On OFF LABEL Sovaldi and Olysio!

[GrammyA]

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!

[pmcg]

I have Medicare Part D with United Health Care. United Health pays for 66% of Sovaldi and Olysio. That's 33% for m.  But only for the first 30 day supply of the first prescription. Because of the donut hole and out of pocket expenses cap once I reached the catastrophic designation (around $4700 or so) I only had to pay 5% for the rest. Anyway...it didn't come to 13,000, it came to way less than that. And because the PAN grant allows for $7,000 I ended up with $0 co pay. Somehow, my specialty pharmacy (Central Drugs in Portland OR), arranged all this for me. They did the PAN thing and filled out all the paperwork. All I had to do was pick up the medication the first time in person. The second time they delivered it by a courier in a car to my front door.

I'll repeat this...I am on Medicare Part D with United Health Care and I have zero co pay for Sovaldi and Olysio thanks to a grant from the Patient Access Network grant.

[HepGrandma]

First of all, GrammyA, THANK YOU for starting this post.

Does anyone know why some doctors prescribe Ribavirin with the Sovaldi/Olysio combo and some don't?  I was approved for all which would consist of taking 5 Ribavirin/day plus one each of Solvaldi and Olysio per day.  Is the Ribavirin an extra "boost"?

I have  a "teaching visit" at my doctor's office on May 15th for blood tests, instruction etc and hope to start immediately after that.

Also, do any of you find that exercise or certain foods help you through this treatment?  Thanks for any advice you can give.

[Lovesmygolden]

Thank you Candyce! I will definitely apply for that immediately! Thank you thank you!!

[candyce1953]

http://www.panfoundation.org

Called PAN

$7000 Copay assistance, for Medicare hepatitis c drugs

[Lovesmygolden]

Yes, you are right. I have Part D through AARP which is United Healthcare. I am on Sovaldi/Olysio combo. The good part is that it was easy to get approved, the bad part is that my copay is close to $13,000. It will take a LONG time to pay that credit card off!!

[candyce1953]

http://www.panfoundation.org

Called PAN

$7000 Copay assistance, for Medicare hepatitis c drugs