Can i have pouch surgery with colotis in the bit of colon left?

[Charlie93]

Hi i had surgery last year which was removal of the whole large bowl because of UC but my surgeon left the rectum and a bit of the large colon for the future chance of a reversal. A few months later my ileostomy is fine but i started bleeding from the bottom end again i have been put on prednisolone and sulphurzalasine suppositeries but nothing has helped i had a endoscopy and it the results where that i had UC again in the large bit of colon and my rectum may have proctitis. I have been on many types of medication but none has stopped the bleeding, im going to see my surgeon soon and he wants to talk about what surgery needs to be done. I was wundering i know i cant has the reversal to the large colon left but can i still have the pouch attached to the rectum even though there might be a chance of proctisis due to the UC?

[TrudieC]

I can't entirely answer your question but can share my experience.  I had my large colon removed 16 years ago due to mega colon and perforation due to UC.  They left my rectum in place hoping I could have the J-Pouch.  It didn't get as sick as yours but was still releasing some mucus and blood.  I had the ileostomy for a year since the pathology was unsure if it was UC or crohn's and if I stayed healthy for the year then I could have the surgery.  During the J-Pouch surgery they remove the rest of the colon and the rectum.  They sew the pouch out of your small bowel and attach it into your remaining anal muscles.  The pouch becomes your new rectum.  So with the entire rectum being removed it may be OK to move forward with your surgery as I am not sure if proctitis affects the muscles or not.  If they need to calm everything down perhaps you could try steroid enemas?  My son has UC and uses these to help.

Good luck with everything.

[debbie207]

im reading what everyone is saying but im still not understanding?four years ago i lost part of my large bowel and in a months time im going back in the doctor said they may have to remove the whole large bowel then join the small one up some how. please can you tell me if i lose the whole large bag do i have a stoma again and is it forever?? i am only 32 and im really scared to go through this again,they said i have these polps which ive had 30 taken out alraedy but they left 20, four years ago. know there is just so many, im scared sad have mixed feelings and im trying to stay strong for my boys please can you help me understand more

[TrudieC]

You need to talk with your doctors and get a better understanding of their plan.  If your rectum is fine they may just connect your small bowel to it but if it is not, then a J-pouch would likely be sewn together out of your small bowel and attached to your anal muscles.  It is wonderful to have control over your bowels again but it does take a bit of time to adjust your diet, etc. and to get the bowels working as they should.  Good luck.