Aa
tracking our groups genom types
I was reading where one of the group just received there 3 month results and they were great. They were a 1A the same as me. I go on Valentine's day for my 3 month visit and have a lot of fingers crossed. I get lost on the forum board sometime and partially because of brain fog since tx's started. My email is ***@**** and if any of you have just had test or are coming up on major dates I would appreciate it if you might share your results with me and the meds you are taking. I am on the Pegasus and Nupogen so I don't know what the difference is between some of these meds. I'm looking for all the successes I can find. PS. My viral load is 1.5m on the last lab sheet I received. Thanks for putting up with my rambling - Dale
You know i'm sure that the chances of a Geno1 are about 50%. Those are some pretty decent odds :) Really, compared to a few years ago we are LUCKY.
Best of luck with the whole hepc thing....stay tough!
I'm on
PegIntron - Interferon like Pegasys
Ribavirin - Rebetol, copeg same stuff
Epogen - Version of med to help with low hemoglobin like Procrit
Ambien - Sleep med sure you know
Paxill - Cause all of us on interferon should be on a good AD since the medication can make us nuts
Not on Neupogen yet because my whites, while low, are not low enough yet.
Hope that helps!
Best of luck with the whole hepc thing....stay tough!
I'm on
PegIntron - Interferon like Pegasys
Ribavirin - Rebetol, copeg same stuff
Epogen - Version of med to help with low hemoglobin like Procrit
Ambien - Sleep med sure you know
Paxill - Cause all of us on interferon should be on a good AD since the medication can make us nuts
Not on Neupogen yet because my whites, while low, are not low enough yet.
Hope that helps!
I'm also 1a, and my 3month(12wk) will be Feb23. I'll let you know what my results are if you would like. My meds:
Pegasys 180mg SQ weekly (Interferon)
Copegus 600mg Twice a day (Ribavirin)
Aleve 400mg once a day (For pain)if needed
Lunesta 3mg at bedtime (For sleep)
Prozac 20mg once a day (For mood swings)
Hope this helps...Silver
Pegasys 180mg SQ weekly (Interferon)
Copegus 600mg Twice a day (Ribavirin)
Aleve 400mg once a day (For pain)if needed
Lunesta 3mg at bedtime (For sleep)
Prozac 20mg once a day (For mood swings)
Hope this helps...Silver
My 12 week vl was detectible at 419. 3 log drop.
I think that was pretty much your real question and I didn't answer that. 24 week PCR coming in three weeks.
I think that was pretty much your real question and I didn't answer that. 24 week PCR coming in three weeks.
Kalio said: These drugs have been available well over a decade that I know of. I just don't think it is advisable for people to wait until stage 3 to treat. Or even stage 2.
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Not sure if you're suggesting I was so let me be clear. I'm not advising people to wait until stage 3 to treat.
You asked me why I PERSONALLY waited that long, and I tried to explain it was a combination of factors, including older treating drugs ten years with lower SVR rates. These are NOT the same drugs we have today plus I wasn't a F3 ten years ago. That combined with another year or so delay due to an acute flare-up from herbs caused me to wait until I did.
Also, the Gish debate I referred to on treat-or-not is mostly confined to geno 1's with little or no liver damage (F0 and F1) and was not in reference to F3's or even F's.
Where we do seem to agree is that treating or not is a highly personal and complex decision. It appears from what I've seen you post that we'd make different choices in our respective tx decisions, but that doesn't make our decision right for others -- just for ourselves.
----------------------
Never got any feedback on my querry as to how many people factor in the "stigma" of hep c into their treatment decision. So I'll ask again.
-- Jim
--------------------------------------------------
Not sure if you're suggesting I was so let me be clear. I'm not advising people to wait until stage 3 to treat.
You asked me why I PERSONALLY waited that long, and I tried to explain it was a combination of factors, including older treating drugs ten years with lower SVR rates. These are NOT the same drugs we have today plus I wasn't a F3 ten years ago. That combined with another year or so delay due to an acute flare-up from herbs caused me to wait until I did.
Also, the Gish debate I referred to on treat-or-not is mostly confined to geno 1's with little or no liver damage (F0 and F1) and was not in reference to F3's or even F's.
Where we do seem to agree is that treating or not is a highly personal and complex decision. It appears from what I've seen you post that we'd make different choices in our respective tx decisions, but that doesn't make our decision right for others -- just for ourselves.
----------------------
Never got any feedback on my querry as to how many people factor in the "stigma" of hep c into their treatment decision. So I'll ask again.
