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Malrotation in 42 year old woman

Hi there.  I just read a radiological report where the finding was malrotation of the small bowel.  The specialist that requested the small bowel follow though where this finding originates from did not tell me about this finding at all.
The only diagnosis I have received from this gastroenterologist was "Lactose intolerance" and possible IBS.
I was a bit skeptical about the lactose diagnosis because I actually have increased my dairy products and my symptoms do not seem to be associated with lactose.  I have since found out the there are alot of false positives with this test and if there are not symptoms during the lactose intolerance test, this is really a false positive reading.
My question is, I have had severe symptoms since 2003.  These sypmptoms range in severity from violent vomiting with diahrea to stomach cramps with gas and a general feeling of bloating and feeling unwell.
Since my gastroenterologist has not brought up this finding of malrotation, can I assume that it is not something that needs further investigation?
I really need professional information on this question because up until yesterday I thought I just had IBS.  Many thanks for the information you can provide.
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Avatar universal
very seldom but there are websites where they do answer some questions I think.  Just have to look for them
Helpful - 0
Avatar universal
My doctor is not aware that I have done any research.  I called on Mar 13 and mentioned to HER (the specialist is a woman) secretary that I had come across this finding in a copy of my chart that I had requested for something else.  (Kind of like my own little incidental finding).  That was the first I had ever heard of the term malrotation so I did a google and came across so many articles that basically say this is something that most of the time should get fixed.   As I said earlier, I was not even told of this finding.
Once I have any further info from the GI I will post the response by her and any further investigations that she feels is warranted.
Thanks again!!!
P.S. do any doctors respond in these forums?  I appreciate your feedback but would really be interested in hearing from a doctor to ensure I am not blowing this out of proportion.  
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Avatar universal
I am glad you have been reading and maybe that is why your gi dr. didn't mention it.
But I don't want a dr deciding what I should know.  Also, ask him if your symptoms could be caused by any kinks or blockage caused by the malroation.

Like I said my grandson's bowels had kinked and they had turned purple.  It just so happened that it had not been kinked long enough and when the dr. took them out they turned pink again.   Just not something to play with.

However, I am sure your dr knows what he is doing.  But it does make you wonder when he didn't tell you about it in the first place.

Yes, Post after you see him.
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Avatar universal
Thanks again for the reply.  Sorry but I failed to mentino the appendix is not a problem in my case because I had it removed in my teens.  
I guess I needed a boot and a reality check to ensure I was not being too over the top and reading into the report too much.
I have done a ton of research since finding the radiological remarks and that is why I was posting the question here as to why my GI did not even tell me about this finding.
My understanding is that if a patient is asymptomatic they may be less likely to get the Ladd's procedure but still the patient should be informed of the finding shouldn't they?
I really do appreciate the feedback because I was starting to think I was getting carried away with diagnosing myself as having a problem when there is not one.
Thanks again very much.  I will post a reply once I have seen my GI.
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Avatar universal
Of course I am not a dr.  But unless the malrotation is very slight or some other reason, I cannot believe he is not recommending surgery.  Also, because of the appendix and what would happen if you had to have emergency surgery, I cannot believe he did not tell you that you had malrotation and explain it to you.  
I would ask him exactly that and ask him to show you by drawing how bad the malroation is and why with your symptoms he doesn't think it is related.

Also, if you are not completely satisfied with the answer, I would see a second opinion.

Look up malrotation on the web and see what it says.

Good luck

Helpful - 0
Avatar universal
Thanks for the speedy reply.  Yes, this is a serious post and question.  I understand your need to not waste time in answering possibly spam like entries but THIS IS REAL!!
I have called and do have an appt next Friday to ask this very question but I was feeling a bit stupid....thinking that I was overreacting or being a hypochondriac.  
I assume than that this is something that should always be followed up with?   Especially when there are symptoms?  
Thank you very much again.  If anyone else has guidance or experiences similar to this I would appreciate hearing about them.
I guess I could sue if I needed emergency surgery and was never even told about this problem!!!
Helpful - 0
Avatar universal
If you are a serious entry, you need to contact the GI dr now and ask why he hasn't mentioned it.  It could be with your symptoms that the bowel is getting twisted and a blockage could occur.

If you don't get a good answer, find another specialist now.

My grandson had malrotation as a baby and by the time the operated (10 days old) the bowel had shut off and if they had not operated then he would have lost part of his bowel.

Also, if the bowel is rotated and you should ever have appendicitus and they operated, they would not find the appendix where it should be.

Let us know what you find out.

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