9 Days left on Incivek but struggling

[Cyn621]

I have 9 days left on Incivek but honestly, I feel like I am dying a slow death.  I no longer go to work and I can barely breath.  My doctor is trying to get me to the end of the 9 days without having to give me Neupogen.  My WBC is 2.0 and my Platelet Count is 109.  


I am seriously considering just ending this now and taking my chances that the Incivek did it's job.  At 4 weeks I was undetectable.  This is my first time treating. I am genotype 1.  Had a liver bioposy at the start stage 1, grade 1.  Viral load was 6.2mil.  All liver tests AST/ALT in normal range  I keep thinking, what difference can 9 lousy days make and I am so sick at this point, I feel like I need to save myself.  HELP!

[spyderman370]

The last week of Incivik was to me the most agonizing and hellish week of all. I lost 3 days of work, could not breathe or move, hgb down to 8.9 and di not have the desire to caryy on. Depression was creeping in...but, I went to my D. expalined all and he said you gotta hang in there, weekly cbc's careful monitoring and the last 10 days were past me. Now I am revocering from Incivik am on shot 15 and was UND at week 12 PCR, so I am hoping to finish in 10 more weeks and get to SVR. Itthink the advice here leans towards following your Dr.s advice, that is why you pay him, not us. Too many variables in these posters particular conditons to really draw a sound conclusion. Good luck.

[nygirl7]

Good for you spydie and you know what I don't remember you complaining about it at all....I really don't. That is the attitude you have to have, feeling like you are dying from anemia is not really dying from anemia.  And if someone did think they were dying from anemia somehow and felt the best thing to do was chat about it on an internet forum rather than contact their doctor....well they do have other problems that need to be addressed.

None of us are doctors nor did any one that I know of on here stay at a Holiday Inn Express last night. ;)

[frijole]

Maybe I am missing something here but you say you cannot breathe and then only give your white blood count and your platelets.  Neither of these are going to make it so you can't breathe.  You say your doctor just wants you to push through these last 9 days without neupogen and then hopes you will feel better.  THis does not make sense.

What is your hemoglobin?  What does your doctor and your labs say about your anemia?  It seems like this is the elephant in the room and has not been addressed.  Give me some numbers and tell me if you have been dose reduced or had discussions on procrit.

I do hope you will continue with the INC dosing for the remainder.  I am not on INC so cannot know how bad this triple is.  I am taking VIC and the sx are acceptable.  I understand your struggle and the difficulty to justify this treatment when you are only stage 1, but really, you only want to do this once and you are almost half way there.

frijole

As Lynda and Can-do and others have said, neupogen is not going to make you feel better.  Besides, you didn't even give us your ANC, only your WBC and, frankly, it is not that bad.  I did 56 weeks of treatment with WBC lower than that.  

[pjhep80]

i so wish i only had 9 days left... ha ha ha

[mykids247]

To go along with what others have said. I dont think for one minute that anyone here would say, Ah dont be a baby just do it! Not the case at all. Like I told her push on UNLESS told differently by her DOCTOR> You never want to look back and think, Maybe, what if I had done this or that. Just do the best you can and then hope for the best. Good luck to you and hopefully your Dr. will come up with something to help you with the next 9 days.

[nygirl7]

Suck it up PJ you ain't going anywhere you are doing this and that is that is that.  We won't let you do it again ;)

Yes Cyn what is your hemoglobin HGB?  Believe me lots of us have had pretty bad anemia and some have done the entire course of treatment living in the 6s because of Thalessemia and man I can't imagine that (but that is extremely rare and do to pre-existing disease).