Aa
Help for Neuropathy
Hi Group,
I have been reading the posts for awhile and you seem to give good advice. I am 1a, stage 2, VL was1.5 million, currently doing pegasys & copegus and I am week 28. I was undetectable at 12 weeks and have (thankfully!) had minimal sides.
I have a friend who is going through chemo for cancer and she has developed neuropathy. Unfortunately, she is having a very tough time with her treatment and now she is having trouble walking (this is a lady who climbed Mt Whitney!) Does anyone have any experience with treatment induced neuropathy? I know that she is not on the same type of chemo that we take for hep c, but many of her sides are the same types of things that we experience with treatment. I would like to know about things that can be done to help ease her symptoms. Thanks so much, Kathy
I have been reading the posts for awhile and you seem to give good advice. I am 1a, stage 2, VL was1.5 million, currently doing pegasys & copegus and I am week 28. I was undetectable at 12 weeks and have (thankfully!) had minimal sides.
I have a friend who is going through chemo for cancer and she has developed neuropathy. Unfortunately, she is having a very tough time with her treatment and now she is having trouble walking (this is a lady who climbed Mt Whitney!) Does anyone have any experience with treatment induced neuropathy? I know that she is not on the same type of chemo that we take for hep c, but many of her sides are the same types of things that we experience with treatment. I would like to know about things that can be done to help ease her symptoms. Thanks so much, Kathy
KsK: Nortriptyline and other tricyclic anti-depressants are usually prescribed to blunt moderate pain, and neurontin for more severe pain. I'm currently taking low dose Nortriptyline (too chicken to deal w/ the prescribed Neuontin) to take the edge off of painful hands and feet, and am happy to report it's working. At least I'm now able to walk with more ease and can tolerate touch and light massage, as the key is to aim for full movement and full sensation.
Everyone is right on it about the B vitamins. I somehow developed a B-12 deficiency--still trying to figure out why--which definitely triggered neuropathy during tx. I've been prescribed weekly B-12 injections, followed by a year of monthly shots, and after only two of them I can already feel a difference. Suppression of intrinsic factor, which is necessary for B12 assimilation, can be autoimmune in origin, or even a response to toxicity. Chemo and anti-viral drugs are notorious for triggering neuropathy.
Your friend is lucky to have you, and I hope that in a couple of years you both will be feeling well enough to climb the heights together.
Bostongirl: Tell me everything! Are you doing any physical therapy? What is the dreaded Neurontin like? And how are you feeling in general?
Everyone is right on it about the B vitamins. I somehow developed a B-12 deficiency--still trying to figure out why--which definitely triggered neuropathy during tx. I've been prescribed weekly B-12 injections, followed by a year of monthly shots, and after only two of them I can already feel a difference. Suppression of intrinsic factor, which is necessary for B12 assimilation, can be autoimmune in origin, or even a response to toxicity. Chemo and anti-viral drugs are notorious for triggering neuropathy.
Your friend is lucky to have you, and I hope that in a couple of years you both will be feeling well enough to climb the heights together.
Bostongirl: Tell me everything! Are you doing any physical therapy? What is the dreaded Neurontin like? And how are you feeling in general?
You want to hear a real bummer/? I had no phobia about needles, got mine the old fashioned way running around with a bunch of viet nam vets back in the late 70's, but because I have no problems with needles, I gave blood about twice a year. I am A-, so only 7% have my blood type... and guess what they got from all my good will?? That really haunts me...
sounds like you are a good friend...hopefully, she'll find some better answers than she's been getting...peace and blessings to you both...and you are right, hearing about your friend does put a lot of our problems into perspective...
Doin better today thank you, I'm gettin used to the work and tx thing ya know. Alls quiet ,so maybe tonite I can come out of hiding. Ya know, a guy gotta protect himself.
Dyce
Dyce
OMG! goofy! how is your brain wired?? That is hilarious! a new twist to the story! LOL!
I honestly did not see that one when I posted. we have to be on our toes here with you (oh gosh! is this one carrying a hidden twist too?)
KSK; please do check the vitamins mentioned
I honestly did not see that one when I posted. we have to be on our toes here with you (oh gosh! is this one carrying a hidden twist too?)
KSK; please do check the vitamins mentioned
Hey guy, having a better day? Sleep under that bed last night?
Think all's safe tonight. Best to you
Think all's safe tonight. Best to you
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