Having a bad day

[mommyandwife]

Hi.  I am not diagnosed with fibro but I had a nerve test done nearly two weeks ago now and the neurologist was leaning towards fibro.  

Anyway, I have been having trouble with one of my "close" friends, who thinks that my pain is not that bad and I should learn to cope without medicine because that is the type of person she is. I had told her before that my medicine doesn't always work to which now she thinks there is no point in me taking the medication because sometimes it doesn't work.  

There is no way that she will ever know how much pain I am in and I hope she never does, because I would wish this on no one.  I am tired of her trying to control everything and I have told her this several times.  I heard from another friend today that she says all I do is complain about being in pain, but also that I should not be taking my pain medicine.  I know I should probably just cut her off and forget about it.  It's really hard when others don't understand where I'm coming from.

My husband snapped at me today too.  I used to be able to take care of all of his needs and now I am struggling and arguing with him over who has to do what with the kids and the house cleaning.  I am not entitled to a break apparently.  Sorry for the vent.  I imagine some of you go through these types of things too?

[mommyandwife]

Well I had a talk with my husband and things are going better.  He told me to take it easy and not to worry about it.  Thank you for the prayers.  He is being really supportive.

[MrsMacDugle]

Hello there fellow sufferer of Fibromyalgia,

Yes, I know that it will take time for your family & friends to accept the fact that you're not crazy & that you have an actual medical problem.  It's taken mine quite awhile, however, they are finally coming around.  Now as far as medications go, I'm not able to use some of those that are generally prescribed to help with infliction due to allergic reactions or other medical issues that I suffer with that prevent me from taking them.  So I'm currently only on Effexor XR maximum dosage of 225mg in morning & an additional 150 mg at night.  It helps with both the emotional depression as I felt I was to young to be going through this as my world becomes more & more narrowed each day & the pain stays, I couldn't stand for more than 5 minutes at a time or sit for more than 15 minutes before paralysis sets in, so I know what you must be going through at even a younger age than myself.  I was dx in 2002 with Fibro after years of medical tests.

My prayers are with you.  Don't worry about your housework, focus on each day, take one room at a time & try to keep it up & current then add another & then try to keep them current & eventually your house will be back to normal it will be harder some days than other days so don't put yourself down if you can't do a thing on any given day just keep a journal as to what your body was experiencing that particular day & figure out a routine that will aid you in maintaining a comfort zone.  I had to set a new comfort zone of how clean my house had to be so that I wouldn't beat myself up if it wasn't as clean as I had kept it in the past.  As my conditions continue to deteriorate.

I'll continue to lift you in prayer.
Debra

[mommyandwife]

Hi and thank you for the note.  I have been dealing with this pain for about 8 months now and my husband has progressively come to understand.  However, he is too selfish sometimes to let me be the one that gets a break.  He had been off work up until recently.  Now that he has been working he is more tired than ever.  I was working and giving him a break and keeping up on the house at one point.  Then it all started falling down the tubes because I cannot do it anymore.  I stopped doing all the house work and eventually had to go off work because like I said I can hardly walk. *Sigh*

[mommyandwife]

Yep.  Everyone thinks they have all the answers.  My body looks fine on the outside, besides the dark circles under my eyes that I have to cover up.  I am young.  I "shouldn't" have anything wrong with me. Yet I walk crooked because of my pain and stiffness.  I get tired of the explaining too.  People sometimes say, "Oh you're doing good now."  No, I just stop talking about it every now and then or else I drive myself crazy like a broken record, just telling people all the different stuff I have going on.  I start to feel like all I ever do is complain and this disease or whatever it is consumes my life.

[ozzy66]

Hi!  I'm new to this.  I'm not certain if I'm dealing with fibro or ms.......like you one of the hardest things I'm dealing with right now is those in my life.  Co-workers who think they have all the answers, who look at you like you are making all of this up, or they even say., oh good it's fibro as if it's nothing.  One has even said to me, fibro is the dx they give when they think you're crazy and can find nothing wrong with you.  Also, family....my mom asks me EVERYDAY...how are you feeling today.  When I tell her it's there everyday you can hear her tone change as if I'm making this up and just need to get over it!  My husband is a blessing though.  He knows who I WAS and sees the difference out of the blue.....couldn't survive without him.  I actually dread talking to people now because I'm tired of trying to make them understand and I'm tired of explaining what it's like.  This is the hardest part emotionally for me!  I wish you the best

[jwles]

i do know how you feel love and no probs for venting your anger on here thats what we here for i have had loads of arguements with my hubby for the same reason and he is slowly coming to understand now you have to sit him down without first starting to argue and try to explain how you feel and why you cant do the same as before and how fibro makes you so tired, i think this is the hardest for people to understand as they see you doing not much to nothing and then hear you complaining how tired you are they dont understand i know but dont give up, keep me informed. all my love julie xx