Aa
Please would everyone list sx.
Hi Guys I am going to post sx, because I was asked too, with no icing on the cake. I wish everyone here would add to this list, it is not intended to Scare anyone...I made it thru 48 wks. And so can you!
Well, when I first started tx. I did a few shots and a month passed and I thought ...gee what was all the hoopla? This is easy! Then the 3rd month it hit me! And it hit hard!!! We had been outta work because of snow and I had 5 days to rest. Well I wasn't able to go back to work! It was like all the sx hit at once. I was throwing up, running a fever, passing out, and to say the least...I HAD FATIGUE!!!! They said it would feel like you had the flu.......BULL %&*! I felt like I was freakin' dying.
MY body hurt so bad!!!!! I could barely get myself to the doctor appointments. And those were the only days I got dressed. About the 4th month my hair started falling out. So I like some others said...stopped washing it. I would go 2 wks w/o washing my hair..heck sometimes I would barely brush "at it". And bathing was very limited too. When I told my liver doctor I was about to start drinking again to kill the pain...he took notice and started me on pain pills.
I cannot stress the days I laid in the sofa (at home alone) and cried like a baby. My 75 and 80 yr old neighbors were cutting my grass and cooking for me and my husband who was working 10 hr. days. I never would have made it w/o them. I hated the fact that I no longer had any desire to have sex or for that reason be around any ppl at all. _continued-
Well, when I first started tx. I did a few shots and a month passed and I thought ...gee what was all the hoopla? This is easy! Then the 3rd month it hit me! And it hit hard!!! We had been outta work because of snow and I had 5 days to rest. Well I wasn't able to go back to work! It was like all the sx hit at once. I was throwing up, running a fever, passing out, and to say the least...I HAD FATIGUE!!!! They said it would feel like you had the flu.......BULL %&*! I felt like I was freakin' dying.
MY body hurt so bad!!!!! I could barely get myself to the doctor appointments. And those were the only days I got dressed. About the 4th month my hair started falling out. So I like some others said...stopped washing it. I would go 2 wks w/o washing my hair..heck sometimes I would barely brush "at it". And bathing was very limited too. When I told my liver doctor I was about to start drinking again to kill the pain...he took notice and started me on pain pills.
I cannot stress the days I laid in the sofa (at home alone) and cried like a baby. My 75 and 80 yr old neighbors were cutting my grass and cooking for me and my husband who was working 10 hr. days. I never would have made it w/o them. I hated the fact that I no longer had any desire to have sex or for that reason be around any ppl at all. _continued-
You are putting yourself through this because you dont want to get to stage FOUR which is where I am!!!!!!! Okay - here is where I stop whining and start helping! I will probably need lots of help when I start the tx and I suppose you are thinking what the hell does she know - she hasn't even started yet - I do nknow what it is to suffer and I kinda want to see my kid grow up - just think - youo get through this **** and you could very well be cured - say it again to yourself - CURED!!!!! Look outside that window and go ahead cry - cry with hope that one day this will all be a distant memory........
Hang in there.....I am sending ((((((HUGS))))).....I have had many of those days.....it is not fun....
Remember, better moments will come. We are here for you.
Remember, better moments will come. We are here for you.
Could you please post that "Don't Quit" sooner rather than later. I am having the worst day.It is beautiful outside and I feel so horrible and can't stop crying. I have stage 1 and have had stage 1 for over 10years so why am I doing this treatment? Because I just can't remember and I want to go outside and feel normal. I am only at 5/26. It sounds like I am feeling sorry for myself but I feel so horrible right now.
I told myself that this thread might be kind of depressing to read and comment on, but then I remember about a year ago(I just realized it will be a yr this week since I was Dx),after "researching" site after site (including the surgeon general's) which by the way I now think should be taken down for been alarmistic. I thought death was upon me and almost left my new boyfriend. It was this site that put hcv into a better perspective and help me decide on TX.
With that in mind and for the newbies still lurking and deciding. My experience after 36 shots:
First 4 weeks I remember no major sx, I felt good. A little chills and achy. I did notice shortness of breath increasing as weeks went by. Tightness in the chest and later pain behind the left breast, forgetfulness, high BP. Those sx subsided on Procrit (it was the mentioning of the chest pain that prompted them, my count was not as low as some here), I see many suffering these sx and it seems a shame that the doctors are going by numbers and not the actual symptoms experienced. I had many of the other sx mentioned, but they have become somewhat stable and manageable. I am still working, having sex, trying to exercise(slacking off) and hoping for a hcv free life without permanent sx from the tx. I did not pass out, :-).
So, it seems most of us had common sx, some more severe than others, some people get them sooner than others, some never, The variables are the only predictable thing.
Those of you scared after reading all the sx (as i once was), you can't tell what YOU will feel until you try. You might be lucky enough to have manageable sx and continue life as usual.
Gl all
With that in mind and for the newbies still lurking and deciding. My experience after 36 shots:
First 4 weeks I remember no major sx, I felt good. A little chills and achy. I did notice shortness of breath increasing as weeks went by. Tightness in the chest and later pain behind the left breast, forgetfulness, high BP. Those sx subsided on Procrit (it was the mentioning of the chest pain that prompted them, my count was not as low as some here), I see many suffering these sx and it seems a shame that the doctors are going by numbers and not the actual symptoms experienced. I had many of the other sx mentioned, but they have become somewhat stable and manageable. I am still working, having sex, trying to exercise(slacking off) and hoping for a hcv free life without permanent sx from the tx. I did not pass out, :-).
So, it seems most of us had common sx, some more severe than others, some people get them sooner than others, some never, The variables are the only predictable thing.
Those of you scared after reading all the sx (as i once was), you can't tell what YOU will feel until you try. You might be lucky enough to have manageable sx and continue life as usual.
Gl all
Hiya showboat - thankyou for your kind words - your husband cured and you WILL BE TOO I just know it! Just cannot figure out why all these strangers - people who don't even know me are being so kind........off to have a blub - you have all made me feel so much better.....thank you very very much and I promise to try to be brave and not to whine too much while on the treatment - I will do my best to make you all laugh!!
Thanks fubarcat for your posting - hearing about the hectic day you were able to have has eased my anxiety somewhat. It is just that I am such an active person - I run my own business - luckily from home so I guess I am in a lot better positionj than the poor souls who have to travel to work every day..........Lots of love and light to you and yours. And thank you.
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