Aa
dizziness/sickness/weakness/heavy neck.
Hello.
I am a 21 year old female, mother of one (7month old baby boy).
In short...
I woke up one day, 2years ago now, feeling extremely dizzy and sick. Having suffered for a week or so, I went to the doctor who gave me tablets for vertigo.
These did absolutely nothing so i went back. Since then, I have been to the doctors at least 3times a month, every month, for the past 2years.
The best way to describe my symptoms is for me to list them...:
- Dizziness - sort of imbalanced, feel as though the floor is rocking (like a boat) 24/7
- Nausea - more so when the dizziness is really bad. This is really hard to live with as feeling sick is not nice for just one day, i have this feeling every single day for 2years straight.
- Heavy neck - My head feels too heavy for my body. Very uncomfortable.
- Feeling of a swollen throat - although my throat doesnt look swollen, it feels as if it is inside. also a feeling of having something trapped in throat very low down. no problems swallowing though.
- Tired - my whole body aches daily. I feek as though i hardly sleep yet i get at least 8 hours a night!
- Weakness - On most days I can barely move. I struggle to simply lift a fork to my mouth to eat.
- Abdominal pains - very low in abdo (womb area) and high in abdo (beneath ribs). these pains are very sharp almost stabbing like.
This is really getting me down. I have tried going to the doctors for help yet they seem to be coming up with nothing at all. They have referred me for an MRI of the head and cervical spine, which, after a ridiculous 10weeks! came back as normal. I had an ultrasound scan to check for goulstones back in April of 2008, again a normal result. I have had numerous blood tests (by which i mean approx. one a month). Up until 8 - 10 weeks ago there was never an abnormality in my results, however, the last 3 blood tests have shown wht my doctors call an 'inflammatory marker' as being abnormal. when i ask my doc what that means they simply say that it shows that i have an infection or inflammation somewhere in my body - then send me home with nothing.
I believe that the 'inflammatory marker' does not have much to do with it as this has only been present for 8-10weeks yet I have been unwell for around 2years!
This illness is so bad that most days I spend laying down due to the overwhelming dizziness i feel. I have not left the house on my own since this problem started. I am also unable to do simple things such as holding my little boy due to the weakness that i feel. many times my partner has had to help steady me to walk to the bathroom it is that bad. I DO tel my doctors this, (i have seen 7 different GPs, 4 a&e doctors, various consultants and 3 or 4 nurses), yet they still send me home with no answers and no treatment.
Sorry for the long post, I would be grateful for any suggestions as to what this could be?
Thank you in advance for any replies x
I am a 21 year old female, mother of one (7month old baby boy).
In short...
I woke up one day, 2years ago now, feeling extremely dizzy and sick. Having suffered for a week or so, I went to the doctor who gave me tablets for vertigo.
These did absolutely nothing so i went back. Since then, I have been to the doctors at least 3times a month, every month, for the past 2years.
The best way to describe my symptoms is for me to list them...:
- Dizziness - sort of imbalanced, feel as though the floor is rocking (like a boat) 24/7
- Nausea - more so when the dizziness is really bad. This is really hard to live with as feeling sick is not nice for just one day, i have this feeling every single day for 2years straight.
- Heavy neck - My head feels too heavy for my body. Very uncomfortable.
- Feeling of a swollen throat - although my throat doesnt look swollen, it feels as if it is inside. also a feeling of having something trapped in throat very low down. no problems swallowing though.
- Tired - my whole body aches daily. I feek as though i hardly sleep yet i get at least 8 hours a night!
- Weakness - On most days I can barely move. I struggle to simply lift a fork to my mouth to eat.
- Abdominal pains - very low in abdo (womb area) and high in abdo (beneath ribs). these pains are very sharp almost stabbing like.
This is really getting me down. I have tried going to the doctors for help yet they seem to be coming up with nothing at all. They have referred me for an MRI of the head and cervical spine, which, after a ridiculous 10weeks! came back as normal. I had an ultrasound scan to check for goulstones back in April of 2008, again a normal result. I have had numerous blood tests (by which i mean approx. one a month). Up until 8 - 10 weeks ago there was never an abnormality in my results, however, the last 3 blood tests have shown wht my doctors call an 'inflammatory marker' as being abnormal. when i ask my doc what that means they simply say that it shows that i have an infection or inflammation somewhere in my body - then send me home with nothing.
