EBV and neuro sx

[skarey]

Hi everyone,
   This is my first post on this forum.  I've been having neuro sx starting in May 07 (lasted about 5 months) then back again starting March 09.  I am still feeling terrible.   My sx include:

Occasional numbness in toes
twitching
Dizziness
brain fog
whole body weakness
fatigue
bladder issues
ear pain/aches
whole body aches/pain (sometimes shooting) Comes and goes and is fleeting
burning in shins and feet
cold feet.

These sx come and go and aren't always present.  Some days are good some are bad.

I've been worked up for MS and have negative MRI's and normal neuro exams (besides brisk reflexes)
I'm being tested for Lyme Disease (still waiting on results)
Auto immune is neg

Today I was just told that I have tested pos for EBV.   I don't recall having mono, however remember being real sick in college with sore throat, fever, etc... But was never dx'd with EBV.  Could EBV be causing these sx?  

I am very confused and in need of answers.
  thanks for your help.
  Skarey

[jason80]

skarey,
My story is also similar to yours and a few others.

The EBV titers can vary a huge amount, there is positive, mod high, very high, and off-the-charts high.  The higher the number the statistically more likely that folks will respond to treatment. Also, some IDs may think that your numbers are signficant while others may say they aren't.

plateletgal,
I'm confused by your comment that skarey's symptoms sound common to FM folks. When I look at the symptom checker it seems that FM symptoms are much more restrictive in nature -- such as the pain being more a deep soreness in particular locations. I've seen many doctors but none I recall mentioning FM even though my symptoms match skarey's fairly well.

[ginak]

We have similar symptoms and I have high EBV numbers. I have conflicting/confusing results for lyme, which I doubt I have. All I know is that I have EBV and low vitamin D. I am glad to know that I am not the only one going through all of this.

[m300]

If you are concerned about Chronic EBV, I would ensure your EBV testing includes the Early Antigen antibody which determines if the virus is still active in your system.

The other EBV labs basically tell you that you had it, once positive always positive.

[PlateletGal]

Well your symptoms certainly are symptoms that are often seen in fibro patients. If you continue testing negative for lyme disease, then I would consider googling, "Co Cure's Good Doctor List" for a list of physicians in your area who frequently diagnose and treat fibro & CFS.

I'm happy to hear that you are having your lyme test repeated. You may want to consider getting a third test done, if your second test is negative. There are many people who have lyme disease who test negative... more than once. There is a preferred test for lyme disease, but insurance may or may not cover the test. Here is the info:

Recommended Lab: IGeneX Laboratories of Palo Alto, CA (http://www.igenex.com/).

[skarey]

Hi!
  I haven't either totally ruled out yet.  I've had one Lyme test done that was Neg, but my dr is redoing it with Western Blot.  I asked about Fibro but he said my sx didn't match?  This confuses me cause I thought my sx resembles Fibro as well.  

Thanks!
  skarey

[PlateletGal]

Hi ! I saw and responded to your other post in the lyme forum. Have you had lyme and fibromylagia ruled out yet ?