Epilepsy Foundation has wonderful information and hopefully you will find some peace and insight reading it.
Sincerely, MB

[brainpain]

i am a 35yr old woman but when i had seizures as a teen my neuo told me to make sure i ate well and dident go hungery the meds just worked better if i ate good.is he on any meds or just the diet?being even a little hungery makes you feel awful.did you mean he has seizures 10 times a day?if so i would take him to another neou.he is so tired from having them.they make you to tired to talk ,play,just to tired to care about anything but lay around and sleep.i would take him to a neou for a second oppinon.finding the rite meds to stop them would work wonders.i would question the diet if hes still having them,just helping a little i would try all meds till found one to control them.has he tryed dialtin?if you get them in control he will be a happy kid again. good luck

[spastic]

As a friend of the forum I can only give advice, if you are not comfortable with the current dr, I would definately get a second opinion.  It is so hard when its a little one going through this, I feel for you.  The Epilepsy Foundation has great information and a section for children.  My heart goes out to him.   With him being so young, I would get the second opinion.  I'm sure Dr. Abhijeet will give you more insight than I.  Good luck, Hon.

Your Friend,

Spastic Ada