I believe that the 'inflammatory marker' does not have much to do with it as this has only been present for 8-10weeks yet I have been unwell for around 2years!
This illness is so bad that most days I spend laying down due to the overwhelming dizziness i feel. I have not left the house on my own since this problem started. I am also unable to do simple things such as holding my little boy due to the weakness that i feel. many times my partner has had to help steady me to walk to the bathroom it is that bad. I DO tel my doctors this, (i have seen 7 different GPs, 4 a&e doctors, various consultants and 3 or 4 nurses), yet they still send me home with no answers and no treatment.
Sorry for the long post, I would be grateful for any suggestions as to what this could be?
Thank you in advance for any replies x
That is a start for you. Hopefully your misery can end. They are still trying to figure me out. I go to a NS next month. I had abnormal MRI of the cervical spine and now I am experiencing all kinds of symptoms. I have a herniated C4 and C5 with possible Chiari malformation. I can't do the computer too much anymore because it bothers my eyes.
Keep us posted.
Keep us posted.
Well, just to update you....
I went to ENT today for some vestibular testing...the doc seemed to think the results show a weakness in one of my ears but has to do some calculations and speak to a consultant to confirm this... she said that they ma suggest some kind of physiotherapy... now have to wait for them to write to my GP re what to do next....
Really hope she was right and they can finally get this sorted....or at least help! Hope you are well.
I went to ENT today for some vestibular testing...the doc seemed to think the results show a weakness in one of my ears but has to do some calculations and speak to a consultant to confirm this... she said that they ma suggest some kind of physiotherapy... now have to wait for them to write to my GP re what to do next....
Really hope she was right and they can finally get this sorted....or at least help! Hope you are well.
Hello,
Oh, I am sorry to hear that!
I hate it when you are given a glimmer of hope but it turns out to be nothing..
How strange... I found information about Labryinthitis quite recently and the symptoms DO sound almost identical. I also came across a forum and there were two women on there explaining their stories' ... again, these were almost identical to mine.
It seems that every so often, a case of Labryinthitis will not clear up on its own and could result in the symptoms that I have been suffering. Due to this having been undiagnosed for 2 years, its possible that my symptoms have just gotten worse and worse...
However, I have not had Labryinthitis mentioned to me ever in the last 2 years of suffering. I do intend to bring it up in February when I see the ENT, yet again.
I hope you are well.
Oh, I am sorry to hear that!
I hate it when you are given a glimmer of hope but it turns out to be nothing..
How strange... I found information about Labryinthitis quite recently and the symptoms DO sound almost identical. I also came across a forum and there were two women on there explaining their stories' ... again, these were almost identical to mine.
It seems that every so often, a case of Labryinthitis will not clear up on its own and could result in the symptoms that I have been suffering. Due to this having been undiagnosed for 2 years, its possible that my symptoms have just gotten worse and worse...
However, I have not had Labryinthitis mentioned to me ever in the last 2 years of suffering. I do intend to bring it up in February when I see the ENT, yet again.
I hope you are well.
The injections did not work. I had a reaction to one of the medications. Now I have a burning face and eyes to go along with my constant rocking. The injections made everything worse. Well, you know when you get bad you are willing to try anything. I don't think I am going to be so willing for now on. The injections were ordered by my primary MD.
The Neurologist does not think the c4 c5 disc problem has anything to do with the rocking sensation. He thinks I had a bout of labyrinthitis back in August and have not fully recovered. He gave me some vestibular exercises to do. So...........meanwhile still suffering.
Keep us posted about your situation.
The Neurologist does not think the c4 c5 disc problem has anything to do with the rocking sensation. He thinks I had a bout of labyrinthitis back in August and have not fully recovered. He gave me some vestibular exercises to do. So...........meanwhile still suffering.
Keep us posted about your situation.
Hello.
I'm glad that you have at least a possibility of a cause for your symptoms. I am still waiting to see ENT doctors on 10th Feb ... although I am pretty sure that I already know the answers as they are simply doing the same test as the last ENT doctors. Still hoping that someone will listen to me and help but so far..no luck...
How are your symptoms now that you have injections?
