On OFF LABEL Sovaldi and Olysio!

[GrammyA]

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!

[GrammyA]

I cannot tell all of you how happy it makes me to read through this HUGE thread I started and see many of you being treated with these new drugs.  My recap is simple - 1b since 8 months old, now 61 years old, full cirrhosis, tried treatment twice before on HORRIBLE ribs and Interferon based treatments which almost killed me off- was undetected then relapsed quickly.  NOW - I am 1 month out of treating for only 12 weeks with Olysio and Sovaldi and still undetectable.  My AST and ALT levels are low/normal, all my labs are perfect, my CT scan showed no ascites or liver lesions indicating cancer coming.  I am stronger, healthier and happier then I have been in over 20 years of dealing with this disease.  If you can cure with only these 2 drugs...try them!  I think there are some doctors out there still stuck in thinking Riba and Interferon MUST happen to get SVR, they are wrong!  There are also new drugs on the horizon that will be better tolerated by all.  So, stay educated - stay strong and NEVER accept a doctors opinion as the only answer!  Become your own best doctor and do research so maybe you can educate your health care providers.  Next test is 12 weeks post then the crucial 6 months post.... bring em on!
HUGS TO ALL!!!!

[HepGrandma]

Thanks so much for your encouraging words. I am nervous about taking these pills but hope you will all be there for support.  
  So happy you are on your last week - that's wonderful!
  Congratulations!!!!!!

[candyce1953]

On my last week of Sovaldi and olysio but no RIBA
My biggest side was allot of fatigue

No grape fruits, NO SUN, and take with food

UD at 4 and 8 weeks
Yeah!
You will do great!!

[candyce1953]

Good luck on your labs!!!

[HepGrandma]

Hi everyone! I am excited that I found all of you because I am going to start Sovaldi and Olysio and possibly Ribavirin in a few weeks. I am a grandmother who has had this for 44 years. It is comforting to know that you are all doing so well. I was a non responder to Interferon and RIBA twice.  Good luck to those of you waiting to start and continued luck to those of you on it already. I'll keep you posted,
By the way ginger snaps or Anna's Ginger cookies helped me with the nausea when I was on interferon

[Lovesmygolden]

Thanks for the warning, I will definitely check out the safety of Tums. Certainly don't want anything interfering with my treatment. Virus was undetectable at my 4 week labs, will have my next labs on Friday this week. Thanks again for the "heads up".