Why has my temporal lobe eplepsy changed over the years?

[bella12345]

I have a cyst and a scar on my temporal lobe. Can't remember if it is the right or left temporal lobe. When I was 23 years old I would get a tingling sinsation that started at the tip of my toes and worked its way up my body. When it got to my nose I would get a peculiar smell. I fell 2 stories onto concrete when I was 7 years old and there is a definate smell when you bang your head on concrete. This is the smell I would experience. After the smell I would go into dejavu. This left me tired, nervous, and confused. I no longer get the tingling sensation or the strange odour. I just get this nervous feeling that it, the seizure is going to happen. It is still similiar to dejavu. It last longer and I have more seizures when I am under stress. I can't take the medications and a doctor recently asked me if I would consider surgery. I'm thinking about it. These seizures didn't happen until I got pregnant even though I was born with the cyst. Why have my seizures changed?

[blucrab]

I am so sorry you are going through this.  However, I was in a car accident in  '93 and started having the same results you are having.  My aura starts with a tingling in toes and then my feet go numb, all of the sudden it feels like what I describe as a million bugs crawling up my legs at that point I know here we go again.  I have been doing so well in the last 13 years and then at the end of April of this year they started again.  I am wondering if this has anything to do with menapausal symptoms, as I had not had my monthly from 7/08 and then 5/09 had one.  Does anyone having any ideas?

[Barb1234]

My guess is that your seizures have changed because you have changed  You're older than you were when this all began and all of you changes over the years.  How about that cyst and scar.  What are they from?  I had right temporal lobe seizures for years and had surgery.  12 years ago I had a right temporal lobectomy.  I still take medications but the difference for me is that now they work.  People say "It's such a shame you had that surgery and it didn't work."  I say "It worked because now the medications actually work"  I took many different medications without great success.  I'd take my medication religiously but still at times had seizures.  Now, I take medications, but no seizures!  My seizures sound a lot like yours, that's the nature of temporal lobe seizures.  I started with tingling and numbness in my left hand and it would progress to my entire right side and right side of my face, a sickening feeling in my tummy and then the usual chain of events.  Enough!  I'll shut up.  Take care,  Barb 1234