I've had RUQ pain (I had gallbladder out 15 yrs. ago. CT scan was normal, MRCP was normal, xrays normal, barium abdominal xrays were normal) and progressed to rt. arm numbness, rt. leg numbness and now numbness in left arm and leg with these bee sting like pains in the rt. foot and now leg.
Bentyl and tramadol takes the edge off the pain but still have RUQ spasms afte eating.
I have numbness in my little toes on both feet and now a bee sting like pain on the top of one foot, which progress to the calf last night. I had an EMG which showed I did NOT have diabetic neuropathy. The neurologist said if I have weakness in my legs he'll send me to a neurosurgeon. My A1c has been checked for the last year and it showed 5.4 and 6.0 for the whole last year.
I ate a piece of pizza to see if it provoked an attack and YES it sure did. lol
I'm going to have an SOD pressure test at Med. College of VA soon. I had a friend who had lots of surgeries and then they found out she had amyloidosis!
Any suggestions are appreciated.
Thanks for your reply.
I do follow a very low fat diet but it doesn't seem to make any difference what I eat. I've tried eating fatty foods to see if I could cause an attack. I know that sounds crazy but I'd like to know what it is.
I haven't been back to my gastro. yet. I keep putting it off thinking that it'll get better. Also because I have so many other medical bills right now. I take Levbid (a high dose) and it will help eventually but it causes so many adverse effects that I don't take it until an attack starts. My med dr. is no help. He thinks its in my head. I'd like to show him pain sometimes you know?
SOD can cause pain very similar to having a GB attack. They can last varying amounts of time, short to very long. There's nothing 'regular' about SOD as far as what happens to each individual.
Are you following a low, low fat diet?
Have you talked to your doc about doing an MRCP? Have you tried high dose antispasm meds or specific calcium channel blockers? Are you working with a doc who is very familiar with SOD? The only way to definitvely to diagnose SOD is via an ERCP with manometry.