I hope they are helping you.
I'm glad that you have at least a possibility of a cause for your symptoms. I am still waiting to see ENT doctors on 10th Feb ... although I am pretty sure that I already know the answers as they are simply doing the same test as the last ENT doctors. Still hoping that someone will listen to me and help but so far..no luck...
How are your symptoms now that you have injections?
I hope they are helping you.
I got the results of my MRI of my cervical spine; I requested it after the MRI of the head was negative. I have a C4 and C5 herniation which possibly causing the rocking vertigo. I see a neurologist next week. I have been prescribed daily injections to help. I will start my injections tonight.
Will keep you posted.
Will keep you posted.
Hello, sorry to hear that you are also suffering!
Thank you for your comment.
My MRI was negative too.. unfortunately, to the doctors, this means that I am ok.
Menieres will be something I mention again to ENT in february. Anything is worth a shot I think!
I hope we all get some answers soon!!
Thank you for your comment.
My MRI was negative too.. unfortunately, to the doctors, this means that I am ok.
Menieres will be something I mention again to ENT in february. Anything is worth a shot I think!
I hope we all get some answers soon!!
I am experiencing some of the same symptoms you have. I noticed my symptoms after taking vermox medication. The last 5 and 1/2 months have been terrible. I have been taking betahistine medication which helps me to cope. First diagnosis "possible Meniere's" and my second diagnosis "Meniere's." I am going to see a neurologist this month. I have been hospitalized once. I have had a MRI of the head; negative. Never been this sick for months ever. No one can seem to find anything significant with the testing I have had.
Hello again.
I was given betahistines as well, on many occasions but unfortunately they do not help me in any way. They do not make the rocking sensation any easier at all, neither do they help the nausea that comes with it. Over the last 2 years I have tried so many tablets, I have lost count. Im glad they help you though as it is horrible!!
Waiting for tests still at ENT, booked in for 10th Feb... had the same test done at the last hospital and results were normal so I am not at all hopeful that this will help. I am also going to change doctors surgery as mine is highly unsatisfactory, in my opinion.
I may mention Meniere's to the ENT surgeon again, as it is a different consultant he may have a different opinion than the last. Also, someone mentioned Labrynthitis to me. Although normally this condition goes away within a matter of weeks, it is possible to last for years if undetected and untreated which would make the symptoms worsen over time. So I have two possibilities to take to the doctor.
In my case, my gp has told me that an 'infection or inflammation' is showing up on my blood tests. However, they cannot tell me where in my body this 'infection/inflammation' is, nor are they doing ANYTHING to find out. I am simply awaiting ENT which is ridiculous.
Hope you are feeling better.
I was given betahistines as well, on many occasions but unfortunately they do not help me in any way. They do not make the rocking sensation any easier at all, neither do they help the nausea that comes with it. Over the last 2 years I have tried so many tablets, I have lost count. Im glad they help you though as it is horrible!!
Waiting for tests still at ENT, booked in for 10th Feb... had the same test done at the last hospital and results were normal so I am not at all hopeful that this will help. I am also going to change doctors surgery as mine is highly unsatisfactory, in my opinion.
I may mention Meniere's to the ENT surgeon again, as it is a different consultant he may have a different opinion than the last. Also, someone mentioned Labrynthitis to me. Although normally this condition goes away within a matter of weeks, it is possible to last for years if undetected and untreated which would make the symptoms worsen over time. So I have two possibilities to take to the doctor.
In my case, my gp has told me that an 'infection or inflammation' is showing up on my blood tests. However, they cannot tell me where in my body this 'infection/inflammation' is, nor are they doing ANYTHING to find out. I am simply awaiting ENT which is ridiculous.
Hope you are feeling better.
The only reason why I think it might not be Meniere's in my case is because I am having abnormal sensations burning, tingling all over at times with muscle quivering and twitching at times. The sensation of rocking *****. Also have fatigue, brain fog, problems focusing my eyes at times. These symptoms rotate except for the rocking is constant 24/7. I am taking betahistine 16 mg twice a day for the vertigo(rocking sensation); it helps to make the situation better.
