Aa
Cured
I finished triple treatment (interferon, ribavirin, and sovaldi) in May. My 8 week post treatment lab results showed SVR. I am genotype 1a with cirrhosis. So relieved and can't even express it. Want to encourage all of you on treatment and waiting for treatment to hang in there. The dragon can be slayed!
Bravo. Clap, clap, clap
No....Congragulations Wonderful news almost sixty.
Enjoy your newfound healthy life!
....Kim
No....Congragulations Wonderful news almost sixty.
Enjoy your newfound healthy life!
....Kim
Wow y'all are awesome for sharing everything with me. Congratulations to all of you on SVR. I wont start tx until October but i am anxious to get started. Yes im afraid but im ready. Im sure i will have more questions between now and then so yall will probably be chatting with me again :-) i am defiantly going to be on here for encouragement during tx and to encourage others that are new as i am.. Thank you all so much..
Susan and Sandi have said most everything I would say. I do have generalized anxiety and started Celexa about 3 months before treatment. Never really had any serious depression before or on treatment. My anxiety did ramp up and my emotions were more magnified, but it settled down after I adjusted to the Riba.
Now that I'm finished, I've had some trouble with anxiety and insomnia. I think it's because I had labs last Friday, a week after I finished treatment. It was the third attempt and the first treatment I actually was able to stay the course. Lots of new emotions and unexpected feelings! Fortunately, I'm doing a lot better today!
In hindsight, this 12 week treatment goes by quick! It is doable and I tried to remember that side effects come and go and curing of this dragon is worth it! You can do this! Almost60 and Sandi have DONE it and have glorious SVR. I've finished and done all I could do, Susan400 is on her way! We are all here for you! This group is awesome.
Be well!
Now that I'm finished, I've had some trouble with anxiety and insomnia. I think it's because I had labs last Friday, a week after I finished treatment. It was the third attempt and the first treatment I actually was able to stay the course. Lots of new emotions and unexpected feelings! Fortunately, I'm doing a lot better today!
In hindsight, this 12 week treatment goes by quick! It is doable and I tried to remember that side effects come and go and curing of this dragon is worth it! You can do this! Almost60 and Sandi have DONE it and have glorious SVR. I've finished and done all I could do, Susan400 is on her way! We are all here for you! This group is awesome.
Be well!
It is my opinion (and mine only) that the triple Tx has the best chance for cure, if you can tolerate it. I know that there is supposed to be a newer better pill on the horizon, that was also told to me when I spoke with my Doc in January. I did not want to wait, I wanted to get rid of this thing as soon as possible. I found that the Interferon was not so bad at 12 weeks, the Ribavirin caused most of the Sx I thought. I agree with you about being as educated as you can about what to expect. Myself and almostsixty cured with this Tx, we both tolerated it pretty well. Again, I am not a health professional, but that is my opinion. I also think with all the ruckus about the $$$$, if it is offered to you, you should do it.
Hi everyone, tthanks for all your information. It helps me not to be so afraid. I have three adult daughters that has busy lives but say they will be there for me.. however, they say i shouldn't be on here cause im worrying about sx that might not happen to me. They dont understand that i want to be prepared in case. Plus i think they dont get how serious tx is.. i have never treated so my doc wants me to do the Sol/inter/rib for 12 weeks.. he thinks my chances are good of getting SVR. What do yall think of this tx? I looked it up on the web and the cdc recommendations for tx navie patients are those three... thanks
Congrats, almostsixty. I still have 4 wks left on the same treatment. But, my doctor only does end of treatment labs at 12 wks and then, nothing until 6 mon. post treatment. He doesn't do 1 most post treatment or 3 month post treatment labs.
