Aa
A
A
Close
3093770 tn?1389742726
Incivek sx
Ok, so I heard all the horror stories and as someone said, it seems that on the forum people come mainly to put questions regarding an issue and look for some solutions

I am now on my 9th day of Incivek (second attempt as some of you know)
But so far so good: no nausea, no digestive issues, no pain, no rash. In fact today I am feeling quite good. On the one hand I am happy on the other hand I am concerned. How come that I do not have sx? Is it working? In fact I feel better since I started Telaprevir then I was feeling only on SOC. Hmmmm!!!!!

Maybe is to early in the game and sx are creeping in later?
How bizzare: why cannot accept that maybe I won't have any major sx? Why do I think that I need to suffer for some drug to work?

The only challenge I have so far in my tx: headaches every second, third day and tiredness, but then anyone will be tired if it is not sleeping the whole night and has a 24 hours headache

Anybody out there who did not have terrible sx and achieved SVR?
Cancel
14 Answers
Page 1 of 1
1280753 tn?1367761532
i worked the first 4 weeks while on Incivek. by the 5th week i was a drooling mess. i haven't worked since then.....BUT.... i am looking at my last 2 stinkin Incivek pills in front of me and I can't wait to take them....I'll be done with them....so, I did it and you will too.....

maybe I'll have a gallon of ice cream and a couple of Twinkies to wash them down.....
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
"Anybody out there who did not have terrible sx and achieved SVR?"

Anemia was my worst side, besides that I did better my second tx then on my first that was just SOC.... But I made myself be more active, I always felt worse when I was just lying around.......And yes I am SVR. Good luck
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
  I was on the Victrelis, and I was shocked that the pills really didn't bother me, as I was taking 18 a day!  It was the Riba that gave me the anemia, which was my main sx.
   The surprising thing about the Victrelis capsules not bothering me, was I am very sensitive to vitamins in capsules, and also even findit hard to take a full 10 day round of antibiotics.
   But when it was time to stop taking my Boceprevir capsules, I was
amazed that I was never rly bothered by them.
   It is a very good sign that the Incivek isn't giving you bad sx, thus far!  I know another woman, a bit older than us, who experienced the same thing as you, and she treated for 48 weeks, working the whole time, so this kind of thing does happen :)
  
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
2029713 tn?1373044704
Not everyone has bad side effects, and maybe you will be one of the lucky ones. We have a tendency to hear from the people who are having a hard time, but not hear from the ones who are doing okay.

Personally, I felt pretty good the first two weeks. By week nine, however, the plasma concentration levels of the Riba/Interferon/Incivek and built up and I felt very weak, nauseous and fatigued. I was anemic, (hgb 8.9, then 8.5) and my doctor reduced my Riba to 800mg, which helped. Thankfully, I didn't have the terrible skin issues that some people get.

Let's hope that you will continue to feel good, and will sail through this to SVR.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
3230925 tn?1397619565
  Glad to here the sx are not hard on you.I've seen folks with terrible sx and have relapse.From studies I've read those with anemia tend to have higher SVR rates.If you didn't have any sx I would worry.From your data that you recently posted I  saw you're responding well to treatment and have anemia.

   I did see old threads from people who said the sx weren't tat bad for them and had achieved SVR.All of that can be open interpretation some folks will very sx and will complain like there is no tomorrow.Some will have terrible sx and you won't hear a whimper.It's all on each individuals deals with suffering and pain.You seem to be in the category of the non complainers.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
190885 tn?1333029491
i had lots of bad symptoms on incivek and now am svr....and another guy from near me had almost no symptoms on the triple with incivek except a very slight headache a couple days after the shot and got to svr!.......hang in there.... incivek is nasty on this virus.....billy
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I was pretty good on incivek till week 8 and good the dreaded rash; it was a challenge but you will find much advice here on remedies/treatments.  Best you can do is be prepared.  Kinda like Jumanji.

The best thing I can say about those pills is that they worked.  UND since week 4.

Best of luck.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
I've heard of some people who breeze through it.  It all depends on the person.  I had a pretty tough time on it and probably wouldn't have posted as much if it hadn't bothered me so much.  

I have to say, the Interferon doesn't bother me much.  In fact the day after the shot I always feel pretty good.  Not too ambitious but calm and relaxed.  Go figure.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
3203287 tn?1346460234
I haven't had many side affects either.  I have the bumps/itch and anemia...other than this, no sx.  I kept my fat content up (gained 10 lbs) which the doctor said "good"....that means you're eating your fat as needed.  I'm now off incivek and doing the peg interferon & ribavirin.  So far so good.  I am confirmed to only have to do 24 wks total so 10 more weeks to go.  Fighting the anemia.  Just had one shot of procrit so hoping next week my hgb is up and i can increase my ribavirin.  I have a new team of doctors/nurse practicioner now and feeling good about their protocols.  I hope you continue your low level of side affects.  It's probably too early though.  My rash started at about 7 weeks and continued, but treated it with pretty good success.  Good luck!
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
  I hope i am one of those people! I will start just after the 1st of the year. I did the tx in '02 and it sucked but was manageable I hope this is to. I heard it is a whole new ball game though.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
163305 tn?1333672171
Count your blessings. Meds do not affect everyone the same way and you are more often to hear complaints about treatment, than the opposite.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
whoo hoo!  Glad to hear you're doing so well.  Stick with the program.
Advocate1955
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
3093770 tn?1389742726
Yes, I do count my blessing :) So far so good, soon starting my 3rd jar so 2 weeks down and 10 to go :)

In 2 weeks I will have again a VL taken so this will be it really
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
2114467 tn?1358213856
Perhaps starting all 3 meds at first was obviously intolerable to your body . Now having had the lead-in, you will be able to manage any sx. Enjoy your good days. As someone has said, a little exercise is good. I know the exercise helped my mental state immensely.
Cheers,
C
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
475555 tn?1469307939
Blank
mike716 SVR at EOT+15, 07-19-2016. Comment
1 hr ago
317787 tn?1468754865
Blank
Dee1956 NEW SURVEY, top of page, pl... Comment
2 hrs ago
406584 tn?1399591666
Blank
10356, and Dee1956 commented on 10356's status
13 hrs ago
Blank
Weight Tracker
Track your weight over time
Start Tracking Now
Top Hepatitis Answerers
317787 tn?1468754865
Blank
DC
163305 tn?1333672171
Blank
Rural Mural, CA
446474 tn?1446351282
Blank
San Francisco, CA
Avatar universal
Blank
1747881 tn?1358189534
Blank
Greeley, CO
2059648 tn?1439770265
Blank
Hepatitis C Community Resources