-- Jim
1b, beg vl 1,220,000, 12 week undetected, 17/48
PegIntron
Ribavirin
Diovan (blood pressure)
Synthroid (thyroid meds)
Ambien - changing next week to Ativan
Milk Thistle
Vitamin E
PegIntron
Ribavirin
Diovan (blood pressure)
Synthroid (thyroid meds)
Ambien - changing next week to Ativan
Milk Thistle
Vitamin E
I didn't at all. I just want to kick this virus in the arse and get it done with before it got done with ME.
Didn't think of the stigma about treating at all in that respect. I would have treated if I was a Zero...before it could get worse and I would be older anyways. But then I"m nuts ;-)
So my answer is "NO".
Debby
Didn't think of the stigma about treating at all in that respect. I would have treated if I was a Zero...before it could get worse and I would be older anyways. But then I"m nuts ;-)
So my answer is "NO".
Debby
I guess I worded my question badly so I'll blame it conveniently once again on brain fog. LOL.
When I asked how many people factor in the stigma of hep c to their treatment decisions, what I was alluding to was not the stigma of treatment but the stigma of the virus.
In other words, I'm speculating that some people factor in the stigma of the disease itself, in the sense that it might push them in the direction treating.
I have a feeling your answer would be the same in either case but just wanted to clarify my querry.
My personal feeling is that I would hope the hep c stigma does not play a role in someone's treatment decision and they make that decision solely on a risk/reward analysis.
-- Jim
When I asked how many people factor in the stigma of hep c to their treatment decisions, what I was alluding to was not the stigma of treatment but the stigma of the virus.
In other words, I'm speculating that some people factor in the stigma of the disease itself, in the sense that it might push them in the direction treating.
I have a feeling your answer would be the same in either case but just wanted to clarify my querry.
My personal feeling is that I would hope the hep c stigma does not play a role in someone's treatment decision and they make that decision solely on a risk/reward analysis.
-- Jim
You asked about the stigma of Hep C having a bearing on TX decisions.....
For me it didn't play into it at all.
I treated because I wanted the virus out of me!!! I knew there was a chance it may not work, but at the time I would have done anything to get rid of it.
For me it didn't play into it at all.
I treated because I wanted the virus out of me!!! I knew there was a chance it may not work, but at the time I would have done anything to get rid of it.
My liver status, current health, and desire for future health were my determining factors for treatment. While I am very aware of the stigma, my personal experience has not been bad other than my own initial response.
I would say my age was also a factor in that I really did not want to age out to the possibility of even being able to get treatment. I wanted some more good active years that would hopefully be even better with way more energy.
I would say my age was also a factor in that I really did not want to age out to the possibility of even being able to get treatment. I wanted some more good active years that would hopefully be even better with way more energy.
Rev, first off let me just say it good to see ya!! Definately the "ole" rev just warming up from a few of the responses in a thread below!!
But your comment here, is just about my sediments exactly!!
"The stigma didn't play any part at all in my choice whether or not to treat. The biopsy did!! At Stage 3 you don't have much choice about what to do."
Jim, the stigma didn't even cross my train of thought.. Biopsy just about summed EVERYTHING up. I attempted tx the first time almost immediately, and lasted only a few days. Once I educated myself, I started again. There was no way I was gonna sit back and knowingly allow HCV to destroy my body any further. I didn't care what people thought, I just wanted to live!
But your comment here, is just about my sediments exactly!!
"The stigma didn't play any part at all in my choice whether or not to treat. The biopsy did!! At Stage 3 you don't have much choice about what to do."
Jim, the stigma didn't even cross my train of thought.. Biopsy just about summed EVERYTHING up. I attempted tx the first time almost immediately, and lasted only a few days. Once I educated myself, I started again. There was no way I was gonna sit back and knowingly allow HCV to destroy my body any further. I didn't care what people thought, I just wanted to live!
Stigma had nothing to do with my decision. I would expect that for some, if anything, it might work the other way - by influencing them to keep it locked away like the crazy aunt in the attic. Easier to to keep it hidden and not deal with it than to bring things out in the open for treatment. This conjures an image of white suits with nets chasing Aunt Gertie around the tree lined streets of Snootieville.
Sorry, one more comment and I'll let this go.
I can see the merits of discussing whether there is goverment apathy towards HCV, or how to boost awareness about the disease.
But frankly, placing any such apathy towards a naturally occurring disease on par with the intentional murder and slaughter of 6 million people because of their ethnicity is simply out of touch. It cheapens the memory of what happened to those people, and I'm sure their families would rightfully take offense, as do I.
