Aa
HGB from 4.8 to 5.2 WOW!
In a week after two shots of Procrit my HGB went from 4.8 to 5.0.wow :)
I feel much better tho, my doc said it may be psychological (?)
She increased the iron from twice to 3 times a day...
Just an update, since somebody in here wanted to know.
I feel much better tho, my doc said it may be psychological (?)
She increased the iron from twice to 3 times a day...
Just an update, since somebody in here wanted to know.
Oh, also i noticed up above you spelt Doctore wrong. It should be doctor. You know what i do. I copy it into Word, and then do a spell chech. works reel goo d for me. Hope this helps.
Oh yeah, love u 2!
Oh yeah, love u 2!
I agree with you so much. One time answered one of those email adds about enlarging myself. I gave them my ss#, birtdate, and bank account numbers. AND IT WAS ALL A LIE! You just never know.
Welcome to the forum. I'm on 180 mg of Pegasys each week, and 1200mg Copegus every day. It's working well for me, I'm at week 26, and will do 48. I've been undetectable since week 12; that's when they tested my viral load. Before treatment my viral load was 1,900,000. I'm genotype 1a.
At first, the treatment made me depressed and the doctor put me on antidepressant which helped a lot. Also I had low white blood count and was put on Neupogen to raise the WBC. I do feel anemic, and haven't been given anything for that. Tell your doctor about the side effects you're getting, and they can be treated. A lot of people have be successful with this treatment, and you can be too. It's all very doable.
This forum is a good place for information, and support, and also is good for laughs, or just for venting. Welcome!
Bob
At first, the treatment made me depressed and the doctor put me on antidepressant which helped a lot. Also I had low white blood count and was put on Neupogen to raise the WBC. I do feel anemic, and haven't been given anything for that. Tell your doctor about the side effects you're getting, and they can be treated. A lot of people have be successful with this treatment, and you can be too. It's all very doable.
This forum is a good place for information, and support, and also is good for laughs, or just for venting. Welcome!
Bob
Hi Avid, just wondering, is that a bigger dose of riba then recommended? did you ask for that? just learning...glad to know that youre doing okay considering, you were able to go to Europe and that says something to me about your degree of functionality...
You might want to jump over to the Pegasys website. It's pretty slick--it's the manufacturer's website so you are getting their spin, but it provides a very good basic overview of the disease and treatment. I'm on week 24/48 and a 1b too taking 180/peg, 1200 riva (copeg.)The side effects are not a walk in the park and I do take sick time, but I have continued to work. Good luck with whatever you decide--keep coming back to this site--despite the curren problems with a very immature and inappropriate prankster posting,I have gotten more good info and support here then I ever got from my doc.
Meant to mention to a post someone had somewhere about low platelets that I had a drop and subsequent rise over a six week period that corresponded to my stopping and restarting my daily vitamin. Dunno if it's related, but I think between the tx, the liver damage, and the on-going virus - it's prudent to be sure you're getting all your nutrients.
My two cents.
My two cents.
Hi. I was wondering if you are talking about your RBC level, or your hgb level??
Anyway, glad to hear you're feeling some better. Prayers to you.
Anyway, glad to hear you're feeling some better. Prayers to you.
Please know that there are many here who are very knowledgable about hep c treatment and will help you through this as best they can...also know that there are people out there who are at best less than tactful and not very sensitive, don't let this dissuade you from this or any other forum, many good people here....
FYi I take .5ML Peg-intron. I use what they call the Redi-Pen. I find it awkward and clumsy. My doctor said he believed that it was stronger than pegasas. He also said that there were other well qualified doctors that believed that there is no difference. It all seems like a cr*ap-shoot.
Kalio2 is correct, your doctor needs to explain alot about tx. As I've said before, you need to take charge of your illness. This is a long lasting desease and I wouldn't be hasty. Take a few months to educate yourself.
what I have read pegasas has the least sides.180 interferon/1200 riba. Working has been fine for me. Go into it thinking that it will be fine for you. Best of luck on your journey. Tommorow is the last of the little pink pills for me.48 weeks will fly by. Aloha
Some of this information may be incorrect, but this is what I understand. There is only one accepted treatment for Hep C, Interferon and Ribavirin. Pegasys is Interferon and Copegus is Ribavirin. All Ribavirin is the same. There are three types of Interferon, Pegasys, Peg-Intron, and Infergen. The first two are somehow made from the natural interferon from people. Infergen is sythetic. The Peg come from Pegulated which is what they did to it to make it last all week. They used to have to take it more than once a week. There is alot of disagreement on which interferon works the best.
Some people have terrible side effects. One thing for sure you will feel the effects of anemia. Taking iron suppliments will not help, and may cause problems. Your anemia will be caused by reduction in the production of red-blood cells which need iron to carry oxygen. More iron just gets stuck in your liver.
I am on week 9. Other than missing work for dr appts and blood tests, and a few days with a virus, which was horrible, I have worked 8 hr days, 5 days a week. I do less at home, sleep alot more, have other side effects, but they are managable with medication. I also walk three time a day for 20 minutes, cook some dinners, and help with the housework. Your tx takes a commitment from you, your family, and your healthcare provider.
Hope this helps.
Some people have terrible side effects. One thing for sure you will feel the effects of anemia. Taking iron suppliments will not help, and may cause problems. Your anemia will be caused by reduction in the production of red-blood cells which need iron to carry oxygen. More iron just gets stuck in your liver.
I am on week 9. Other than missing work for dr appts and blood tests, and a few days with a virus, which was horrible, I have worked 8 hr days, 5 days a week. I do less at home, sleep alot more, have other side effects, but they are managable with medication. I also walk three time a day for 20 minutes, cook some dinners, and help with the housework. Your tx takes a commitment from you, your family, and your healthcare provider.
Hope this helps.
That is some really good info on HGB and iron levels. Will try to remember all this stuff when I get a look at my bloodwork next mnth at my doc appointment! good to hear your doing allright Jim, your a mountain of imformation!
thanks Rick
thanks Rick
Sorry to jump in here but again, post is full. I am about to start treatment. Doctore is ordering 180 mg of Pegasys and also Copegus 200 mg. Plese tell me a little about this treatment. I read where others take different tx. Is there one with less side effects. I am a 1B and will probably need 48 weeks. I am hoping to continue to work through all of this. I work in Inside Sales so I hpe I will be ok as I really need to work. All comments will be helpful.
Oh man I forgot you went off the meds. It should not take you long to get that number to soar. The Procrit should start working sometime after next week and you should be feeling much better!
One good thing about stopping treatment.
One good thing about stopping treatment.
I do take it with with a glass of apple juice mixed with honey wich I read it's
the best to absorb iron. One thing to avoid with iron is calcium
the best to absorb iron. One thing to avoid with iron is calcium
Great forum, its great to see that most of you hang in there which isn't easy and eventally can see light at the end of the tunnel. Quite new to forum
Another thing - iron absorbtion requires Vit C. Are you taking it with OJ or something? I took it leading up to surgery years ago and had to take it with a glass of juice.
Ended TX and went on 3 weeks vacation. One at the beach the rest catching up on little things around home I've ignored for the last 6 months and mostly kicking back. Great to have an appetite again - even put back a couple of lbs. Slowly getting energy back. Haven't taken on tree stump in backyard yet but it's my next challenge. Got 24 wk (3A) back and still ND, all blood and levels back to norm except hgb and plates. Fog is clearing and no longer dread the weekends. I used to live for weekends, then fear them, now claiming them back. 'The' PCR in May.
Sound like 6 weeks to go for you - end is near.
Sound like 6 weeks to go for you - end is near.
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