Is EBV going to kill me ??

[LivingDead101]

14 months of being extremely ill, Dr finally tested me for everything including HIV, it came back positive only for EBV, l have low white cell count, high B12, slightly high pottasium level. I'm not getting better I'm still as sick and the fatuige is horrible ! I'm only exsisting, this is not living! I was so active before this took me out. Please help me understand, is there anything I can do to help myself. Please Help. Am I going to physically Die from this ? Because I am so sick, I feel like it. My life as I knew it has already died.  Its hard to believe there's nothing I can do, as my Drs tell me, except live with it. No I can't just live with this ! It's a nightmare ! If there is help out there please tell me. Someone please talk to me about this. I'm am so isolated, and afraid, I have  no family, no friends since I became ill. I've lost everything, living on SSI now, get meals on wheels, that's it, and aid at sheltering arms picks up my medications for my other Heath issues I've had for years, that I've never had any long term problems with at all. I now ride the medicade bus to get to appointments, thats rough ! It just wares me out. Bassicly I just sit here in this house, alone and sick, not knowing what to do or think  ? Please Help.

[mkh9]

It would be good for you to see if another doctor can take a look at your tonsils and see if that it due to something else or the EBV reactivating. Also, a thought is to see where you are with a EBV test that shows the Early antigen, nuclear antigen and Viral capsid antibody IgG and and IgM (just to see).  Almost everyone has EBV IgG by adulthood. So that isn't really a diagnosis other than the doctor going by symptoms. The monospot isn't a good test either. So this one would at least see where you are now. It can't tell if you are re-activating but would give you a better look at things maybe. But, nevertheless, regarding the nerve issues. It may be a good idea to see a neurologist to make sure you are not having some other problem. I know the virus is inside the nerves but it isn't typical to have these types of symptoms with EBV. So it could be coincidental or that you got two things around the same time. You never know.  There are reports from other people though that say they have these symptoms. So, that is also possible too. Just trying to make sure you cover everything.
take care,
mkh9

[sfmo]

i think these internal tremors are related to EBV because i have it exactly after diagnosing with mono (my symptoms appeared one month after starting my relation and kissing my girlfriend, she had mono before). first i was thinking about Hiv, but we both tested negative two times for Hiv!
these internal tremors are not very severe,they could happen in any parts of my body during the day. also still i have a enlarged tonsil and neck pain after 5 months!
also i want to mention that i was diagnosed with mono just with Igg antibody because my doctor told me that the igm antibody should be disappeared after two months from beginning the symptoms)!
thank you mkh9 and sorry for my English.

[mkh9]

Not generally. I haven't heard this as part of the symptoms of EBV. What are the tremors like? It sounds neurological but may not be due to the virus.
mkh9

[sfmo]

Hi,
I have a question and would be so grateful if anybody can help me!
Does mono cause internal tremors? i have internal tremors in all parts of my body after i was diagnosed with mono five months ago!
Thank you so much!

[sukia]

I strongly recommend you ask for EBV DNA PCR test.  If you test positive it means you have chronic active ebv (caebv) very serious, lethal disease.  There are only maybe handful of dr.'s (NIH & Baylor College of Medicine) that are familiar with the disease.  I was diagnosed at Stanford and was sent to NIH.  Your symptoms are very similar to mine.  I'm always having to get cat scans and biopsies done.  Please update your illness when you get a chance and hope that your biopsies came back normal.

[mkh9]

Hi Reese1998,
Just wanted to say I agree that keeping your immune system up is very helpful with any virus and I'm on the Dr. McDougall diet too. I hope more people reap the benefits of this healthy way of living. Sorry you are suffering from EBV.
mkh9