I can see the merits of discussing whether there is goverment apathy towards HCV, or how to boost awareness about the disease.
But frankly, placing any such apathy towards a naturally occurring disease on par with the intentional murder and slaughter of 6 million people because of their ethnicity is simply out of touch. It cheapens the memory of what happened to those people, and I'm sure their families would rightfully take offense, as do I.
I did say I'd drop this, didn't I? ;-)
<i><b>Oh yeah? How many times have you heard "Oh they got it from using drugs"? Never? Even doctors, nurses and other health care professionals have said it.</i></b>
Presumably that statement somehow supports the likening of HCV apathy to the Holocaust? Sorry, but I still don't get it.
<i><b>It is bigger than whether you or I lose a job because of some a-hole, or our neighbor thinks we are junkies. I am talking millions and millions of lives.</i></b>
OK, let's follow this logic. My moral obligation towards HCV advocacy takes precedence over my job, my need to support my family, and my other obligations? Right?
Is this simply because I was somehow infected by the virus, or would other non-infected individuals share in this moral mission? For the sake of discusssion, I'll assume they do share in it. By extension then, every individual with awareness of HCV has an obligation to walk away from life's responsibilities in order to champion the cause.
Get up. Walk away from that job, and take it to the sreets. Sorry, I like to think I'm of relatively high moral character, but this view strikes me as extreme.
Respectfully.
<i><b>Oh yeah? How many times have you heard "Oh they got it from using drugs"? Never? Even doctors, nurses and other health care professionals have said it.</i></b>
Presumably that statement somehow supports the likening of HCV apathy to the Holocaust? Sorry, but I still don't get it.
<i><b>It is bigger than whether you or I lose a job because of some a-hole, or our neighbor thinks we are junkies. I am talking millions and millions of lives.</i></b>
OK, let's follow this logic. My moral obligation towards HCV advocacy takes precedence over my job, my need to support my family, and my other obligations? Right?
Is this simply because I was somehow infected by the virus, or would other non-infected individuals share in this moral mission? For the sake of discusssion, I'll assume they do share in it. By extension then, every individual with awareness of HCV has an obligation to walk away from life's responsibilities in order to champion the cause.
Get up. Walk away from that job, and take it to the sreets. Sorry, I like to think I'm of relatively high moral character, but this view strikes me as extreme.
Respectfully.
concerning the stigma of HepC and using drugs. i don't know that the averge person really even knows what HepC is , let alone how one got it. now in the medical field they aked me if i had a tatto or ever worked in the field. after , no , no, i just shrugg and they let it go. fact is i did get it from a bad needle- back in the 70's.
now, the reason i want to treat are several. my age-50, my damage 1, and VL 750,000 and the fact that i can. i am not sick, have insurance and believe my work will support me. we'll see. i want to treat this year.
antman
now, the reason i want to treat are several. my age-50, my damage 1, and VL 750,000 and the fact that i can. i am not sick, have insurance and believe my work will support me. we'll see. i want to treat this year.
antman
stigma, smegma...I pretty much tell everyone I have it, if it's somehow befitting the conversation...once in a great while I won't mention it...then of course I live in Liberal City so I woudn't necessarily expect someone living in a conservative rural community to be quite so open...especially with the tales of heard of neighbors walking around disinfecting door knobs a person's touched...
I just had to go through a whole song and dance about the disease yesterday to my "wards" relatives...their rightfully concered I guess, and they were fine when I told them it's not contagious like the flu...most people just don't know much about it, doesn't get much press cept the occasional aside in some silly sitcom...that's beginning to change but not fast enough I'm afraid...
enough stress and strife, it's the weekend!!! yeaaaah! I know, I might not be so dang cheery about it once I'm "on the river"...still and all...I hope everyone has a great weekend...
I just had to go through a whole song and dance about the disease yesterday to my "wards" relatives...their rightfully concered I guess, and they were fine when I told them it's not contagious like the flu...most people just don't know much about it, doesn't get much press cept the occasional aside in some silly sitcom...that's beginning to change but not fast enough I'm afraid...
enough stress and strife, it's the weekend!!! yeaaaah! I know, I might not be so dang cheery about it once I'm "on the river"...still and all...I hope everyone has a great weekend...
Careful Buckaroo, some of us have smegma stigma too!
You'll still enjoy the weekends! I know I do, anyway. They're not as active as they have been, but I don't let them slip away either. That reminds me, time to see if I can dig up some live music for tonight....
