Aa
Stage 4 72 weeks SVR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Just got the news early this morning -
Hi Pam, CONGRATULATIONS!!!!!!! HOT OFF THE PRESS. NEGATIVE PCR AT 6 MONTHS.GOOD JOB!!!! One more check in June but this is the important one!
Component ResultsComponent Your Value Standard Range Units
HEP C RNA PCR QN Undetected IU/mL
HCV RNA is not detected.
Result in log IU/mL= Undetected
Quantification range of this assay is 43 IU/mL to
69,000,000 IU/mL (1.63 to 7.84 log IU/mL).
Testing was performed by the COBAS AmpliPrep/COBAS TaqMan
HCV Test (Roche Molecular Systems, Inc.).
Test Performed by:
Mayo Clinic Dpt of Lab Med and Pathology
200 First Street SW, Rochester, MN 55905
Laboratory Director: Franklin R. Cockerill, III, M.D.
My odds weren't great going into tx, so they had me double dose the Peg for 12 weeks with the Riba at 1400, then 1 1/2 does of Peg per week and 1200 Riba until EOT. Needed Procrit from about the 9th month on..... Cleared at 12 weeks and have remained virus free since then.
At 6 months post, I am feeling better with each passing day. My thyroid seems to have gone hypo after remaining stable throughout, but that's so manageable. Vit D very low and just started on 50,000 IU's per week for 4-6 weeks. Cholesterol good at 150, but Glucose creeping up again (112). Hgb 13.7 and rest of labs looking good. MRI shows no lesions or tumors. Next test at 1 year post, but the rest of labs and US or MRI every 6 months due to the cirrhosis.
I am so very happy and grateful for the guidance of this aggressive Dr. and staff and for the collective knowledge and support here.
Pam
Hi Pam, CONGRATULATIONS!!!!!!! HOT OFF THE PRESS. NEGATIVE PCR AT 6 MONTHS.GOOD JOB!!!! One more check in June but this is the important one!
Component ResultsComponent Your Value Standard Range Units
HEP C RNA PCR QN Undetected IU/mL
HCV RNA is not detected.
Result in log IU/mL= Undetected
Quantification range of this assay is 43 IU/mL to
69,000,000 IU/mL (1.63 to 7.84 log IU/mL).
Testing was performed by the COBAS AmpliPrep/COBAS TaqMan
HCV Test (Roche Molecular Systems, Inc.).
Test Performed by:
Mayo Clinic Dpt of Lab Med and Pathology
200 First Street SW, Rochester, MN 55905
Laboratory Director: Franklin R. Cockerill, III, M.D.
My odds weren't great going into tx, so they had me double dose the Peg for 12 weeks with the Riba at 1400, then 1 1/2 does of Peg per week and 1200 Riba until EOT. Needed Procrit from about the 9th month on..... Cleared at 12 weeks and have remained virus free since then.
At 6 months post, I am feeling better with each passing day. My thyroid seems to have gone hypo after remaining stable throughout, but that's so manageable. Vit D very low and just started on 50,000 IU's per week for 4-6 weeks. Cholesterol good at 150, but Glucose creeping up again (112). Hgb 13.7 and rest of labs looking good. MRI shows no lesions or tumors. Next test at 1 year post, but the rest of labs and US or MRI every 6 months due to the cirrhosis.
I am so very happy and grateful for the guidance of this aggressive Dr. and staff and for the collective knowledge and support here.
Pam
AWESOMENESS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
You must be added immediately to our 72weeks group thread - after all we are pretty hard core to have managed it in the first place but it's fun to watch the 'hard to treat group' succeed!
You must be added immediately to our 72weeks group thread - after all we are pretty hard core to have managed it in the first place but it's fun to watch the 'hard to treat group' succeed!
Oooh; seriously cool news!
So you didn’t require epo until roughly month nine, and then used it for the duration?
I did extended therapy too, so I know it gets to be a grind, especially out towards the end. I’ll scooch down the SVR bench and make some room for you; a hearty congrats,
Bill
So you didn’t require epo until roughly month nine, and then used it for the duration?
I did extended therapy too, so I know it gets to be a grind, especially out towards the end. I’ll scooch down the SVR bench and make some room for you; a hearty congrats,
Bill
That is such great news!!!!
After all that time on tx, you deserve the peace of mind from seeing SVR
Diane
After all that time on tx, you deserve the peace of mind from seeing SVR
Diane
What a wonderful job you and your doc team have done - hearty congratulations! Major display of willpower...
Congratulations on your fantastic news!!!!
