Is EBV going to kill me ??

[LivingDead101]

14 months of being extremely ill, Dr finally tested me for everything including HIV, it came back positive only for EBV, l have low white cell count, high B12, slightly high pottasium level. I'm not getting better I'm still as sick and the fatuige is horrible ! I'm only exsisting, this is not living! I was so active before this took me out. Please help me understand, is there anything I can do to help myself. Please Help. Am I going to physically Die from this ? Because I am so sick, I feel like it. My life as I knew it has already died.  Its hard to believe there's nothing I can do, as my Drs tell me, except live with it. No I can't just live with this ! It's a nightmare ! If there is help out there please tell me. Someone please talk to me about this. I'm am so isolated, and afraid, I have  no family, no friends since I became ill. I've lost everything, living on SSI now, get meals on wheels, that's it, and aid at sheltering arms picks up my medications for my other Heath issues I've had for years, that I've never had any long term problems with at all. I now ride the medicade bus to get to appointments, thats rough ! It just wares me out. Bassicly I just sit here in this house, alone and sick, not knowing what to do or think  ? Please Help.

[ps11]

Hi mkh9,
Can chronic lower back pain (also hip pain) be a symptoms of mono?
can it be caused with mono?
Thanks

[mkh9]

See my answer in the other post on the infectious disease site.
mkh9

[Sunshine965]

I saw ur tounge pics they look exactly like mine after giving oral! I feel so disgusted. Did you know if thats hpv or ebv caused the irritated taste buds and the white borders?? God let it be whatever it is but i dont want to be contagious. Im getting married soon:(

[mkh9]

Yes I agree that xerostoma and HPV are not linked. I was referring to getting screened for oral cancer just to be safe. But, everyone should get screened by their dentist annually anyway. If you have a past infection and you are referring to reactivation of EBV and trying to see if you can test for that you can't. You will always have antibody to it once you have it. Most adults (about 90-95%) have antibodies to it. You don't have symptoms of mono so it isn't a new infection. Actually lymphocytes are not high with lymphoma they can be low but they would be very low (600). It would be good to keep an eye on them to make sure they don't go lower. You haven't lost a lot of weight or anything like that?  I think you are clear of HCV. It depends on how long ago the exposure was. You can test again at about 8-12 weeks after exposure. The antibody test is fine if you wait for the antibody to rise during this period.  I wouldn't really worry about these it is just to "rule them out". The reason I brought the HCV up is your liver enzymes go up and the white blood cell count goes down. But other things can cause this. Also, the white count isn't that low as you mentioned. If negative then I'm not sure other than to see an infectious disease doctor. But you can get clogged salivary glands for a lot of reasons. Even mumps and other viruses like that can do that.
mkh9

[ashler1977]

Not on medications btw.

[ashler1977]

Thanks for tour reply. Details of my case are in my journal.

I have not found a single papper linking HPV and xerostomia, instead I have found several linking HIV and HCV to it. I, however, have tested several times for HIV with negative results and my CD4/CD8 ratio is above 2 (in HIV is commonly below 1). I don't drink alcohol. Tested several times for HCV but only with antibody tests so I will consider doing a PCR test.

How do I check if an EBV infection is "active"?