The physicians have not been that understanding about my situation; I am getting frustrated with that. The second opinion physician pretty much scolded me like it was my fault I was having these problems. He started off by asking me if I was perfectionist, drank caffeine and had alot of stress in my life. I told him yes to each question and he went crazy on me stating this is why people get Meniere's and blah blah. I really think he had "issues." There are a million people around the world that can say yes to the questions he asked and they don't have Meniere's. He was a nutball.
I do think the possibility of Meniere's in your case is high. The ENT physician can assess you for that. I know th betahistine helps. I have also read dietary changes help
(no caffeine, low sugar, low salt).
The physicians have not been that understanding about my situation; I am getting frustrated with that. The second opinion physician pretty much scolded me like it was my fault I was having these problems. He started off by asking me if I was perfectionist, drank caffeine and had alot of stress in my life. I told him yes to each question and he went crazy on me stating this is why people get Meniere's and blah blah. I really think he had "issues." There are a million people around the world that can say yes to the questions he asked and they don't have Meniere's. He was a nutball.
I do think the possibility of Meniere's in your case is high. The ENT physician can assess you for that. I know th betahistine helps. I have also read dietary changes help
(no caffeine, low sugar, low salt).
Hello,
Im not 100% sure but I do know that the FT3 and FT4 antibodies have been checked. ( I remember seeing on one of my man blood-work forms).
Thank you for your well wishes... hopefully the doctors will help me this year ... a new year, new hope...x
Im not 100% sure but I do know that the FT3 and FT4 antibodies have been checked. ( I remember seeing on one of my man blood-work forms).
Thank you for your well wishes... hopefully the doctors will help me this year ... a new year, new hope...x
Hello,
menieres disease was mentioned to me by a nurse that I saw one time. I took this information to my doctor who dismissed the idea immediately. |I was referred to neurology at one point, had an MRI which I was told was 'normal'. No other doctor has offered any kind of diagnosis and i spend months waiting between appointments. Next up is back to ENT in February... hope you have more luck than I ever have. x
menieres disease was mentioned to me by a nurse that I saw one time. I took this information to my doctor who dismissed the idea immediately. |I was referred to neurology at one point, had an MRI which I was told was 'normal'. No other doctor has offered any kind of diagnosis and i spend months waiting between appointments. Next up is back to ENT in February... hope you have more luck than I ever have. x
I am experiencing some of the symptoms you are too; got two diagnoses of Meniere's disease from a first and second opinion. I never had this problem in my life until I moved to Europe. I don't agree totally with the diagnosis. I have been referred to a neurologist by my family physician; will see 01/20/2010.
Keep me posted on any helpful information you receive.
Keep me posted on any helpful information you receive.
Can you tell me what thyroid tests they did? Was it just your TSH, or did they check your Frees and antibodies also? If not, ask them to check FT3, FT4 and antibodies.
What about Mono? I'm reaching here but something is going on.
I hope your visit goes well on Thursday. Take care. Remar
What about Mono? I'm reaching here but something is going on.
I hope your visit goes well on Thursday. Take care. Remar
Hello, Thank you for your response.
They have checked me for thyroid problems, iron levels, liver and kidney function which come back normal everytime. Im sure they are simply 'hoping' that the inflammatory marker will go away as they just send me for repeat bloods.
I have yet another appointment on thursday. Am sure that nothing will be done though. But thank you for your suggestions. I will take these to my doctor.
They have checked me for thyroid problems, iron levels, liver and kidney function which come back normal everytime. Im sure they are simply 'hoping' that the inflammatory marker will go away as they just send me for repeat bloods.
I have yet another appointment on thursday. Am sure that nothing will be done though. But thank you for your suggestions. I will take these to my doctor.
Inflammation is showing up so something is going on. I don't understand why the DRs are blowing this off.
Have they checked you for Lupus, Fybromialga, sorry, I spelled that wrong, Thyroid problems and so on? There has got to be an answer. You will probably have to see yet another Dr and be firm, tell them something is wrong and you have an inflammatory marker.
I wish I could be of more help to you. Take care. Remar
Have they checked you for Lupus, Fybromialga, sorry, I spelled that wrong, Thyroid problems and so on? There has got to be an answer. You will probably have to see yet another Dr and be firm, tell them something is wrong and you have an inflammatory marker.
I wish I could be of more help to you. Take care. Remar
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