Be well.
You'll still enjoy the weekends! I know I do, anyway. They're not as active as they have been, but I don't let them slip away either. That reminds me, time to see if I can dig up some live music for tonight....
Be well.
i am a 1b
on week 30 of 48 week treatment
0.04 pegintron/1000 ribavirin
stage 2/grade 2
svr at week 20
neurontin
baclofen
lexapro
straterra
seroquel
good luck to you and take care
on week 30 of 48 week treatment
0.04 pegintron/1000 ribavirin
stage 2/grade 2
svr at week 20
neurontin
baclofen
lexapro
straterra
seroquel
good luck to you and take care
We seem to operate on different logic planes. Like I said, time for me to let this one go.....
Hey. According to my doggie sitter, my dog used to play with his dog. How you like that for name dropping? <small>Uh oh.....</small>
Found out I had Hep C in June of last year (genotype 2b). I am 39 years old.
Stage 1 grade 1
Viral load 77 mil.
Just took 13th shot of peg-intron .04. I had been using the redipen delivery system, but my insurance ended in Jan. Now I am receiving medication through the Commitment to Care Program and have to mix it myself. It was pretty easy, though.
800 mg Rebetol
Have been taking ambien, but new Doc has switched me to oxazepam.
Paxil
Before starting the Paxil, I felt awful. Didn't want to talk to anyone or see anyone. I would blow up at anything. Also went through bouts of depression. If it wasn't for the Paxil, I don't know if I could have kept up treatment.
Ibuprophen for the god awful headaches.
Stage 1 grade 1
Viral load 77 mil.
Just took 13th shot of peg-intron .04. I had been using the redipen delivery system, but my insurance ended in Jan. Now I am receiving medication through the Commitment to Care Program and have to mix it myself. It was pretty easy, though.
800 mg Rebetol
Have been taking ambien, but new Doc has switched me to oxazepam.
Paxil
Before starting the Paxil, I felt awful. Didn't want to talk to anyone or see anyone. I would blow up at anything. Also went through bouts of depression. If it wasn't for the Paxil, I don't know if I could have kept up treatment.
Ibuprophen for the god awful headaches.
i started down this thread to place my trx status: week 12,i get vl test monday..1B,male & ,will be 50 yrs old (sunday) taking peg-intron&riba1200;AD-is 20mg citalopram;occasional percocet(1 a day);vite&c,selenium,n-acetyl-cysteine;alpha lipoic acid;folic acid,b-complex,zinc,glutamine,SAMe....my start vl was 6,000,000;4 wk. vl was 1280 (thank you jesus,or genes,heck thk everybody) hgb went from 16.2 to 12 everthing suxs except beating-up the vrus:i luv pounding the stinkin,sneaky bugs outa my body!.........Jim/Jim-screw stigma,i am so beyond givin a **** -my close friends,my family,healthcare workers-heck my info is out there...treatin does that...my age,economic situation,stage -they all played role;but manifesting hep-c effects was the main reason-2006 The Year To Clear!.......
The other stuff y'all chewin on...just like trx decision...everybody decides wether they want to reveal status or not...would you recommend outing infected people??...To compare this health crisis to the systematic extermination of a ethnic peoples is to misunderstand history...certainly,people stood by& did nothing;others ignored,downplayed the extent of atrocitys...that is similiar,but only vaguely,and to an incredibly lesser degree....More importantly,informing and promoting awareness of hep-c doesn't have to be a radical engagement-cripes protest the war-thats killin people too!-don't attack people w/ hep-c,treating & wishing to work& hang w/ familys--they are not holding the gates open at a crematorium or trading in soap made from human fat............We all need to develop tolerance&acceptance of others--and if they don't like us or understand us-SCREW 'Em
The other stuff y'all chewin on...just like trx decision...everybody decides wether they want to reveal status or not...would you recommend outing infected people??...To compare this health crisis to the systematic extermination of a ethnic peoples is to misunderstand history...certainly,people stood by& did nothing;others ignored,downplayed the extent of atrocitys...that is similiar,but only vaguely,and to an incredibly lesser degree....More importantly,informing and promoting awareness of hep-c doesn't have to be a radical engagement-cripes protest the war-thats killin people too!-don't attack people w/ hep-c,treating & wishing to work& hang w/ familys--they are not holding the gates open at a crematorium or trading in soap made from human fat............We all need to develop tolerance&acceptance of others--and if they don't like us or understand us-SCREW 'Em
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