Please Help (Sever Aortic Regurgitation)

[nik7]

Hi,

I am a 26 years old married male having sever Aortic Regurgitation. My last echo suggested following parameters and was taken before 2 months.

LVEF : 70%
LVDDs : 3.62 cm
LVDDd : 7.19 cm

I am normally active and do not have any other symptoms except Pulsation.


I am taking following medicines.

Selkon XL 100 mg (1.5 per day, 1 in morning and half at night)
Tozzar 50 mg (Twice a day)
Nicardia CD Ratard 30 mg (twice a day)
Lanoxine (Digoxine 0.25 mg) (Mon-Fri once a day)
Aldactone (once a day)
Lasix (half per day)
Listril 10 mg (twice a day)


Can anyone help me how sever these parameters are and what should be done.


Thanks.

[santosh109]

A related discussion, Dilated Cardiomyopathy was started.

[peter piper]

First - wonderful web site - thanks.
Second - I share your feelings - especially frustration that after several doctor visits and 4 pregnancies - a congenital valve problem would rear it's ugly head only after severe symptoms. I was diagnosed a week ago. 33 year old mom of 4. Misdiagnosed over a year ago by a doc that prescribed a beta blocker for headaches and heart palpitations - without even listening to my heart beat. My cardiologist did not share any info with me - basically said - you have a bad valve - come back in a month. The only reason that I know my diagnosis is severe AI is that he wrote it on a card advicing to take antibiotics in case of dental work.
I have many symptoms mentioned here - some not. I am wondering if anyone else has them - as they are conspicuously absent from my reading so far...
in addition to chest pain, dizziness, heart palpitations, some shortness of breath....
I have much lower blood pressure in my left arm. It gets VERY tired easily. My right pressure is usually normal. Last doc visit they could not even get a reading for my left and had to use a machine for the right - she could not hear my pulse. Even the doc could not find a pulse in my left arm - and did not address that with me at all.
I am also experiencing some vision problems - with light regulation, problems with brightness.
As I said  - this is not meant as "POSTING A ?" - I am just curious about comments or the experiences of others.
I wish you all the best of luck - thanks so much for all of the valuable resources listed here - I am in for a day of reading!! ;0)thanks!

[suzzie1]

Hi there, Looks like you also have a lot to contend with. When do you think you will have the surgery? Thanks for taking the time to comment. Best Wishes!! :)

[breakofdawn2000]

Hi Suzzi1 and Nik7,

I have just been diagnosed with Severe Aortic Insufficiency and Severe Mitral Reguritation......I did not feel out of breath but
maybe it wasn't that noticable to me..?   I had an Echo which determined there was something wrong with my valves and a T.E.E.
these tests definately backed up their findings in my Echo...my EKG was normal.   However I do feel my heart flip flop and feel like it is pounding very hard.  Now I am on meds and do feel
extremely tired....I have been told that valve replacement is necessary.   I had never before been told I had a heart murmur and had a child nine years ago and no one said anything to me about my heart...so in nine years it is a shock to find out that my valves need replacing.  Suzzi1 you said you had an Echo done 15 yrs ago well your valve could be worst now than it was before.  Good luck to you both. I hope you both resolve your problems soon.

[suzzie1]

Hi Nik7,

Thank you for taking the time to comment. I actually had an echo done about 15 years ago and the cardiologist said i had a 'slight' leak in a valve!!! I am hoping to hear that I have an appointment with a cardiologist soon. My gp wrote to  him on 4th Feb last and i am still waiting. The waiting is 'agony'.
Oh to be rich.....

Thanks again and I wish you well with your problems.

[nik7]

Hi suzzie1,

First of all I am sorry to hear problem.
I think you should go for an echo immediately as atleast that facility is available at most of the places and should see an cardiologist.... I am not asking you for a surgon but atleast you should see a cardiologist.... as your simptoms could well have been linked with valve problem ... or some other heart issues. Please also send the echo-parameters to me if possible as I am now well-known with various cut-off limits for these heart related parameters.

take care

[suzzie1]

Hi, I am a 46 year of female, I have had heart problems since I was about 13 or 14 years old. Things have gotten worse over the years and at the moment I feel very unwel.I take emcor for an irregular heartbeat and dilzem which is a calcium channel blocker. I am tired all the time, have no stamina and can barely walk enough to get about shopping for my children without getting chest pain. It comes in the form of pressure and can sometimes radiate up into my neck. I will be short of breath and weak. Recently Iv been getting pressure 'IN' my heart when walking. Its different to the chest pressure.Feels as if my heart is going to 'burst'.Also when in bed I suddenly wake up gasping for breath and my heart feels weird. Last August I was given Cordarone(Amiadrone) for my irregular heartbeat which I have since found out is a pretty toxic drug. It helped with the irr. beats but because of side effects I stopped taking it.My irr. beats have improved(I was getting over 1300 a day), but my general health is worse.I dont have health insurance and the health service in Ireland isnt good so I have been waiting 5 months to see a consultant in Dublin, all the time feeling worse. I have never been overweight in my life, so that is not an issue. I am a single parent with 2 children and I am desperate to feel well and be here for them. I feel I am being neglected by my gp and that noone understands how unwell I feel. I have 2 questions: Does anyone recognise any of my symptoms, and could it be a problem with my heart valves? I would appreciate some advice from anyone or everyone....THANK YOU IN ADVANCE.

[sandro]

anybody know if a lifewatch lifestar AF express monitor picks up VT? my cousin has SVT and had an ablation because her episodes lasted at the most 16 hours. after the ablation her episodes now last 15 min. shes haveing her wisdom teeth taken out and for some reason there ?ing the procedure because of her SVT. anybody know about this?

[nik7]

Hi i'mallheart,

I wanted to say that... from many symptoms mentioned in various sites like chest pain, shortness of breath etc... I am only having pulsation ... sense of pulse at various places of body like Neck, head etc.

[I'mallheart]

hey man, wow alot to go deal with for a young married man, your in my prayers. what do you mean bu only sympton is pulsation? where?

thanks

[Momto3]

Hello.  You might find some very helpful information at www.valvereplacement.com. The site is geared toward people with all kinds of valve issues and concerns.  It is not just for surgical patients.  There is a LOT of information out there and you do not have to register to access the forums.  Although, You may find that you want to register to access other site links.  Be sure to check out the "reference" section under "forums" for information and sites on valve parameters, etc.

Good luck!!

connie

[Cleveland Clinic]

nik,

There are concrete guidelines to manage patients with valvular heart disease published by the ACC and AHA. These are based from expert clinical and evidenced based medical experts opinions and are effective for managing the evaluating patients with valvular disease such as yourself. They can be found at

http://www.acc.org/clinical/guidelines/valvular/dirIndex.htm

Generally, with symptoms and significant aortic regurgitation, the guidelines recommend aortic valve repair/replacement. For those without symptoms, it gets a little more difficult as some patients can go quite long without needing surgery. In patients without symptoms, other hints of damage to the heart can be used such as impairment of ventricular function or remodeling and dilation of the heart chambers.

Your systolic heart dimensions still fall in the range of what guidelines would recommend for conservative therapy, but your disastolic dimensions are slightly enlarged. In this situation, generally close clnical and echocardiographic followup is warrented to make sure your chambers are not enlarging further.

good luck