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My life is falling apart - Q's need help :-S
Hi I'm new here so not to sure how this works but... anyway...
I have fibromyalgia and take 75mg patches of Fentenyl (constant supply to bloodstream via skinpatch) and 35mg of Mirtazapine a night. My GP doesn't give a hoot about me to be quite honest and I am now being forced to go to the trouble of moving to a different country on the basis of a couple of GP's there promising they'll find some sort of cure for me. My GP's really couldn't care less if I was dead, or rather they would prefer if I was as I wouldn't bother them then. This really is not an exaggeration. I've changed doctors so many times to try and get treatment so I can get back to work or, and I desperately want this, to have children and a family and a proper future with my partner.
So... since I can't get anything helpful out of my doctor I've come here to ask if anybody might know what's happening to me recently.
I've had fibro for possibly my whole life but was diagnosed at 21. A few months ago I was diagnosed with fairly sever allergic reactions to god-knows-what and my doctor won't send me for tests to see what I'm allergic to as he says it's not worth putting it on his budget. I've been out of work because the doctor's won't treat me right so I can't pay for private treatment.
I now take strong allergy pills daily but they don't fully stop the all-over-body rash and the swelling in my joints, hands and feet that I get from this odd allergy. I have NO idea what I could be allergic to as there's no pattern.
Now I'm getting lumps. It appears that I have trapped/pinched nerves in my shoulders and neck (and that isn't being treated of course) and I don't know if they have anything to do with these lumps. A lump keeps growing then flattening out on my left knee and now I have a lump on the bottom of the middle part of my right hand's little finger.
The lump on my knee is tender and hurts when touched. The one on my finger just feels odd.
I'm getting some swelling around all of my joints lately.
About a year ago I had started to regain my life from my fibro. A few months ago this allergy and the strange swellings and now these lumps have sent my pain rocketing something fierce and I've lost my life again. All my dreams of having a child with the man I love are out the window. My mobility has gone down to about zero and my doctor won't even put me on the waiting list for a wheelchair. He can't seem to get it into his head that I CAN'T move about properly rather than I'm just not trying.
I had to prove I was entitled to benefits not long ago and the medical exam caused me to shreik when I had to bend over to show how 'mobile' my back was and then I was sobbing in pain from the rest of the stupid things I had to do just to show I couldn't do them.
Even if I was stupid enough to get pregnany while I'm on the drug I have to take I've been told that a baby would be taken off me because I'm too ill to look after it. I couldn't even hold my own baby if if was safe to have one.
My main question was does anyone know what these lumps could be?
But also - does anyone have any kind of general advice for me? Please bear in mind that I will not be able to switch doctors to get a helpful one. There aren't any around here and they think that I'm pretending to be ill most of the time because I've been told over and over by various doctors that a person my age cannot possibly have the pain and fatigue problems that I do. I'm 27 for the record.
I'm missing out on life and it looks like I'm going to go without family the family I, and my partner, want. I've already lost a few children before I went on the Fentenyl (I started the Fentenyl after a particularly awful childloss that took a massive tole on my body) and I don't want to lose any more or have to go without being a real family with my partner.
I haven't included my whole situation because I've have to type for hours and I think I've covered the basics. Really, ANY advice would be welcomed.
Thank you and my apologies if this email is a little random. I've just had noone to talk to about this and I dont' know what to ask. :(
I have fibromyalgia and take 75mg patches of Fentenyl (constant supply to bloodstream via skinpatch) and 35mg of Mirtazapine a night. My GP doesn't give a hoot about me to be quite honest and I am now being forced to go to the trouble of moving to a different country on the basis of a couple of GP's there promising they'll find some sort of cure for me. My GP's really couldn't care less if I was dead, or rather they would prefer if I was as I wouldn't bother them then. This really is not an exaggeration. I've changed doctors so many times to try and get treatment so I can get back to work or, and I desperately want this, to have children and a family and a proper future with my partner.
So... since I can't get anything helpful out of my doctor I've come here to ask if anybody might know what's happening to me recently.
I've had fibro for possibly my whole life but was diagnosed at 21. A few months ago I was diagnosed with fairly sever allergic reactions to god-knows-what and my doctor won't send me for tests to see what I'm allergic to as he says it's not worth putting it on his budget. I've been out of work because the doctor's won't treat me right so I can't pay for private treatment.
I now take strong allergy pills daily but they don't fully stop the all-over-body rash and the swelling in my joints, hands and feet that I get from this odd allergy. I have NO idea what I could be allergic to as there's no pattern.
Now I'm getting lumps. It appears that I have trapped/pinched nerves in my shoulders and neck (and that isn't being treated of course) and I don't know if they have anything to do with these lumps. A lump keeps growing then flattening out on my left knee and now I have a lump on the bottom of the middle part of my right hand's little finger.
The lump on my knee is tender and hurts when touched. The one on my finger just feels odd.
I'm getting some swelling around all of my joints lately.
About a year ago I had started to regain my life from my fibro. A few months ago this allergy and the strange swellings and now these lumps have sent my pain rocketing something fierce and I've lost my life again. All my dreams of having a child with the man I love are out the window. My mobility has gone down to about zero and my doctor won't even put me on the waiting list for a wheelchair. He can't seem to get it into his head that I CAN'T move about properly rather than I'm just not trying.
I had to prove I was entitled to benefits not long ago and the medical exam caused me to shreik when I had to bend over to show how 'mobile' my back was and then I was sobbing in pain from the rest of the stupid things I had to do just to show I couldn't do them.
Even if I was stupid enough to get pregnany while I'm on the drug I have to take I've been told that a baby would be taken off me because I'm too ill to look after it. I couldn't even hold my own baby if if was safe to have one.
My main question was does anyone know what these lumps could be?
But also - does anyone have any kind of general advice for me? Please bear in mind that I will not be able to switch doctors to get a helpful one. There aren't any around here and they think that I'm pretending to be ill most of the time because I've been told over and over by various doctors that a person my age cannot possibly have the pain and fatigue problems that I do. I'm 27 for the record.
I'm missing out on life and it looks like I'm going to go without family the family I, and my partner, want. I've already lost a few children before I went on the Fentenyl (I started the Fentenyl after a particularly awful childloss that took a massive tole on my body) and I don't want to lose any more or have to go without being a real family with my partner.
I haven't included my whole situation because I've have to type for hours and I think I've covered the basics. Really, ANY advice would be welcomed.
Thank you and my apologies if this email is a little random. I've just had noone to talk to about this and I dont' know what to ask. :(
pain patches can cause of skin reactions im the queen of allergies unfortunatley so most pain killers are out for me.Can you go to another doctor?? I think the fentenyl is an over kill for fibro as the pain levels ususally fluctate on a daily basis.
It sounds like something more than fibromyalgia is happening here. I would insist on being tested for Lupus and other auto-immune issues.
Hello again,
I missed this post before I responded to the other one. Where are you? Perhaps you can fill out your profile a bit more? Have you been tested for Lyme disease? Also, did you have these lumps before you started the fentanyl patches or the Mirtazapine??? Just curious?
I missed this post before I responded to the other one. Where are you? Perhaps you can fill out your profile a bit more? Have you been tested for Lyme disease? Also, did you have these lumps before you started the fentanyl patches or the Mirtazapine??? Just curious?
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