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Avatar universal

Anybody has these type of oral lesions?

I have this for six years too.

These started to appear before I learned I have hep B. I was tested for HIV by multiple tests for many years.. they can't find it. Had like 50 tests done..

These symptoms are being blamed on Hep B (dermatitis) I am being told. However I am concerned that there still may be another infection here that they are overlooking and not really looking for. Lesion biopsies revealed benign acanthus and parakeratosis. They tell me it is an allergic reaction to Hep B..

http://imageshack.us/photo/my-images/19/tonguen.jpg/
http://imageshack.us/photo/my-images/593/94532
http://imageshack.us/photo/my-images/580/95838284.jpg/
http://imageshack.us/photo/my-images/827/84245313.jpg/

But, rigorous  tongue scraping  helps only for few hours. Oral anti-fungal medications and rinses don't help much.
One thing to note WBC nuclear scan showed uptake activity in my lungs and bladder.. and radiologist noted as possible opportunistic infection in the report. Went to see a lung specialist in UCLA and he thinks the test is an error.

Any idea what this is? Is it Hep B related?

35 Responses
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Avatar universal
Since i upped the vitamin D intake my tongue seems to be getting better.
Helpful - 0
Avatar universal
http://www.vitamindwiki.com/tiki-index.php?page_id=1686

test is very easy and cheap, i did use it for sometime but stopped soon because i dont even get 75ng/ml with 10.000iu daily, this looks the best for you
Helpful - 0
Avatar universal
"So good I will go up to 10,000IU daily."

Your vit D level is already at 70ng/ml with 2000 IU per day.  Seems unnecessary to up the dose to 10,000IU daily.
Helpful - 0
Avatar universal

vit d is not toxic but can increase calcium absorption when over 150-450ng/ml so just check serum calcium and you are ok

there is also a home urine calcium test, calcium in urine will increase much before vit d is too high so you may use home calcium urine test for this
Helpful - 0
Avatar universal
I sure did see like  50 medical professionals over six years just for these lesions.

http://imageshack.us/photo/my-images/19/tonguen.jpg/
http://imageshack.us/photo/my-images/593/94532
http://imageshack.us/photo/my-images/580/95838284.jpg/
http://imageshack.us/photo/my-images/827/84245313.jpg/

$13,000 it cost me out of pocket..

With insurance like close to $80,000 that is not including the antiviral..

And I have about $20K of bills I just can't pay so they ruined my credit as the result. I don't think that was very professional.

2 "medical professionals" did biopsies on my lesions but did not submit them in the right containers so labs were not able to run stains for viral infections. Then my Health Insurance would not approve a third biopsy. It is unreal but does happen. So that is the kind of professional help I got..

That is why I am here on the forums looking for answers. Because if these so called professionals did their job well I would not be here.

And I really thank Stefano here for helping me out. My tongue seems to be getting better with higher doses of Vitamin D.. and I have more energy.

Also my doctors (professionals) did not know that HBV suppresses vitamin D production. Thats is why every doctor I went ran HIV PCR DNA and RNA on me, and waiting for those lab results sure was an agony.

And I had lab professionals loose HIV lab results and blood samples too. And it happens regularly that blood tests are missing, or that doctors never call and inform of results. They only call when I ow them payment :))))))))))))

So I will just relax before I get going... here..  
Helpful - 0
Avatar universal
http://en.wikipedia.org/wiki/Vitamin_D

Wikipedia quotes anything over 40,000IU as possibly toxic..

So good I will go up to 10,000IU daily..  and see how my body reacts. If my tongue will get better I will just show them.
Helpful - 0
Avatar universal
http://www.mayoclinic.org/news2009-mchi/5417.html

Here they say what I was told. That is 2009 Mayo clinic info..

But you are right these days it is hard to trust doctors and all their research, and really ***** to be sick to have to play by their rules.
Helpful - 0
10947 tn?1281404252
Hi,

As a reminder, always check with your healthcare provider before taking or changing medications.

Best,

Cheryl
MedHelp
Helpful - 0
Avatar universal
Mike Adams here says the same thing you are http://www.naturalnews.com/031577_vitamin_D_scientific_research.html
Helpful - 0
Avatar universal
:) Thanks Stefаno. hitting them with solid fact..