A long and hard road with a wonderful result.
Stay well,
Mike
A long and hard road with a wonderful result.
Stay well,
Mike
CONGRATULATIONS!!!!!!!You beat the odds!
What a holiday present.You have your whole life ahead of you! Awesome!
Remember to still get scans for HCC as you are at higher than normal risk.
Best -
hectorsf
What a holiday present.You have your whole life ahead of you! Awesome!
Remember to still get scans for HCC as you are at higher than normal risk.
Best -
hectorsf
Thanks so much for your well wishes - they mean alot. May this upcoming year and new drugs bring more of these posts for all of us!
Pam
Pam
I LOVE IT !!!
Even people with cirrhosis are beating the dragon down !!!!
Congrats. Go and enjoy life.......you earned it
Even people with cirrhosis are beating the dragon down !!!!
Congrats. Go and enjoy life.......you earned it
SOOO very happy for you!!! Congratulations to you!! Thank you for posting your wonderful news with all here so that we may share in your happiness. :)
~Pos.
~Pos.
AAAWWWEEESSSOOOOMMMEEE,
congratulations.
I am SVR 12 headed now to the six month test. Great for you. Feels good, right.
Wow, you really went through massive TX, but you beat the beast.
Live your live and enjoy every minute of every day.
Paen is inspiration to those that don't think they can do this. YES we can.
congratulations.
I am SVR 12 headed now to the six month test. Great for you. Feels good, right.
Wow, you really went through massive TX, but you beat the beast.
Live your live and enjoy every minute of every day.
Paen is inspiration to those that don't think they can do this. YES we can.
CONGRETULATIONS , this is great, one more question, is it your first therapy, or repeated?Second question, how much Procrit is taken,in case of anemia (which is common and seriously can affect the outcome of the therapy.Thank you in advance, I am about to repeat the therapy (I am geno 1, stage 3, and previously treated, partial responder)!
Wonderful news !!! A real inspiration to all who are waiting in line.
You deserve your success
You deserve your success
Thanks again everyone. It's finally starting to set in - I was kind of in a daze yesterday.
Diamando, This was my first tx. I took one shot of Procrit per week - maybe could have done with more, but it kept my Hgb in the 9's and I felt pretty good there (considering). Towards the end, it barely kept it in the nines and I could have done with more perhaps, but the end was so close I decided to hold off. In retrospect, I should have taken it. I did rebound fairly quickly post tx.
My hgb was slow to drop early on, even at the high doses of Peg and Riba. At 4 weeks, I had only dropped to 38,000 from 848, 000. Would a pre-dosing of Riba helped? I thought so prior to tx, but the Dr. thought not. And I do agree that it's important to hit it hard early on, especially at Stage 4, but not to jeopardize tx and our health.
Initially, I was only supposed to do the enhanced tx until 48 weeks and then SOC until 72, but they wanted me to stay the course at the 48 week point. I remember crying (alot) then, but it all worked out in the end.
Two things that have changed since I began tx, at least in this office. Everyone gets their Vit. D tested and no tx until it's over 50. Also all Geno 1's have an IL-28 gene test. Things are changing so quickly and finally looking better, even for us cirrhotics.
Diamando, This was my first tx. I took one shot of Procrit per week - maybe could have done with more, but it kept my Hgb in the 9's and I felt pretty good there (considering). Towards the end, it barely kept it in the nines and I could have done with more perhaps, but the end was so close I decided to hold off. In retrospect, I should have taken it. I did rebound fairly quickly post tx.
My hgb was slow to drop early on, even at the high doses of Peg and Riba. At 4 weeks, I had only dropped to 38,000 from 848, 000. Would a pre-dosing of Riba helped? I thought so prior to tx, but the Dr. thought not. And I do agree that it's important to hit it hard early on, especially at Stage 4, but not to jeopardize tx and our health.
Initially, I was only supposed to do the enhanced tx until 48 weeks and then SOC until 72, but they wanted me to stay the course at the 48 week point. I remember crying (alot) then, but it all worked out in the end.
Two things that have changed since I began tx, at least in this office. Everyone gets their Vit. D tested and no tx until it's over 50. Also all Geno 1's have an IL-28 gene test. Things are changing so quickly and finally looking better, even for us cirrhotics.
Have an Answer?
You are reading content posted in the Hepatitis C Community
Learn about this treatable virus.
Getting tested for this viral infection.
3 key steps to getting on treatment.
4 steps to getting on therapy.
What you need to know about Hep C drugs.
How the drugs might affect you.
These tips may up your chances of a cure.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
