I'm 10 months post op hernia repair and got talked into tummy. Cant eat and live on shakes. Nausea is intolerable with extreme pain and forget swallowing. No quality of life and have never felt so sick. How do I find someone knowledgable enough to either takedown this wrap or fix It right? I'm so sick I feel I won't make it thru.
yes, i did have a nissan but a toupet partial wrap with hernia repair and something is very very wrong and i can't find the right surgeon to fix me; i either need an undo or redo but am running out of time; my nausea/pains r intolerable and no nausea med will work and i know i'm dying as i eat no solids and try to force shakes down but i am losing the battle and i'm a single mom and my kid is watching me die and must go live with his deadbeat who he has seen twice in 14 yrs. when i'm gone; my insides r twisted either unnecessarily and/or in the definite wrong way by the wrong surgeon and all attempts by me have failed to find the right one; do u think god is punishing me for my sins and that when i'm done being punished god will cross me over soon?; this is hell on earth; i have no quality of life and am just laying in bed praying god will kill me soon; we r losing my house and everything and go to shelter next; i feel like i'm seriously dying and my symptoms r worsening and my kid is watching the whole thing and there is nothing i can do to stop it but accept god's will. happy memorial day weekend to u and yours. i'm in syracuse, ny; if u know of any knowledgeable surgeons who have done lots of successful undos and/or correct redos, let me know. i am desperate but thx. for always being here to chat with as i lose this battle i've fought hard on for 1 1/2 yrs. but things r coming to a head now and i couldn't find anyone on earth to save me so i hope god crosses me soon for relief as my life has been over for a long long time. my wish is that my son and his deadbeat and my sister play nice in the sandbox when i'm gone but they may not as such is life.
I know what it is like to be nauseous all the time. I have been fed through a J tube for over a year now but I have been sick for 4 1/2 years. I also have a central line in my chest to receive magnesium and IV medications. I can't eat anything by mouth. I am also very nauseous all the time. What medications have you tried for the nausea? Also, if you are able to get shakes down, you are not dying. I don't think you need to worry about dying. The worst that could happen is that you become very malnourished and the doctors can place an NG tube for you to get nutrients.
thx. for understanding what unbearable nausea is all about; u will think i am crazy but yesterday i received an email from a friend of mine; her name is debbie crossman and she is one of our local psychics; now i know u must take psychics with a grain of salt but she says she sees more surgery for me due to an obstruction or adhesion or scar tissue in my upper quadrant in/around my esophagus/wrap area that will not show up on testings but will b revealed when a surgeon goes inside me; i am scared and sick barely eating/drinking anything spending more time laying down sicker and scared out of my mind; debbie mentioned a surgeon who i already saw last week; now i can't say mr.surgeon, pls. cut me open cause a psychic said or i'll get locked up so i will need to keep pushing forward and pray god heals me with the right person soon; my son needs me and i need to go back to single mothering healthy and i hope i get to do that but i am SO sick.
Hi Nancy. I get really sad and depressed every day when i get hungry. I can't eat nothing. I haven't had anything to eat today. but a granola bar. and my stomach is really bloated as if i had just had a huge lunch. I constantly feel nausea. and i get grouchy. I get sooo hungry specially when i watch my family eat or when im on the phone with my boyfriend and he goes by the drive through and gets something to eat. my mouth waters!!!!! wish i could eat normal. :( I don't know whats wrong with me. a dr told me that is an ulcer... thats about all i know for now. I don't of a surgeon I wish i could help you in any way.. Maybe God wants something from you. I will be praying for you <3
i am sorry to hear of your suffering; it sounds horrible and although i have no appetite, i have moments where i look at others like my son eating and am so jealous that their tummy is normal and they can eat whatever and feel fine and i remember when i had those days; did an ulcer show on your testing?; what does god want from me i wonder to heal me?; someone who was in a worse gi nightmare just told me to be persistent and to never give up so matter what and to keep trying new docs/surgeons and keep praying; my son does need me here but he needs me healthy and for me to fix the rest of the mess this disease is taking from me, i must first find the right surgeon to fix what has gone horribly wrong with my tummy wrap that maybe i didn't need anyway; this is now my 2nd summer of pure hell and once again i had great travelling plans for my son and they r gone; yesterday my son was so bored he asked if we get just a redbox movie which is only 1.08 and i actually had to say no as i don't have the money if u can believe that; all i can think of that god is doing is teaching me faith and persistence and trying to stay positive in a crisis and maybe it is time for us to move on from my house somewhere else but my son is 3 yrs. from a highschool diploma which he needs as college is out of question for him with no money until he can get full scholarships and the only place we have to go next would be the shelter as i have nowhere else to go and his school already said that if we move into shelter that they have to bus my son to/from it per law due to financial hardship we r having; when i say my son will end up living with his deadbeat after i die per biology law in this country when this guy is a total deadbeat is probably just a fear of mine as people tell me i won't die even though i feel SO sick like i will and i may just b projecting that fear forward and no parent likes to think about not being around for their kids especially in my situation where this deadbeat has pulled every trick in book for 14 yrs. not to pay support and has never once banged on my door for a visit; some r just not cut out to be a parent; so when i am SUPER sick, i feel like it is god's will for me to die and tyler and his deadbeat to come together but that is hopefully just my overactive dramatic imagination taking over thinking worst case scenario; wish me luck as today i drop off 2 letters to a surgeon who i already saw and my psychic friend recommends highly; one letter from my psychic explaining what she sees for me but that is not enough cause u must take those abilities with a grain of salt but i believe and also another letter explaining my nightmare over and over again which i will continue to do til the right surgeon presents themselves, fixes me right and then i can go and fix the rest and get back to my son and the fun our family has been so famous for having. i wish for a great gi health day and many more to come. someone who was in a nightmare said to focue on today only and don't think about the past or the future too much as it is just too depressing in a longterm crisis; his gi one lasted 5 1/2 yrs. with many mistakes; he first ended up like me after a first botched surgery; then he was persistent and his next one found the problem and fixed him even though nothing really showed until his 3rd barium and then another gi doc tore his esophagus which required 2 more surgeries so altogether he had about 5 surgeries;he has been giving me advice as our stories r similar with i hope the exception of me getting a torn esophagus on scope.
Nancy - try getting in touch with a gastro doctor at the Mayo Clinic. I am in the same fix. I had a partial 270degree wrap and a herina repair also. I am having food rejection and vomiting after i eat certain foods. i have been to DUKE in NC, and UNC in NC and so far, none can help me. A balloon dilation of 18mm is the next step to see if this shall help. Best of luck to you.
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