Yep I will ask them :)  and post here what they say.

Consumer reports btw also states that over 4,000IU of vitamid D daily can be toxic.
Helpful - 0
Avatar universal

also check calcium serum level from time to time, in europe it is just 2euro
Helpful - 0
Avatar universal

that s a fraud, vitamin d has never been found toxic on any real report and 1hrs sun makes 20.000iu of vit d3, ask them if you get toxic when you stay in the sun....

70ng/ml is ok you dont need to increase but keep it at 70ng/ml
Helpful - 0
Avatar universal
I had 13ng/ml.. now it around  70 last time they checked. That was on 2,000IU vitamin D daily..

I will take 4,000IU.. they are saying that anything over 4,000IU of Vitamin D daily is toxic..
Helpful - 0
Avatar universal

remember that the ranges are fake on most machines due to drug makers influence, normal ranges are 30-100ng/ml but to prevent diseases and as a boost to immune system optimum ranges are 60-90ng/ml
Helpful - 0
Avatar universal
thanks for the explanation.. I will try baking soda :)

Here is one thing, I started taking 6,000IU of Vitamin D daily and my tongue seems to get better. Hope it will stay this way..

Very interesting what you have said that HBV is blocking Vitamin D production. I had really low levels two years ago. I complained about chest pains so they have checked for Vitamin D.. and were surprised why it was so low. Problem is that for years I have lived with such low levels.. Then I started taking 2,000IU daily and the tests they done showed levels within normal ranges.  

Helpful - 0
Avatar universal

it is food and you already take bicarbonate with food and water......it is in almost everything and also your kidneys make bicarbonate to regulate ph, without bicarbonate acidity will kill us
Helpful - 0
Avatar universal
it is ok to take with Baraclude? I won't mess myself up right?
Helpful - 0
Avatar universal
i took half a tea spoon when having acid stomch, this should be enough

atlets use 20g daily as the best dose to boost muscles but for candida half a tea spoon is enough, lower salts in your diet or use baking soda instead of other salt

Helpful - 0
Avatar universal
I have baking soda.

How much of it I need to take? One tea spoon?
Helpful - 0
Avatar universal

bicarbonate is also useful for many viruses (but found nothing about hbv), flu and cold viruses need acid ph to infect cells, by having a ph netrual or little alkaline you block these viruses or lower their infectivity very much

i d like to check studies about mitocondrial damage due to antivirals and if optimum ph can improve this
Helpful - 0
Avatar universal

i dont check bicarbonate level becuase not useful,  it does increase bicarbonate level so kidneys can make less bicarbonate and less effort to balance ph but my goal was to make urine ph 7 because it was 6, to get rid of stomch acidity and be sure i dont get any candida in the future

candida is not a problem since i started gcmaf but since studies are linking fungus like candida to immune disfunction due to biofilms that block vdr receptors in immune cells, are linking this to cancer and i did have vdrs blocked and high nagalase (all bad things for immune system and cancer) by using bicarbonate to keep ph 7 i improved my health
Helpful - 0
Avatar universal
Did your serum bicarbonate level change after you orally take sodium bicarbonate for a while?
Helpful - 0
Avatar universal

http://www.naturalnews.com/035876_baking_soda_cancer_fungus.html

http://blog.imva.info/medicine/baking-soda-cancer-laugh

US media has probably filtered this news which will damage drug makers, italian health minister has started trials and it is been used in cancer hospitals  together with chemio and other drugs

salt must be lowered in the diet and food not from baking soda, industrial non organic food is full of salt and makes more damage
to prevent any heart disease vitamin c in liposomes or injection is the best choice
Helpful - 0
Avatar universal
I haven't done any research on the relationship of bicarbonates, ph, and diseases.  But this is my intuitive question: doesn't one also ingest a lot of sodium when taking sodium bicarbonate everyday?

1 teaspoon salt= 2,300 mg sodium

1 teaspoon baking soda= 1000 mg sodium

(The American Heart Association: Healthy American adults should eat less than 2,300 milligrams of sodium a day. This is about 1 teaspoon of sodium chloride (salt).
Helpful - 0
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