Aa
A
A
Close
Avatar_universal
Sojourns Disease
My wife has been diagnosed with Sojourns Disease.  I am attempting to research the disease, the causes, the symptoms, and especially the approved treatments.
Cancel
10 Answers
Page 1 of 1
96938_tn?1189803458
Really don't know anything about it but could it be 'Sjogren's Syndrome'?     Try to 'google' it.
Comment
Cancel
96938_tn?1189803458
Comment
Comment
Submit Comment
Avatar_universal
I was just reading about this, though I don't know that much. Apparently it's autoimmune disease- so your body produces antibodies against it's own proteins.  Very common symptoms include dry mouth and dry eyes- I believe the disease is systemic.  There is a national and then local chapters of Sjogren's Syndrome associations- self help groups. Good luck, you should be able to find lots on the internet.  
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
where can i get info. on sojourns disease. My doctor is running lab work now.  He told me yesterday this is a possibility. I can't find out much more than it's an autoimune disease    
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
Sjogren's Syndrome effects about 4 million in the us. 90% are female.

The cause is unknown.

There are many and very varied symptoms. It is an autoimmune inflammatory connective tissue  rheumatologic conditon.

There are a variety of treatments, some are dependent on the particular symptoms being exhibited. Not the same for everyone.

For more information see www.sjogrens.netfirms.com
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
408795_tn?1324939275
Here's a little bit of information, I got it off the hcvinprison website.  It was in one of their newsletters, Jan-Feb 2002.  I left the link to the pdf, but it may be zapped.  God Bless

Glossary of Common Conditions Linked to Hepatitis C

Sjogren's Syndrome - Sjogren's syndrome is a chronic inflammatory autoimmune disorder. The syndrome occurs by itself or can, and often does, occur with other autoimmune diseases such as lupus, ploymyositis, rheumatoid arthritis, scleroderma, and other lesser known rheumatic autoimmune diseases.  In Sjogren's syndrome, the immune system produces lymphocytes (white blood cells) that produce self-reactive proteins called autoantibodies which attack the tear, salivary, and other moisture producing glands, thus destroying the glands and their ability to produce moisture. Many parts of the body can be affected by Sjogren's syndrome, such as the lungs, brain, nerves, joints, kidneys, thyroid, and liver. In the majority of cases, the autoimmune response is confined to the tear ducts, salivary glands, and vagina.

http://www.hcvinprison.org/cms/images/stories/hcvinprison/docs/newsletters/Jan-Feb_2002.pdf
Comment
Cancel
408795_tn?1324939275
Comment
Comment
Submit Comment
Avatar_universal
I was diagnosed this week with sjogren's syndrome, but I don't have dry eyes or the dry mouth. My symptoms are joint pain, two of my attacks have been intense, could barely walk or pick up a glass of water cause the pain was intense, headaches, dizzy spells, tingling sensations, chest tightness woke me up several nights, don't sleep good, hard time concentration or just remembering lots of confusion, anyone in the same boat lets talk.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Avatar_universal
by the way I am 33 years old been in great health. Have ran numerous marathons used to be in great shape and healthy.
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
691935_tn?1421030690
I'm assuming if you are in this forum your wife has hepatitis C.  HCV is considered a triggering agent of systemic autoimmune diseases, one of which is Sj√∂gren's syndrom.  Dry eyes and dry mouth are the most common symptoms. I have a friend that has it and she has the most trouble with her eyes. The get very red, swollen, and painful.
Comment
Cancel
691935_tn?1421030690
Comment
Comment
Submit Comment
13687440_tn?1431046837
I also do not have the very common dry mouth or eyes. I have swelling painful joints, fatigue, tingling hands, memory problems. The test is positive for sojourns but acts more like lupus.
Comment
Cancel
13687440_tn?1431046837
Comment
Comment
Submit Comment
Avatar_universal
This thread is over 4 years old.  I don't believe I have seen Stacie on here in a long time.

If you also have Hep C, then go to the top of this page, select the green Ask a Question button and post your comment there.  We have lots of carin, knowledgeable people who are willing to help.

If you don't have Hep C, then go to the top of the page and select Communities on the blue band above the Tree of Helping Hands, when the drop down list comes up, then you can choose Lupus or Sjogren's Syndrome.

Either of those should give you good information from others with the same condition.

Good luck and Blessings,   Pat
Comment
Cancel
Avatar_universal
Comment
Comment
Submit Comment
Your Answer
Avatar_universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Sojourns Disease
Submit Answer
A
A
Recent Activity
1415174_tn?1453246703
Blank
mkh9 commented on photo
9 hrs ago
Avatar_m_tn
Blank
zahidkapariya commented on photo
10 hrs ago
1415174_tn?1453246703
Blank
mkh9 uploaded new photos
14 hrs ago
Blank
Weight Tracker
Track your weight over time
Start Tracking Now
Top Hepatitis Answerers
163305_tn?1333672171
Blank
orphanedhawk
Rural Mural, CA
Avatar_m_tn
Blank
can-do-man
IN
683231_tn?1438659664
Blank
flyinlynn
Auburn, WA
446474_tn?1446351282
Blank
HectorSF
San Francisco, CA
317787_tn?1428318779
Blank
Dee1956
DC
1815939_tn?1377995399
Blank
pooh55811
Hepatitis C Community Resources
Top Hepatitis Answerers
163305_tn?1333672171
Blank
orphanedhawk
Rural Mural, CA
Avatar_m_tn
Blank
can-do-man
IN
683231_tn?1438659664
Blank
flyinlynn
Auburn, WA
446474_tn?1446351282
Blank
HectorSF
San Francisco, CA
317787_tn?1428318779
Blank
Dee1956
DC
1815939_tn?1377995399
Blank
pooh55811