My Son

So, I have never posted anything like this before but I am at a loss. My 7 year old son is seeing many doctors who are trying to figure out what is wrong with him. He is 7 years old, he is not on the growth chart for height or weight. He has basically quit growing as of 17 months ago but his growth has slowed down over the years. As a baby he was in the 75th percentile. His left leg is clinically shorter than his right, he has PDD-NOS, he has a benign tumor removed from his eye last month, has surgery starting the 23 MAY for bilateral undescended testicles, the dentist confirmed that his adult teeth are behind at least by 3-4 years and is not sure if they are still forming, he is getting a biopsy on his penis for another growth similar to his eye. He has seen a Endocrine team at UNC and they said that he is producing the hormones to grow so there is nothing more they can do for him. He is scheduled to see a gentic doctor in July among other doctors. He has had over 50 appts in three months and I am so tired of hearing " We just do not know". They believe he has a syndrome but do not know what kind. Has anyone experienced anything like this?? Any help would be greatly appreciated!!

[SLino]

I have never heard of your type of case but heard similar. I truly feel for you and don't deal with that myself but have information for you. It may be a bit much bit it should be worth it. There are a team of doctors that will treat him for nothing. Now it's getting to them. I europe healthcare is Universal so everyone receives it free and it has been known that their care is much better there. I will get you the exact resources I have and they are excellent. I wish you the best. Please folloe up with me. My timing and memmory is not always the best but I want to help if I can. The info was written down so I have to look for it but I didn't want to forget about you so that's why I'm sending this.

[lisaob1]

hi i havent been through what your experiencing medically with your son,but iv had daughters with a rare syndrome,and searched high and low for answers. your not alone and keep pushing for answers.i wish you all the very best,im sure you will find what your looking for god bless