Just a few general comments. This is my 11th time w/interferon and while it does have side effects, for me, the Ribavirin has worse side effects than the interferon. It literally makes me crazy. Not psychotic crazy, but super p*ssed off for no good reason, irritable as all get out, grouchy and on and on. I am so NOT like this when I'm not on the Hep drugs. I have felt no depression whatsoever and have not been suicidal, nor have I been on antidepressant medications. I have had to take my prescribed Xanax on more than one occasion for big problem with anxiety attacks. But, I don't take it on a daily basis and try to only take a 1/2 at a time. I have a diagnosed generalized anxiety disorder w/panic attacks, that bothers me even when I'm not doing Hep C meds.But, I never get like I get on the Riba..., when I'm not doing these Hep meds. It, for me is definitely up there on my top 5 side effects list. I haven't had any episodes of vomiting..zero. My appetite really hasn't changed any, either increased or decreased. But, I never had any appetite prior to treating anyway. I've always eaten because I make myself eat, but literally never feel hungry. Another side effect that is up there in the top 5 is fatigue. I hear people talking about this huge surge of energy. Maybe those are people who are not on the interferon and Riba. I have had no increase of energy. In fact, I've felt worse and more tired on the meds, than prior to treatment. I've had no hair loss, which is good. I've had no anemia, which is good. No fevers. No chills. Lots of muscle and bone aches, feels like I've been beaten up on a daily basis. I've had neutropenia (for those new people-that is a decrease in the neutrophils-part of your white blood cells). I've had no change to my sleep. I think that's because I take my Sovaldi and my 3 Riba at 7 am and then, my 2 Riba at 7 pm. I've heard the Sovaldi can affect your sleep more if you take it at night. I drink alot of water. Susan400
Just a few general comments. This is my 11th time w/interferon and while it does have side effects, for me, the Ribavirin has worse side effects than the interferon. It literally makes me crazy. Not psychotic crazy, but super p*ssed off for no good reason, irritable as all get out, grouchy and on and on. I am so NOT like this when I'm not on the Hep drugs. I have felt no depression whatsoever and have not been suicidal, nor have I been on antidepressant medications. I have had to take my prescribed Xanax on more than one occasion for big problem with anxiety attacks. But, I don't take it on a daily basis and try to only take a 1/2 at a time. I have a diagnosed generalized anxiety disorder w/panic attacks, that bothers me even when I'm not doing Hep C meds.But, I never get like I get on the Riba..., when I'm not doing these Hep meds. It, for me is definitely up there on my top 5 side effects list. I haven't had any episodes of vomiting..zero. My appetite really hasn't changed any, either increased or decreased. But, I never had any appetite prior to treating anyway. I've always eaten because I make myself eat, but literally never feel hungry. Another side effect that is up there in the top 5 is fatigue. I hear people talking about this huge surge of energy. Maybe those are people who are not on the interferon and Riba. I have had no increase of energy. In fact, I've felt worse and more tired on the meds, than prior to treatment. I've had no hair loss, which is good. I've had no anemia, which is good. No fevers. No chills. Lots of muscle and bone aches, feels like I've been beaten up on a daily basis. I've had neutropenia (for those new people-that is a decrease in the neutrophils-part of your white blood cells). I've had no change to my sleep. I think that's because I take my Sovaldi and my 3 Riba at 7 am and then, my 2 Riba at 7 pm. I've heard the Sovaldi can affect your sleep more if you take it at night. I drink alot of water. Susan400
So Happy for you! Encouraging news like this keeps the rest of us going! I start my treatment today ,at 1:45 to be exact . Same tx as you and a few others .Heres to SVR !
Wonderful news! Is that a BIG smile I see on your face?
SVR - what music to my ears every time I hear that someone has achieved it!.
Good luck with adjusting/living your life withouth the dragon!!!
SVR - what music to my ears every time I hear that someone has achieved it!.
Good luck with adjusting/living your life withouth the dragon!!!
One of the reasons I've refused Interferon for years is because of depression and so my doctor is recommending Sovaldi and Olysio for me. Have you considered the Sovaldi/Olysio treatment or the new Gilead one pill for GT 1 that will be released on October 10?
Beckland, I have anxiety too, and have had depression and been on Zoloft before, and had your concerns before Tx. I did have 1 anxiety attack 1/3 of the way through, being concerned about hemoglobin levels, my doc lowered my Ribavirin for part of my Tx because of it, and then I was anxious about that. Better communication with him probably would have avoided that. I really had to be careful of triggers for those things. I tried to avoid upsetting radio, tv, movies, music--- no Nirvana, PBS, no movies that were too sad, violent. You get the picture. I lined up happy things to see and do in my down time. A good friend came over every weekend after my Friday night shots, and watched movies with me. I crocheted alot. I avoided social situations. I telecommuted for my work so I avoided workplace stress, and avoided conference calls. The 2 women I work with knew what I was going through. Being prepared ahead of time, being in communication with you doc and support group, including this forum, really can help. Good luck!
I saw on here where someone felt like committing suicide and that scares me.. depression n anxiety run in my family. I have been on zoloft for anxiety for 7 years so i am worried about that part of tx..
Sue, thank you.. i have been asking alot of questions on here so i can be prepared. Everyone is so helpful. . I'm scared of tx but more if i dont do it... .
Congratulations my sister dragonslayer! It was great to be on the same journey at the same time with you. You were always there for me, it was tough at times, and you were the only one who really understood. Congratulations on SVR12! While the triple Tx was tough at times, it was managable and effective! Life is truly a gift.
Congratulations! I just finished the same treatment 8/7. Had one week post treatment labs done 8/15. I see the doc 8/25. Sure hope I get a good report! Thanks for sharing your news and encouragement! It means so much!
Beckland, wishing you much success on your treatment! Drink lots of water, stay as active as you can, pace yourself and take one revolution at a time! This board is great! Any questions from a laywoman who did the Sovaldi-Ribavirin-interferon, just ask! There doesn't seem to be many of us anymore!
To both of you, be well!
Beckland, wishing you much success on your treatment! Drink lots of water, stay as active as you can, pace yourself and take one revolution at a time! This board is great! Any questions from a laywoman who did the Sovaldi-Ribavirin-interferon, just ask! There doesn't seem to be many of us anymore!
To both of you, be well!
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