SVR, was undectabe at 1 month

[hondapatches]

I came up undectable after one month have been that was since.
I was ok the first five months, now I can't work I don't want to even get out of bed.
My equalibrim is bad when I drive. My son don't even want to ride with me.
I told my doctor I want off in May, He said we might try something  I don't want something else
I want my life back and my hair to grow back.My daughter is freakin out she wants me to
go to the hospital. I just talked to My Dr 2 days ago.
Is anybody else as missrable as me.

[hondapatches]

Yeah I can't drive to good, lol I think I have hit every curve in the area. when they say I am undectible is that SVR  I don't know when to stop.
My doctor doesn't call unless I call him first with a problem

[EspritLibre1]

Patches ..yeah, its difficult.  just finished a couple of wks ago and actually feeling a little better the last day or two.  i hear you on balance and driving... last 2 mths were worse for me.  I didn't drive .. could've but probably would have killed someone -hang in there, seems like it never ends but it does!

Lonestar, great comments.. and very encouraging - still feeling tx affects but only off a couple of wks so looking forward to the hiking and and all that! Libby

[pjhep80]

wow your husband sounds like my friend billy, he is cirrotic and kidney failure and has been treating on and off for 4 years, i think they finally stoped it though, there is nothing else they can do for him really, he is on the transplant list but i doubt he will get one

such a choice we all have ... live in misery on these meds or wait for our livers to shrivel up and die...

im waiting on my liver haha but i consider myself very very VERY lucky because my hep is not raging ... not right now anyway... its there but its not doing too much that they can see and im taking care of it as best i can

ive decided to post here alot more .... whenever i start thinking im ok and can have a drink especially haaaaaaa

i hope you all dont mind ...

[merryBe]

yes, and misery has got company...not that we love it...but it's nice to know yu are not alone at least.   the 5 month mark seems to a rough on everyone...it's when Riba reaches it's final crecendo peaks and maybe the INF constant flu is getting just a wee bit too old to be fun even if someone does bring you broth and pudding...

and then there's the mirror!!!!!!!  Tape that THANG OVER girlfriend...I mean seriously,
just glue funny papers to em...and get some fun hats/shades and bangles....
think of it as a perfect time for a break from Max Factor and the whole sordid thing...slap on a hat, lip balm...and get on down the road..

how much longer do yu have...what genotype??  You can't quit when you half way to forever free.....it wouldn't be prudent!!

[Forseegood]

thank you for that beautiful post...I really needed to read that tonight...good on you....

[Lonestar823]

Dear Patches, I remember you.  You didn't come back for a long, long time and I've wondered how you were.  This is how we live Patches.  This is what life is like for a while, that's all.  You are doing the infergen, I remember.  It's not easy.  It's quite difficult, I know.  Do you remember I did 73 weeks on that stuff?  I'm SVR against all odds.  There's another girl here, Tallahassee, who did 98 weeks plus and she's SVR against all odds too.  You cleared earlier than we did and so you won't have to do the long haul.  I remember you have a son with HCV too and he's young.  He's most likely watching you and worrying.  It's just a block of time Patches.  My hair grew back all thick and curly again.  I'm strong and hiking again.  My life's perspective is different.  Somehow I'm not exactly the same person I was before but I'm comfortable with who I am now.  It was war and very, very difficult but I have no regrets.  I'm only grateful, that's all.

[hitherdither]

Yes, I can honestly say that my husband is as miserable as you or probably worse. He's on his 13th shot.  The arthritis is tearing his body apart. He lost 7 pounds these past two weeks.  I have to help him put his pants on, shave, bathe, he can't drive, he can't do anything for himself....but....he won't get off the meds.  His dr and nurse are watching him carefully. They said they don't know how he's doing it with the pain he's in.  He won't take pain killers due to an addiction years ago.  His blood has dropped so much that he has to take aronesp shots every other week. Just getting him to the car to get to the dr is a feat in itself.  He never complains....never....I feel so bad for him but he never says anything to me about feeling bad.  He says he's taking one day at a time.  Watching him go from someone that worked 10 hour days and could do anything to a 57 year old man that looks like an 80 year old man is killing me. He's actually shriveling up before my eyes but won't quit the meds, knowing it'll come back if he does. He's been undetected since week 7 or earlier.  He's hanging on to the hope that he'll be SVR. Watching all the people at the clinic we go to walking, talking, laughing and then when they call my husbands name and I have to lift him out of his chair and take baby steps until we get where we have to go makes me so jeolous. I wish he was doing so well as others.  I'm not being mean...I know it's hard but it's frustrating when I know and see that it can be worse on people. Sorry if I come across as being mean but we're exhausted from the day. But yes..to answer your question there is someone as miserable as you.