PLEASE HELP
My son age 21 has had his gastrostomy feeding tube taken out and repositioned after 17 years.. The new tube is working fine, yet his old site isn't healing and still leaking medication and feeds which is making his skin sore etc
This is the reason we have had the site re positioned. The old tract was getting bigger and leaking feed and medication and after trying everything, creams, dressings and a bigger tube with a 20ml balloon (the original had a 6ml balloon) it was decided to try this approach. unfortunately we seem no further forward and he has lost 5kg in 16 days since the procedure. He now weighs 53.4kg
The team involved have been really good explaining every step of the way so we were aware this could have happened.
TPN feed is now being considered to try to allow the stomach complete rest to try to heal but my son is also on a lot of medication which may not be able to be given IV therefore it wouldn't necessarily be appropriate in that case.
Have any of you any experience or ideas please? Could the old site be surgically closed?
I really would appreciate you taking the time to read and offer any help if you have anything to offer
Thank you from a very desperate mother